Starting School

L

lexisangels05

New member
Lexi, my 5 year old daughter with CF will be starting school in the fall. My husband and I will be meeting with her principal next week to see what exact state programs she applies for...IEP, 504, a shadow. I was just wandering if any of you have any suggestions. What you would/wouldn't do. What is on your kids 504 plan...ect

Thanks,
Melissa
 
L

lexisangels05

New member
Lexi, my 5 year old daughter with CF will be starting school in the fall. My husband and I will be meeting with her principal next week to see what exact state programs she applies for...IEP, 504, a shadow. I was just wandering if any of you have any suggestions. What you would/wouldn't do. What is on your kids 504 plan...ect

Thanks,
Melissa
 
L

lexisangels05

New member
Lexi, my 5 year old daughter with CF will be starting school in the fall. My husband and I will be meeting with her principal next week to see what exact state programs she applies for...IEP, 504, a shadow. I was just wandering if any of you have any suggestions. What you would/wouldn't do. What is on your kids 504 plan...ect

Thanks,
Melissa
 
L

lexisangels05

New member
Lexi, my 5 year old daughter with CF will be starting school in the fall. My husband and I will be meeting with her principal next week to see what exact state programs she applies for...IEP, 504, a shadow. I was just wandering if any of you have any suggestions. What you would/wouldn't do. What is on your kids 504 plan...ect

Thanks,
Melissa
 
L

lexisangels05

New member
Lexi, my 5 year old daughter with CF will be starting school in the fall. My husband and I will be meeting with her principal next week to see what exact state programs she applies for...IEP, 504, a shadow. I was just wandering if any of you have any suggestions. What you would/wouldn't do. What is on your kids 504 plan...ect
<br />
<br />Thanks,
<br />Melissa
<br />
 
M

mltoliver

New member
Hi Melissa.
My daughter is 5 and could have entered Kinder last Sept. we held her back - I thought I was going to hold off until she was 6 and a little bigger (we have big weight issues with her). Anyway, it was evident that she wanted to and needed to start, so we just started her - this will be the third week that she has been in.

I will admit that we are very lucky as her grandma is her kinder teacher, so I know that she is familiar with what we need to do and how to care for her.

We had a 504 plan - the principal pulled the information up off the CFF website and we went from there. They allow her to take her own enzymes - we pack them with her snack. I requested that they include access to a private bathroom, if needed. If she needs privacy, she can go to the staff restroom, which is private. She is allowed snacks and drinks at any time during the day. She is allowed as many absences and tardies as needed. The CFF website said she should be provided a second set of text books if needed for prolonged illness at home.

My mother in law (teacher) gives her as much independence as possible as we are "training" her for first grade and on. So, we let her take her own enzymes. She did well the first week. Second week, she didn't take them one time and left them in her bag (she was self-conscious). So my mother in law checks her snack pack, after snack time/recess. She has been taking them with no problem.

She LOVES school.
 
M

mltoliver

New member
Hi Melissa.
My daughter is 5 and could have entered Kinder last Sept. we held her back - I thought I was going to hold off until she was 6 and a little bigger (we have big weight issues with her). Anyway, it was evident that she wanted to and needed to start, so we just started her - this will be the third week that she has been in.

I will admit that we are very lucky as her grandma is her kinder teacher, so I know that she is familiar with what we need to do and how to care for her.

We had a 504 plan - the principal pulled the information up off the CFF website and we went from there. They allow her to take her own enzymes - we pack them with her snack. I requested that they include access to a private bathroom, if needed. If she needs privacy, she can go to the staff restroom, which is private. She is allowed snacks and drinks at any time during the day. She is allowed as many absences and tardies as needed. The CFF website said she should be provided a second set of text books if needed for prolonged illness at home.

My mother in law (teacher) gives her as much independence as possible as we are "training" her for first grade and on. So, we let her take her own enzymes. She did well the first week. Second week, she didn't take them one time and left them in her bag (she was self-conscious). So my mother in law checks her snack pack, after snack time/recess. She has been taking them with no problem.

She LOVES school.
 
M

mltoliver

New member
Hi Melissa.
My daughter is 5 and could have entered Kinder last Sept. we held her back - I thought I was going to hold off until she was 6 and a little bigger (we have big weight issues with her). Anyway, it was evident that she wanted to and needed to start, so we just started her - this will be the third week that she has been in.

I will admit that we are very lucky as her grandma is her kinder teacher, so I know that she is familiar with what we need to do and how to care for her.

We had a 504 plan - the principal pulled the information up off the CFF website and we went from there. They allow her to take her own enzymes - we pack them with her snack. I requested that they include access to a private bathroom, if needed. If she needs privacy, she can go to the staff restroom, which is private. She is allowed snacks and drinks at any time during the day. She is allowed as many absences and tardies as needed. The CFF website said she should be provided a second set of text books if needed for prolonged illness at home.

My mother in law (teacher) gives her as much independence as possible as we are "training" her for first grade and on. So, we let her take her own enzymes. She did well the first week. Second week, she didn't take them one time and left them in her bag (she was self-conscious). So my mother in law checks her snack pack, after snack time/recess. She has been taking them with no problem.

She LOVES school.
 
M

mltoliver

New member
Hi Melissa.
My daughter is 5 and could have entered Kinder last Sept. we held her back - I thought I was going to hold off until she was 6 and a little bigger (we have big weight issues with her). Anyway, it was evident that she wanted to and needed to start, so we just started her - this will be the third week that she has been in.

I will admit that we are very lucky as her grandma is her kinder teacher, so I know that she is familiar with what we need to do and how to care for her.

We had a 504 plan - the principal pulled the information up off the CFF website and we went from there. They allow her to take her own enzymes - we pack them with her snack. I requested that they include access to a private bathroom, if needed. If she needs privacy, she can go to the staff restroom, which is private. She is allowed snacks and drinks at any time during the day. She is allowed as many absences and tardies as needed. The CFF website said she should be provided a second set of text books if needed for prolonged illness at home.

My mother in law (teacher) gives her as much independence as possible as we are "training" her for first grade and on. So, we let her take her own enzymes. She did well the first week. Second week, she didn't take them one time and left them in her bag (she was self-conscious). So my mother in law checks her snack pack, after snack time/recess. She has been taking them with no problem.

She LOVES school.
 
M

mltoliver

New member
Hi Melissa.
<br />My daughter is 5 and could have entered Kinder last Sept. we held her back - I thought I was going to hold off until she was 6 and a little bigger (we have big weight issues with her). Anyway, it was evident that she wanted to and needed to start, so we just started her - this will be the third week that she has been in.
<br />
<br />I will admit that we are very lucky as her grandma is her kinder teacher, so I know that she is familiar with what we need to do and how to care for her.
<br />
<br />We had a 504 plan - the principal pulled the information up off the CFF website and we went from there. They allow her to take her own enzymes - we pack them with her snack. I requested that they include access to a private bathroom, if needed. If she needs privacy, she can go to the staff restroom, which is private. She is allowed snacks and drinks at any time during the day. She is allowed as many absences and tardies as needed. The CFF website said she should be provided a second set of text books if needed for prolonged illness at home.
<br />
<br />My mother in law (teacher) gives her as much independence as possible as we are "training" her for first grade and on. So, we let her take her own enzymes. She did well the first week. Second week, she didn't take them one time and left them in her bag (she was self-conscious). So my mother in law checks her snack pack, after snack time/recess. She has been taking them with no problem.
<br />
<br />She LOVES school.
 
R

Rebjane

Super Moderator
Hi Melissa,
My daughter started kindergarten last fall and Loves it. I sat down with the school nurse and her teacher to talk about what Maggie would need. I also spoke to the principal over the phone. We live in a very small town so our school is fairly small; though her classroom has 18 children in it. Maggie takes her own enzymes, I pack them with her lunch...She is very good about this. At first; the nurse wanted her to come the office every time for enzymes but she changed her mind when I told her how mature Maggie was and how she's been taking theses enzymes since she was born. And that part worked out. Also, Maggie CF doc wrote a letter about CF, making sure if Maggie was absent greater than 3 days in a row to set up a tutor(haven't needed this yet), Maggie may have unexpected absences for doc appointments or hospitalizations; as well. He also, ended the letter very positively saying Maggie should set high goals for herself(basically she shoudl be treated like everyone else) She should have water available or gatorade and may have a salty snack after gym. It is an adjustment; you just need to flexible. Educating the teacher about CF is helpful. For example, people assume all kids with CF cough all the time. I told the nurse and teacher to please let me know if Maggie is coughing alot at school because her norm is not to cough unless she is sick. Also, do not restrict access to the bathroom. I let the school know I am alway available and reacheable by cell phone or work or home, to call if there are any problems...So far the transition has been a good one.
 
R

Rebjane

Super Moderator
Hi Melissa,
My daughter started kindergarten last fall and Loves it. I sat down with the school nurse and her teacher to talk about what Maggie would need. I also spoke to the principal over the phone. We live in a very small town so our school is fairly small; though her classroom has 18 children in it. Maggie takes her own enzymes, I pack them with her lunch...She is very good about this. At first; the nurse wanted her to come the office every time for enzymes but she changed her mind when I told her how mature Maggie was and how she's been taking theses enzymes since she was born. And that part worked out. Also, Maggie CF doc wrote a letter about CF, making sure if Maggie was absent greater than 3 days in a row to set up a tutor(haven't needed this yet), Maggie may have unexpected absences for doc appointments or hospitalizations; as well. He also, ended the letter very positively saying Maggie should set high goals for herself(basically she shoudl be treated like everyone else) She should have water available or gatorade and may have a salty snack after gym. It is an adjustment; you just need to flexible. Educating the teacher about CF is helpful. For example, people assume all kids with CF cough all the time. I told the nurse and teacher to please let me know if Maggie is coughing alot at school because her norm is not to cough unless she is sick. Also, do not restrict access to the bathroom. I let the school know I am alway available and reacheable by cell phone or work or home, to call if there are any problems...So far the transition has been a good one.
 
R

Rebjane

Super Moderator
Hi Melissa,
My daughter started kindergarten last fall and Loves it. I sat down with the school nurse and her teacher to talk about what Maggie would need. I also spoke to the principal over the phone. We live in a very small town so our school is fairly small; though her classroom has 18 children in it. Maggie takes her own enzymes, I pack them with her lunch...She is very good about this. At first; the nurse wanted her to come the office every time for enzymes but she changed her mind when I told her how mature Maggie was and how she's been taking theses enzymes since she was born. And that part worked out. Also, Maggie CF doc wrote a letter about CF, making sure if Maggie was absent greater than 3 days in a row to set up a tutor(haven't needed this yet), Maggie may have unexpected absences for doc appointments or hospitalizations; as well. He also, ended the letter very positively saying Maggie should set high goals for herself(basically she shoudl be treated like everyone else) She should have water available or gatorade and may have a salty snack after gym. It is an adjustment; you just need to flexible. Educating the teacher about CF is helpful. For example, people assume all kids with CF cough all the time. I told the nurse and teacher to please let me know if Maggie is coughing alot at school because her norm is not to cough unless she is sick. Also, do not restrict access to the bathroom. I let the school know I am alway available and reacheable by cell phone or work or home, to call if there are any problems...So far the transition has been a good one.
 
R

Rebjane

Super Moderator
Hi Melissa,
My daughter started kindergarten last fall and Loves it. I sat down with the school nurse and her teacher to talk about what Maggie would need. I also spoke to the principal over the phone. We live in a very small town so our school is fairly small; though her classroom has 18 children in it. Maggie takes her own enzymes, I pack them with her lunch...She is very good about this. At first; the nurse wanted her to come the office every time for enzymes but she changed her mind when I told her how mature Maggie was and how she's been taking theses enzymes since she was born. And that part worked out. Also, Maggie CF doc wrote a letter about CF, making sure if Maggie was absent greater than 3 days in a row to set up a tutor(haven't needed this yet), Maggie may have unexpected absences for doc appointments or hospitalizations; as well. He also, ended the letter very positively saying Maggie should set high goals for herself(basically she shoudl be treated like everyone else) She should have water available or gatorade and may have a salty snack after gym. It is an adjustment; you just need to flexible. Educating the teacher about CF is helpful. For example, people assume all kids with CF cough all the time. I told the nurse and teacher to please let me know if Maggie is coughing alot at school because her norm is not to cough unless she is sick. Also, do not restrict access to the bathroom. I let the school know I am alway available and reacheable by cell phone or work or home, to call if there are any problems...So far the transition has been a good one.
 
R

Rebjane

Super Moderator
Hi Melissa,
My daughter started kindergarten last fall and Loves it. I sat down with the school nurse and her teacher to talk about what Maggie would need. I also spoke to the principal over the phone. We live in a very small town so our school is fairly small; though her classroom has 18 children in it. Maggie takes her own enzymes, I pack them with her lunch...She is very good about this. At first; the nurse wanted her to come the office every time for enzymes but she changed her mind when I told her how mature Maggie was and how she's been taking theses enzymes since she was born. And that part worked out. Also, Maggie CF doc wrote a letter about CF, making sure if Maggie was absent greater than 3 days in a row to set up a tutor(haven't needed this yet), Maggie may have unexpected absences for doc appointments or hospitalizations; as well. He also, ended the letter very positively saying Maggie should set high goals for herself(basically she shoudl be treated like everyone else) She should have water available or gatorade and may have a salty snack after gym. It is an adjustment; you just need to flexible. Educating the teacher about CF is helpful. For example, people assume all kids with CF cough all the time. I told the nurse and teacher to please let me know if Maggie is coughing alot at school because her norm is not to cough unless she is sick. Also, do not restrict access to the bathroom. I let the school know I am alway available and reacheable by cell phone or work or home, to call if there are any problems...So far the transition has been a good one.
 
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