Just wondering if any one can give me some information on this bacteria (stenotrophomonas maltophillia)? Our daughters last throat culture came back with this growth. It is the first time anything has ever came back and I am totally worried <img src="i/expressions/face-icon-small-sad.gif" border="0"> The doctors at the CF clinic don't seem to worried about it, but the information I have found on the web has me worried. Any help would be nice. ThanksSandi
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Stenotrophomonas Maltophillia
- Thread starter anonymous
- Start date
Sandi,Our daughter cultured Stentrophomonas Maltophilia (Sten Malt) consistently when she was 6 months. Our doctors wanted to back off and manage the bug and said our daughter was likely colonized. My wife and I decided to hit it hard and "go nuclear". We did 25 days of IV Timetin and bactrim. It was horrible! Iv's every six hours. We survived it. Our daughter has not cultured it since the start of IV antibiotics. Sten Malt is not a particularly "damaging bug" but it tends to be hard to erradicate. It is resistant to most antibiotics. Bactrim, CIPRO and Timentin are usually the best antibiotics for Sten Malt.You have reason to be concerned but no reason to panic or get upset. Don P
Hi there I am a 37 yr old female in Scotland with CF. I have cultured Stenotrophomonas Maltophilia for the last 8 years. Unfortunately this bug is kinda resistant to lots of antibiotics, but is treatable. The good news about this bug is that it isn't as detrimental as Psuedomonas Auriginosa and it's not as transferable between patients either.I have loads of allergies to antibiotics so it's frustrating for the doc's as well as myself because the meds the bug is sesitive to I get allergic reactions to. Never mind I always pick up after a 14 day dose of Amikacin and oral Minocyline. They seem to do the trick for me!!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have a very positive attitude to my CF and try not to let it take hold of me. Also I am quite a healthy CF with no stomach probs...i.e. I don't need enzymes!! Lucky me. <img src="i/expressions/face-icon-small-happy.gif" border="0">Good luck to the children that you have with CF but before I go, on a positive note.............I am also a parent of a 16 year old son (no CF thankfully).Good health to all Love Rose Marie
My 5 year old daughter was recently diagnosed with this bug, she first was prescribed levaquin and bactrim, and they did not clear it up at all, in fact it got worse. So her doctor put her on IVs (timetin) for 3 weeks, 8 hours at night and she also continued to take bactrim. She is now off the IVs and we have not had a lung culture yet to see if her infection has cleared up (she will have one this month, at her next visit) She continues to take bactrim 4 times a day. She seems much better, she really is not coughing now at all<img src="i/expressions/face-icon-small-smile.gif" border="0">. From what I was told, this bug is hard to clear up, however it is not as damaging. Since she was diagnosed, we have increased her treatments, she does her vest therapy 3Xs a day, duoneb 3X's a day, pulmicort 2X a day and advair 2X a day. It is a lot to keep up with, but it really seems to help. Her cough is non-existint when we do the therapy everyday without missing any. I really hope that this clears up! It has been the first time she has been on IVs.Take care and good luck!Marissa
Marissa,It all depends on the patient, thanks to the one above I have never been on IV's and I am in my 20's. I usually can't produce a sputum culture without significant effort. More specifically, it depends on the mutations of the cf patient, I have a class 5 and a class 2 mutation.But I still the bug, although the number of the bacteria was so little in the last two tests that they couldn't definitively ID it.Frank
I think this bug presents enough concerns due to it's history of resistance to justify IV's when it is first cultured. We did IV Timetin and even IV Bactrim (You have to prepare it at home or the volume is huge due to stability problems). I think we either erradicated the bug or atleast put a "sleeper hold" on it. We tried oral CIPRO and Bactrim at first. Our daughter never improved.Being aggressive in the beggining is the only way to go. (my humble opinion)"Never bring a knife for a gun fight"Don Patin