Still not putting on weight after 9 months of enzymes

stringbean · Nov 14, 2009

I've been doing everything I can think of to add some weight to my 8-yr-old daughter's way too tiny frame. When she was diagnosed PI in March, she was 39.4 lbs. and had a BMI of 12.8; since starting on creon, her weight has only increased to 40.5 and her BMI has moved a smidgen to 12.9. That leaves her below the bottom 1%. Eek!

Her gastro doctor has been pretty calm about this until our last appointment and he expressed a lot of concern about the upcoming flu season... He's checked food allergies, celiac, colitis and I don't even know what else, but everything comes back normal.

I changed her diet a few weeks ago, limiting white flour and sugar. I don't know that it's done much for her weight, but it's improved her behavior. She stays even keeled all day long, versus the ups and downs she typically experiences. (anything with high fructose corn syrup has her loopy by the second bite!) But here's the weird thing... After three weeks without any sugar, she ate several candy on Halloween and lost 1.5 lbs in 24 hrs. (Lest I sound totally obsessive, she stepped onto the scale Halloween morning and again the next morning to weigh our new kitties) I made her sister step on the scale as a comparison point and she was exactly the same as the day before.

This summer she lost 5% of her body weight in three weeks (taken on the same scale by the same nurse at two different doctor's appts.) Just before the second appt, we were on vacation where she ate a ton of pasta, candy and ice cream. I can think of other times that I've increased chocolate --adding a lot of calories to her diet -- yet her weight always goes down ever so slightly. And it starts inching back up when I take away the candy and granola bars.

I've read about CFRD, but it always mentions adults. Can kids have it? Is it different than standard diabetes?

Any advice on what I should be paying attention to? We have an appointment with gastro on Dec 1st and I'm writing down everything I can think to note so that maybe I can provide the doctor with a clue of why she still so thin.

Thanks in advance for any advice!!!

stringbean · Nov 14, 2009

I've been doing everything I can think of to add some weight to my 8-yr-old daughter's way too tiny frame. When she was diagnosed PI in March, she was 39.4 lbs. and had a BMI of 12.8; since starting on creon, her weight has only increased to 40.5 and her BMI has moved a smidgen to 12.9. That leaves her below the bottom 1%. Eek!

Her gastro doctor has been pretty calm about this until our last appointment and he expressed a lot of concern about the upcoming flu season... He's checked food allergies, celiac, colitis and I don't even know what else, but everything comes back normal.

I changed her diet a few weeks ago, limiting white flour and sugar. I don't know that it's done much for her weight, but it's improved her behavior. She stays even keeled all day long, versus the ups and downs she typically experiences. (anything with high fructose corn syrup has her loopy by the second bite!) But here's the weird thing... After three weeks without any sugar, she ate several candy on Halloween and lost 1.5 lbs in 24 hrs. (Lest I sound totally obsessive, she stepped onto the scale Halloween morning and again the next morning to weigh our new kitties) I made her sister step on the scale as a comparison point and she was exactly the same as the day before.

This summer she lost 5% of her body weight in three weeks (taken on the same scale by the same nurse at two different doctor's appts.) Just before the second appt, we were on vacation where she ate a ton of pasta, candy and ice cream. I can think of other times that I've increased chocolate --adding a lot of calories to her diet -- yet her weight always goes down ever so slightly. And it starts inching back up when I take away the candy and granola bars.

I've read about CFRD, but it always mentions adults. Can kids have it? Is it different than standard diabetes?

Any advice on what I should be paying attention to? We have an appointment with gastro on Dec 1st and I'm writing down everything I can think to note so that maybe I can provide the doctor with a clue of why she still so thin.

Thanks in advance for any advice!!!

stringbean · Nov 14, 2009

I've been doing everything I can think of to add some weight to my 8-yr-old daughter's way too tiny frame. When she was diagnosed PI in March, she was 39.4 lbs. and had a BMI of 12.8; since starting on creon, her weight has only increased to 40.5 and her BMI has moved a smidgen to 12.9. That leaves her below the bottom 1%. Eek!

Her gastro doctor has been pretty calm about this until our last appointment and he expressed a lot of concern about the upcoming flu season... He's checked food allergies, celiac, colitis and I don't even know what else, but everything comes back normal.

I changed her diet a few weeks ago, limiting white flour and sugar. I don't know that it's done much for her weight, but it's improved her behavior. She stays even keeled all day long, versus the ups and downs she typically experiences. (anything with high fructose corn syrup has her loopy by the second bite!) But here's the weird thing... After three weeks without any sugar, she ate several candy on Halloween and lost 1.5 lbs in 24 hrs. (Lest I sound totally obsessive, she stepped onto the scale Halloween morning and again the next morning to weigh our new kitties) I made her sister step on the scale as a comparison point and she was exactly the same as the day before.

This summer she lost 5% of her body weight in three weeks (taken on the same scale by the same nurse at two different doctor's appts.) Just before the second appt, we were on vacation where she ate a ton of pasta, candy and ice cream. I can think of other times that I've increased chocolate --adding a lot of calories to her diet -- yet her weight always goes down ever so slightly. And it starts inching back up when I take away the candy and granola bars.

I've read about CFRD, but it always mentions adults. Can kids have it? Is it different than standard diabetes?

Any advice on what I should be paying attention to? We have an appointment with gastro on Dec 1st and I'm writing down everything I can think to note so that maybe I can provide the doctor with a clue of why she still so thin.

Thanks in advance for any advice!!!

stringbean · Nov 14, 2009

I've been doing everything I can think of to add some weight to my 8-yr-old daughter's way too tiny frame. When she was diagnosed PI in March, she was 39.4 lbs. and had a BMI of 12.8; since starting on creon, her weight has only increased to 40.5 and her BMI has moved a smidgen to 12.9. That leaves her below the bottom 1%. Eek!

Her gastro doctor has been pretty calm about this until our last appointment and he expressed a lot of concern about the upcoming flu season... He's checked food allergies, celiac, colitis and I don't even know what else, but everything comes back normal.

I changed her diet a few weeks ago, limiting white flour and sugar. I don't know that it's done much for her weight, but it's improved her behavior. She stays even keeled all day long, versus the ups and downs she typically experiences. (anything with high fructose corn syrup has her loopy by the second bite!) But here's the weird thing... After three weeks without any sugar, she ate several candy on Halloween and lost 1.5 lbs in 24 hrs. (Lest I sound totally obsessive, she stepped onto the scale Halloween morning and again the next morning to weigh our new kitties) I made her sister step on the scale as a comparison point and she was exactly the same as the day before.

This summer she lost 5% of her body weight in three weeks (taken on the same scale by the same nurse at two different doctor's appts.) Just before the second appt, we were on vacation where she ate a ton of pasta, candy and ice cream. I can think of other times that I've increased chocolate --adding a lot of calories to her diet -- yet her weight always goes down ever so slightly. And it starts inching back up when I take away the candy and granola bars.

I've read about CFRD, but it always mentions adults. Can kids have it? Is it different than standard diabetes?

Any advice on what I should be paying attention to? We have an appointment with gastro on Dec 1st and I'm writing down everything I can think to note so that maybe I can provide the doctor with a clue of why she still so thin.

Thanks in advance for any advice!!!

stringbean · Nov 14, 2009

I've been doing everything I can think of to add some weight to my 8-yr-old daughter's way too tiny frame. When she was diagnosed PI in March, she was 39.4 lbs. and had a BMI of 12.8; since starting on creon, her weight has only increased to 40.5 and her BMI has moved a smidgen to 12.9. That leaves her below the bottom 1%. Eek!
 
 Her gastro doctor has been pretty calm about this until our last appointment and he expressed a lot of concern about the upcoming flu season... He's checked food allergies, celiac, colitis and I don't even know what else, but everything comes back normal.
 
 I changed her diet a few weeks ago, limiting white flour and sugar. I don't know that it's done much for her weight, but it's improved her behavior. She stays even keeled all day long, versus the ups and downs she typically experiences. (anything with high fructose corn syrup has her loopy by the second bite!) But here's the weird thing... After three weeks without any sugar, she ate several candy on Halloween and lost 1.5 lbs in 24 hrs. (Lest I sound totally obsessive, she stepped onto the scale Halloween morning and again the next morning to weigh our new kitties) I made her sister step on the scale as a comparison point and she was exactly the same as the day before.
 
 This summer she lost 5% of her body weight in three weeks (taken on the same scale by the same nurse at two different doctor's appts.) Just before the second appt, we were on vacation where she ate a ton of pasta, candy and ice cream. I can think of other times that I've increased chocolate --adding a lot of calories to her diet -- yet her weight always goes down ever so slightly. And it starts inching back up when I take away the candy and granola bars.
 
 I've read about CFRD, but it always mentions adults. Can kids have it? Is it different than standard diabetes?
 
 Any advice on what I should be paying attention to? We have an appointment with gastro on Dec 1st and I'm writing down everything I can think to note so that maybe I can provide the doctor with a clue of why she still so thin.
 
 Thanks in advance for any advice!!!

MMBinNC · Nov 14, 2009

Its possible that CFRD could be a factor. CFRD has some features of both types of diabetes. People with CF do not make enough insulin. This is a result of scarring in the pancreas. Common symptoms are increased thirst and increased urination, are caused by high blood sugar levels (hyperglycemia). Other symptoms of CFRD are excessive fatigue, weight loss and unexplained decline in lung function. It is also possible that it is simply that the enzymes are doing their job but the intake is still not enough. I know that I have been PI forever and my BMI is still underweight and we finally decided to go the G-Tube route (I'd tell you my experience but I don't have the surgery until December). DTD weights vary so the 1.5 pounds I doubt is a huge issue. But if you're worried you should ask your doctor to do a test for CFRD. If she doesn't have CFRD and you can't increase her intake any more/she continues to lose weight stay stagnant (I haven't gained weight in like 1Y+) maybe you should ask about supplemental tube feedings. I know lots of people who had the surgery when they were younger (less than 8) and from what I've heard on the board (from research into my own decision) the supplemental feedings make life a lot easier and you can stop worrying about it so much. Hope everything goes alright.

MMBinNC · Nov 14, 2009

Its possible that CFRD could be a factor. CFRD has some features of both types of diabetes. People with CF do not make enough insulin. This is a result of scarring in the pancreas. Common symptoms are increased thirst and increased urination, are caused by high blood sugar levels (hyperglycemia). Other symptoms of CFRD are excessive fatigue, weight loss and unexplained decline in lung function. It is also possible that it is simply that the enzymes are doing their job but the intake is still not enough. I know that I have been PI forever and my BMI is still underweight and we finally decided to go the G-Tube route (I'd tell you my experience but I don't have the surgery until December). DTD weights vary so the 1.5 pounds I doubt is a huge issue. But if you're worried you should ask your doctor to do a test for CFRD. If she doesn't have CFRD and you can't increase her intake any more/she continues to lose weight stay stagnant (I haven't gained weight in like 1Y+) maybe you should ask about supplemental tube feedings. I know lots of people who had the surgery when they were younger (less than 8) and from what I've heard on the board (from research into my own decision) the supplemental feedings make life a lot easier and you can stop worrying about it so much. Hope everything goes alright.

MMBinNC · Nov 14, 2009

Its possible that CFRD could be a factor. CFRD has some features of both types of diabetes. People with CF do not make enough insulin. This is a result of scarring in the pancreas. Common symptoms are increased thirst and increased urination, are caused by high blood sugar levels (hyperglycemia). Other symptoms of CFRD are excessive fatigue, weight loss and unexplained decline in lung function. It is also possible that it is simply that the enzymes are doing their job but the intake is still not enough. I know that I have been PI forever and my BMI is still underweight and we finally decided to go the G-Tube route (I'd tell you my experience but I don't have the surgery until December). DTD weights vary so the 1.5 pounds I doubt is a huge issue. But if you're worried you should ask your doctor to do a test for CFRD. If she doesn't have CFRD and you can't increase her intake any more/she continues to lose weight stay stagnant (I haven't gained weight in like 1Y+) maybe you should ask about supplemental tube feedings. I know lots of people who had the surgery when they were younger (less than 8) and from what I've heard on the board (from research into my own decision) the supplemental feedings make life a lot easier and you can stop worrying about it so much. Hope everything goes alright.

MMBinNC · Nov 14, 2009

Its possible that CFRD could be a factor. CFRD has some features of both types of diabetes. People with CF do not make enough insulin. This is a result of scarring in the pancreas. Common symptoms are increased thirst and increased urination, are caused by high blood sugar levels (hyperglycemia). Other symptoms of CFRD are excessive fatigue, weight loss and unexplained decline in lung function. It is also possible that it is simply that the enzymes are doing their job but the intake is still not enough. I know that I have been PI forever and my BMI is still underweight and we finally decided to go the G-Tube route (I'd tell you my experience but I don't have the surgery until December). DTD weights vary so the 1.5 pounds I doubt is a huge issue. But if you're worried you should ask your doctor to do a test for CFRD. If she doesn't have CFRD and you can't increase her intake any more/she continues to lose weight stay stagnant (I haven't gained weight in like 1Y+) maybe you should ask about supplemental tube feedings. I know lots of people who had the surgery when they were younger (less than 8) and from what I've heard on the board (from research into my own decision) the supplemental feedings make life a lot easier and you can stop worrying about it so much. Hope everything goes alright.

MMBinNC · Nov 14, 2009

Its possible that CFRD could be a factor. CFRD has some features of both types of diabetes. People with CF do not make enough insulin. This is a result of scarring in the pancreas. Common symptoms are increased thirst and increased urination, are caused by high blood sugar levels (hyperglycemia). Other symptoms of CFRD are excessive fatigue, weight loss and unexplained decline in lung function. It is also possible that it is simply that the enzymes are doing their job but the intake is still not enough. I know that I have been PI forever and my BMI is still underweight and we finally decided to go the G-Tube route (I'd tell you my experience but I don't have the surgery until December). DTD weights vary so the 1.5 pounds I doubt is a huge issue. But if you're worried you should ask your doctor to do a test for CFRD. If she doesn't have CFRD and you can't increase her intake any more/she continues to lose weight stay stagnant (I haven't gained weight in like 1Y+) maybe you should ask about supplemental tube feedings. I know lots of people who had the surgery when they were younger (less than 8) and from what I've heard on the board (from research into my own decision) the supplemental feedings make life a lot easier and you can stop worrying about it so much. Hope everything goes alright.

hmw · Nov 14, 2009

Right off the top of my head, I'd say that anything that brings about positive changes for your daughter, I would pursue. If she does better without sugary stuff and white flour- by all means, do that. When she does have carbs, whole grains will take longer to digest, provide more nutritional value and are better for blood sugar levels (i.e. oatmeal for breakfast (the real kind, not the sugary instant junk) vs. white toast, etc. Real fruit instead of canned, sweetened, processed products, etc. Talking to a good nutritionist about this might help some more... but I can't remember if you have access to one or not.

Another thing that comes to mind is the question: how healthy has she been? Her gi dr. might not think about her pulmonary health too much, but has she had a lot of colds or other viruses since she's been put on enzymes? Emily can gain weight beautifully on enzymes, but here we are a year later and she's hardly moved on the chart, despite having gained some weight: because every time she gets sick, she loses anywhere from 5-10% of her body weight and there goes months of progress in the weight gain dept. Anytime they are sick they are burning a lot of calories just to support their respiratory system even if they are still eating.

And I agree with you that just a pound or two loss generally is not a big deal for an adult but CAN be a big deal for a child. For a child of 40lbs, losing 2lbs is 5% of their body weight. Showing up at clinic with a 2lb weight loss doesn't go over well w/ Emily.

Kids can get cfrd. It's not nearly as common as it is in adults, but it is possible. You can ask about having a fasting glucose tolerance test done (the same test that we had done while we were pregnant, if you were ever unfortunate enough to need the 2 hour version with multiple blood draws) which will give a lot more information about how she is doing there. There are others that know a lot more about cfrd that can tell you more.

I'm so sorry that you are going through this with your dd and not making any headway with the weight issues after so long. I hope the diet changes can help and that the gi dr has some ideas when you see him next month.

hmw · Nov 14, 2009

Right off the top of my head, I'd say that anything that brings about positive changes for your daughter, I would pursue. If she does better without sugary stuff and white flour- by all means, do that. When she does have carbs, whole grains will take longer to digest, provide more nutritional value and are better for blood sugar levels (i.e. oatmeal for breakfast (the real kind, not the sugary instant junk) vs. white toast, etc. Real fruit instead of canned, sweetened, processed products, etc. Talking to a good nutritionist about this might help some more... but I can't remember if you have access to one or not.

Another thing that comes to mind is the question: how healthy has she been? Her gi dr. might not think about her pulmonary health too much, but has she had a lot of colds or other viruses since she's been put on enzymes? Emily can gain weight beautifully on enzymes, but here we are a year later and she's hardly moved on the chart, despite having gained some weight: because every time she gets sick, she loses anywhere from 5-10% of her body weight and there goes months of progress in the weight gain dept. Anytime they are sick they are burning a lot of calories just to support their respiratory system even if they are still eating.

And I agree with you that just a pound or two loss generally is not a big deal for an adult but CAN be a big deal for a child. For a child of 40lbs, losing 2lbs is 5% of their body weight. Showing up at clinic with a 2lb weight loss doesn't go over well w/ Emily.

Kids can get cfrd. It's not nearly as common as it is in adults, but it is possible. You can ask about having a fasting glucose tolerance test done (the same test that we had done while we were pregnant, if you were ever unfortunate enough to need the 2 hour version with multiple blood draws) which will give a lot more information about how she is doing there. There are others that know a lot more about cfrd that can tell you more.

I'm so sorry that you are going through this with your dd and not making any headway with the weight issues after so long. I hope the diet changes can help and that the gi dr has some ideas when you see him next month.

hmw · Nov 14, 2009

Right off the top of my head, I'd say that anything that brings about positive changes for your daughter, I would pursue. If she does better without sugary stuff and white flour- by all means, do that. When she does have carbs, whole grains will take longer to digest, provide more nutritional value and are better for blood sugar levels (i.e. oatmeal for breakfast (the real kind, not the sugary instant junk) vs. white toast, etc. Real fruit instead of canned, sweetened, processed products, etc. Talking to a good nutritionist about this might help some more... but I can't remember if you have access to one or not.

Another thing that comes to mind is the question: how healthy has she been? Her gi dr. might not think about her pulmonary health too much, but has she had a lot of colds or other viruses since she's been put on enzymes? Emily can gain weight beautifully on enzymes, but here we are a year later and she's hardly moved on the chart, despite having gained some weight: because every time she gets sick, she loses anywhere from 5-10% of her body weight and there goes months of progress in the weight gain dept. Anytime they are sick they are burning a lot of calories just to support their respiratory system even if they are still eating.

And I agree with you that just a pound or two loss generally is not a big deal for an adult but CAN be a big deal for a child. For a child of 40lbs, losing 2lbs is 5% of their body weight. Showing up at clinic with a 2lb weight loss doesn't go over well w/ Emily.

Kids can get cfrd. It's not nearly as common as it is in adults, but it is possible. You can ask about having a fasting glucose tolerance test done (the same test that we had done while we were pregnant, if you were ever unfortunate enough to need the 2 hour version with multiple blood draws) which will give a lot more information about how she is doing there. There are others that know a lot more about cfrd that can tell you more.

I'm so sorry that you are going through this with your dd and not making any headway with the weight issues after so long. I hope the diet changes can help and that the gi dr has some ideas when you see him next month.

hmw · Nov 14, 2009

Right off the top of my head, I'd say that anything that brings about positive changes for your daughter, I would pursue. If she does better without sugary stuff and white flour- by all means, do that. When she does have carbs, whole grains will take longer to digest, provide more nutritional value and are better for blood sugar levels (i.e. oatmeal for breakfast (the real kind, not the sugary instant junk) vs. white toast, etc. Real fruit instead of canned, sweetened, processed products, etc. Talking to a good nutritionist about this might help some more... but I can't remember if you have access to one or not.

Another thing that comes to mind is the question: how healthy has she been? Her gi dr. might not think about her pulmonary health too much, but has she had a lot of colds or other viruses since she's been put on enzymes? Emily can gain weight beautifully on enzymes, but here we are a year later and she's hardly moved on the chart, despite having gained some weight: because every time she gets sick, she loses anywhere from 5-10% of her body weight and there goes months of progress in the weight gain dept. Anytime they are sick they are burning a lot of calories just to support their respiratory system even if they are still eating.

And I agree with you that just a pound or two loss generally is not a big deal for an adult but CAN be a big deal for a child. For a child of 40lbs, losing 2lbs is 5% of their body weight. Showing up at clinic with a 2lb weight loss doesn't go over well w/ Emily.

Kids can get cfrd. It's not nearly as common as it is in adults, but it is possible. You can ask about having a fasting glucose tolerance test done (the same test that we had done while we were pregnant, if you were ever unfortunate enough to need the 2 hour version with multiple blood draws) which will give a lot more information about how she is doing there. There are others that know a lot more about cfrd that can tell you more.

I'm so sorry that you are going through this with your dd and not making any headway with the weight issues after so long. I hope the diet changes can help and that the gi dr has some ideas when you see him next month.

hmw · Nov 14, 2009

Right off the top of my head, I'd say that anything that brings about positive changes for your daughter, I would pursue. If she does better without sugary stuff and white flour- by all means, do that. When she does have carbs, whole grains will take longer to digest, provide more nutritional value and are better for blood sugar levels (i.e. oatmeal for breakfast (the real kind, not the sugary instant junk) vs. white toast, etc. Real fruit instead of canned, sweetened, processed products, etc. Talking to a good nutritionist about this might help some more... but I can't remember if you have access to one or not.
 
 Another thing that comes to mind is the question: how healthy has she been? Her gi dr. might not think about her pulmonary health too much, but has she had a lot of colds or other viruses since she's been put on enzymes? Emily can gain weight beautifully on enzymes, but here we are a year later and she's hardly moved on the chart, despite having gained some weight: because every time she gets sick, she loses anywhere from 5-10% of her body weight and there goes months of progress in the weight gain dept. Anytime they are sick they are burning a lot of calories just to support their respiratory system even if they are still eating.
 
 And I agree with you that just a pound or two loss generally is not a big deal for an adult but CAN be a big deal for a child. For a child of 40lbs, losing 2lbs is 5% of their body weight. Showing up at clinic with a 2lb weight loss doesn't go over well w/ Emily.
 
 Kids can get cfrd. It's not nearly as common as it is in adults, but it is possible. You can ask about having a fasting glucose tolerance test done (the same test that we had done while we were pregnant, if you were ever unfortunate enough to need the 2 hour version with multiple blood draws) which will give a lot more information about how she is doing there. There are others that know a lot more about cfrd that can tell you more.
 
 I'm so sorry that you are going through this with your dd and not making any headway with the weight issues after so long. I hope the diet changes can help and that the gi dr has some ideas when you see him next month.

dasjsmum · Nov 14, 2009

Have you tried uping her calories? Add extra milk powder/supplements/ice cream to milk shakes, give her an abundance of high fat foods...chips, mcDonalds...anything that works for her. Increase enzymes accordingly.

If she doesnt gain weight soon they will look to a GI tube to feed her supplements over night.

It may just be her normal body mass also, but since we have the cf thing weight is always a problem (if she didnt have cf you probably wouldnt be as worried about her low weight).

As far as diabetes goes, yes,children can have cfrd. My son developed type 1 (not the same as cfrd) a year ago.

The symptoms are (already stated)....drinking a lot of water, going to the toilet to wee a lot, losing a lot of weight quickly (this is due to circulating high blood sugars that the body cannot assimilate).

You could probably take her to a chemist and have a finger prick test done (just to alleviate concerns etc)...I dont know if your chemists do that (or drug store I think you call them), but they do here.

dasjsmum · Nov 14, 2009

Have you tried uping her calories? Add extra milk powder/supplements/ice cream to milk shakes, give her an abundance of high fat foods...chips, mcDonalds...anything that works for her. Increase enzymes accordingly.

If she doesnt gain weight soon they will look to a GI tube to feed her supplements over night.

It may just be her normal body mass also, but since we have the cf thing weight is always a problem (if she didnt have cf you probably wouldnt be as worried about her low weight).

As far as diabetes goes, yes,children can have cfrd. My son developed type 1 (not the same as cfrd) a year ago.

The symptoms are (already stated)....drinking a lot of water, going to the toilet to wee a lot, losing a lot of weight quickly (this is due to circulating high blood sugars that the body cannot assimilate).

You could probably take her to a chemist and have a finger prick test done (just to alleviate concerns etc)...I dont know if your chemists do that (or drug store I think you call them), but they do here.

dasjsmum · Nov 14, 2009

Have you tried uping her calories? Add extra milk powder/supplements/ice cream to milk shakes, give her an abundance of high fat foods...chips, mcDonalds...anything that works for her. Increase enzymes accordingly.

If she doesnt gain weight soon they will look to a GI tube to feed her supplements over night.

It may just be her normal body mass also, but since we have the cf thing weight is always a problem (if she didnt have cf you probably wouldnt be as worried about her low weight).

As far as diabetes goes, yes,children can have cfrd. My son developed type 1 (not the same as cfrd) a year ago.

The symptoms are (already stated)....drinking a lot of water, going to the toilet to wee a lot, losing a lot of weight quickly (this is due to circulating high blood sugars that the body cannot assimilate).

You could probably take her to a chemist and have a finger prick test done (just to alleviate concerns etc)...I dont know if your chemists do that (or drug store I think you call them), but they do here.

dasjsmum · Nov 14, 2009

Have you tried uping her calories? Add extra milk powder/supplements/ice cream to milk shakes, give her an abundance of high fat foods...chips, mcDonalds...anything that works for her. Increase enzymes accordingly.

If she doesnt gain weight soon they will look to a GI tube to feed her supplements over night.

It may just be her normal body mass also, but since we have the cf thing weight is always a problem (if she didnt have cf you probably wouldnt be as worried about her low weight).

As far as diabetes goes, yes,children can have cfrd. My son developed type 1 (not the same as cfrd) a year ago.

The symptoms are (already stated)....drinking a lot of water, going to the toilet to wee a lot, losing a lot of weight quickly (this is due to circulating high blood sugars that the body cannot assimilate).

You could probably take her to a chemist and have a finger prick test done (just to alleviate concerns etc)...I dont know if your chemists do that (or drug store I think you call them), but they do here.

dasjsmum · Nov 14, 2009

Have you tried uping her calories? Add extra milk powder/supplements/ice cream to milk shakes, give her an abundance of high fat foods...chips, mcDonalds...anything that works for her. Increase enzymes accordingly.
 
 If she doesnt gain weight soon they will look to a GI tube to feed her supplements over night.
 
 It may just be her normal body mass also, but since we have the cf thing weight is always a problem (if she didnt have cf you probably wouldnt be as worried about her low weight).
 
 As far as diabetes goes, yes,children can have cfrd. My son developed type 1 (not the same as cfrd) a year ago.
 
 The symptoms are (already stated)....drinking a lot of water, going to the toilet to wee a lot, losing a lot of weight quickly (this is due to circulating high blood sugars that the body cannot assimilate).
 
 You could probably take her to a chemist and have a finger prick test done (just to alleviate concerns etc)...I dont know if your chemists do that (or drug store I think you call them), but they do here.

Still not putting on weight after 9 months of enzymes

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