stool question

[clintnicole]

My son is being tested but not b.c he has alot of stools but b/c he hardly ever has clear lungs and is tiny. Can you have cf and not have all the digestive problems . His stools are nasty and they do go from very soft to hard but he doesnt usually go more than 2 or 3 times. Does that mean we are in the clear or does it mean that if he has cf it is more resprartory than digestive'
Thanks
Nichole Ellis<img src="i/expressions/face-icon-small-confused.gif" border="0">

 

[JoAnn]

Hi Nichole - You can have CF and not have digestive problems. Each person with cf is different as to the extent of the involvement with their lungs, weight and digestion. It makes sense to have him tested. Is he having a sweat test? It is best for him to be tested at a CF center. Best Wishes.

 

[NoDayButToday]

JoAnn is right, some people with CF have more lung problems than digestive, some have more digestive than lung, and some have them both equally. The fact he is tiny may indicate some digestive problems, or it just may be a result of the fact his little body is working hard to work his lungs. If he does, in fact, have CF (*fingers crossed he doesn't*), they will probably do a fecal fat test to determine whether or not he is pancreatic sufficient or not. Good luck <img src="i/expressions/heart.gif" border="0">

 

[clintnicole]

They have run a genetic test on him first .. I am not sure if a sweat test would be accurate b/c where he does have very potent and strong sweat he doesnt always have that tinge, I mean it isnt always salty tasting. Does he have too???? THe doctors are almost 100% sure that this is what it is and I have already prepared myself and this website has given me the courage to face it. My son is almost 2 and for the last 7 months he has stayed between 20 and 21 lbs. He has been on a home nebuizer with steroid and albuteral since Dec. He has only had clear lungs once in the last 9 times the doctor has seen him and if this isnt what it is then we are back at the drawing board. Dont get me wrong I would give anything for him not to have this diesease. He already has cerebral palsy but he is a strong boy and we just want to know what is inflicting him. I will be requiring a full genetic scan and sweat test if this intial test is negative. Do you know of any clinic near Valdosta Ga.
Thanks so much . You are all so strong and brave. May God Bless You All
Nichole Ellis

 

[NoDayButToday]

I think since they stimulate the child to sweat during a sweat test, it won't matter if he isn't always particularly salty at home.
I'm not sure about clinics near Valdosta, but you can check out cff.org; they have a list of all centers in the country. Good luck!

 

[clintnicole]

Thank YOu so much. We are very scared. We just cant find any other answe. He always always is sick and we just want to take care of him.<img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[anonymous]

This may sound odd, but does he tast salty? If so, this may be a sign of CF...this is how I, yes I, diagnosed my child...it is a sign of CF. Hope he doesn't have it, but if he does, please continue with this site as many of us can help you. <img src="i/expressions/rose.gif" border="0"><img src="i/expressions/heart.gif" border="0">

 

[anonymous]

My daughter never tasted salty and has had 2 positive sweat tests at 10 yrs old. Cannot find the mutations, only 1 and it is really rare, stilll searching for 2nd mutation.