Student Author Researching CF treatment in under-funded locations

Hello everyone,

Great community you have here; I've joined recently and am working through threads and posts little by little.

I am in my senior year of Bachelor studies in an English/Creative Writing Major. Part of the requirements for this program is to complete a portion of a manuscript, and my story includes a young adult (Native American) character who is battling Cystic Fibrosis.

WHile I have and will continue to conduct "formal research" to ensure I do dilligence to the disorder, I am hoping to gain some personal insights and experiences from those who are battling it first hand. I am especially (although not exclusively) interested in uncovering the treatment opportunities to Native Americans who receive health care via IHS clinics, and/or minorities who rely on clinics and under-funded hospitals.

I also hope to uncover some personal stories of courage and some words of wisdom or "rallying cries" that some of you like to go with when you are having a rough go of it.

Thanks to you all in advance! Warmest Regards,

Travis Raymond

https://travisraymondwriting.wordpress.com/
 

sabrina77

New member
Hi travis-- I am a quarter Tlingit Indian from Alaska. I also have cystic fibrosis and I am a cancer survivor. I go to the Alaska native medical center which is IHS. IHS allows me two yearly visits to a cystic fibrosis clinic and my IHS primary care provider acts a middle man with the cf clinic in regards to my cf. for any other medical reason like cancer, vaccines, and other non related cf issues I go to Alaska native medical center. If you have any questions please message me. Your paper sounds interesting.
 
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