stuggling with cpt

dyza

New member
I am really struggling to do my sons cpt, in the last weak I have noticed that I give up to easily as he is struggling and screaming and getting all hot and bothered. I also have ulna nerve damage in my left arm that dosent help things I either cant hold him down as he struggles or my left hand really tires if i use my left hand. I got really mad at him this morning and lost it, the physio lasted all of 4 mins.I'll try again later. When I say I lost it I mean I ended up in tears and shouting at him, didn't help me ,and it didn't help him
 

eli

New member
Hi Craig,

First of all your not alone. This has happened to me numerouse times and still keeps happening. Maybe you were both having a bad day, which will happen often.
I also have probs with my wrists and struggle alot with dd's pysio.

All i can suggest is try putting him i a diff position, make sure he is comfortable in that position(otherwise he won't co-operate), put on his fav dvd, and take it from there.

If all else fails, then leave it alone and try again later(when he/you are more settled).

Hope this helps, i'm sure you will get some other great tips from others.

Good luck!
Eli
 

damiensmom

New member
I can give my almost 9 month old cpt during naps and he rarely wakes up. when on hes tummy i put toys in front and he loves the mirror. When he is on hes back and im doing hes front that little angel can grab it and smile. I started lying hes head in my lap and then he couldnt see the stick. I have a trecia mask and one of those flat sticks ahh ahh stick your tongue out they use it to hold the tongue down taped to the top. So much easier for me. One of the respitory theripist used it at the hospital and I asked for it.
 

Abby

New member
Hi Craig,

The never ending struggle of cpt on infants gets to the best of us. We started making up songs to sing while doing cpt (which we call thump thumps). One of them is the Frosty the Snowman song, Thumpity, thump, thump, thumpity thump thump look at Frosty go. We just sing the same verse over and over again, but I switch up the names, instead of Frosty, I'll sing Abby, or mommy or daddy or anything to keep her guessing as to what the next name will be or she will start singing with us. She is almost 4 now so can easily sing along, but it did keep her occupied when she was younger. Now we also sing our numbers in spanish which she loves to do. It does get old for us, but if she lays still, then I'll do it.

It does get easier as they get older and realize that it has to be done. When Abby asks why we need to do it, I tell her to it's so she doesn't have to go back to the hospital. That's always a good enough answer for her.

Good luck
 

anonymous

New member
When my son was that age he had already decided he would not stay put long enough for the recommended routine. We incorporated CPT into playtime to sort of hide the fact that we were doing it. I would roll around with him on the bed or floor playing "airplane" or whatever - it had the added benefit of getting him breathing hard. He's 3 now and currently hates manual CPT but is tolerant of using the vest (which he only just started 4 or 5 months ago). We sort of had to pick our battles because of all the nebulizer time and normal toddler battles about food and naps, etc. and manual CPT is what lost out. I kinda figure the vest is doing fine now and when he's older we can reintroduce manual CPT so he can have the choice.
 

dyza

New member
we had the timings down to a fine art, to coincide with his naps. I guess he , and us,are out of step just now. Last couple of weaks he has had really bad diarhear and he is just getting round to his usual self. the singing helps, its amazing the nonsense that comes out when you are trying to calm them LOL
thanks all for your insights.... Craig
 

anonymous

New member
Does he like any movies or shows yet. I believe we watched Barney and Elmo. Most of the time my husband and I do CPT together. One of us holds the mask, while the other beats him <img src="i/expressions/face-icon-small-smile.gif" border="0"> Sometimes it was a struggle -- and still is if there's something more important going on, such as going to the park to play. I used to sing the Halleluia Chorus at the top of my lungs, but replace Halleluia with my son's name - sing in a falseto, then really deep low voice. Sing old mcdonald -- again replace donald with my son's name. I did cry at times. This to shall pass and then it'll happen again. And then it'll get better. Good luck. I feel your pain. Liza aka ratatosk mom to an almost 3 year old.
 

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dyza</b></i>

I am really struggling to do my sons cpt, in the last weak I have noticed that I give up to easily as he is struggling and screaming and getting all hot and bothered. I also have ulna nerve damage in my left arm that dosent help things I either cant hold him down as he struggles or my left hand really tires if i use my left hand. I got really mad at him this morning and lost it, the physio lasted all of 4 mins.I'll try again later. When I say I lost it I mean I ended up in tears and shouting at him, didn't help me ,and it didn't help him</end quote></div>

Hi Craig, don't worry (says she!). Our daughter is 2 1/2, we do her physio twice a day, before her nebuliser treatment. We tend to go through good weeks and bad weeks, at the moment it is quite good (says she again!). Don't be 2 hard on yourself, I'm just glad that someone else gets mad at their kids. Just goes to show how much you love him! Gotta be cruel to be kind and all that. We also make sure that our daughter is very active throughout the day. We don't even have to encourage her - she is sooo active - never sits still - thank goodness!

Don't be 2 hard on yourself and just take each day at a day. Glad 2 talk any time.

Take it easy!

Charlotte<img src="i/expressions/face-icon-small-wink.gif" border="0">
 

anonymous

New member
PS we also do a lot of bouncing - just sit her on our knee and bounce up and down, etc, etc! She loves it. Just try 2 make it as much fun as you can and you'll both be fine. Trust me, I've been here so many times. You're just having a bad day.

Charlotte<img src="i/expressions/face-icon-small-wink.gif" border="0">
 

momtoCory

New member
Oh, I had been down this road many, many times with my son (now 20). Video's worked for awhile. Often we incoorperated many different things.
The one that worked the best was the balance balls (the ones that are now part of the big exercise craze). At the time we ordered ours from a physical therapist. They like laying on the ball, bouncing on the ball and it gives the added benefit of adding vibrations. We have also a mini trampoline. We used it after the treatment. It worked as reward. _____minutes of CPT equal _____minutes of jumping on the trampoline. We would also have tickling sessions after each area. He would anticipate waiting for the tickling that he would usually wait through the next area. It ended up being good family time especially when I would bounce of the ball with him or jump on the trampoline with him. It was a struggle for many years but those are the things that worked the best for us. He is now 20 and CPT is his prefered method of therapy.

Michelle
 
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