juliesdreamteam
New member
On December 19th, my Julie was successfully transplanted at the University of Kentucky. I can't tell you the happiness in my heart for her. I wanted to share a couple of things with you all:<br>1) In our CF community, we MUST change our mindset in so far as when we seek transplant options. For 40 years, Julie did as doctors ordered. Through no fault of her own, she arrived at UK in dire need of a transplant. Her score was 81. We, as a CF community, have to find a way to get to the transplant docs early enough. Those that have been transplanted will tell you that walking is critical to success. It's easier to walk 6 months to a year prior to end stage CF and having to prove your willingness/desire for transplant during the end is an unnecessary, avoidable task. If I can offer any advise, I would say: Don't wait until you are too sick to be transplanted. Organs aren't in a warehouse somewhere and you deserve to be transplanted when you are "healthy" versus wondering if you can make it another day, hoping for lungs.<br>2) We should ALL be organ donors. We don't know the family that donated their loved one's lungs but we know that the ICU was packed with 4 families that received the gift of a second chance with lungs, heart, kidneys and a liver. I have the benefit of knowing that our donor's gift to Julie will help us continue our pursuit of a cure for Cystic Fibrosis for 70,000. My hope is that I'm able to tell the donor family that they didn't just save the lives of 4 people, their loved one will potentially help save the lives of all of those with CF.<br>I'm done rambling now. Gotta spend some time with my wife. Julie Ice, my hero.<br>God Bless You All and Merry Christmas.<br>Roy E. Icewww.juliesdreamteam.comCURECF!!!