Summer camp and CF

L

LisaGreene

New member
Hi All,
I am getting paperwork ready for my kids to attend a couple of camps and wanted to let you know about some forms that I use that are helpful for educating camp counselors about CF.

Go to my website at www.TipsForCFParents.com and click on "Tips for Summer Camps".

Link: <a target=_blank class=ftalternatingbarlinklarge href="http://www.happyheartfamilies.com/TipsForCFParents.html
">http://www.happyheartfamilies....TipsForCFParents.html
</a>
I'd like to add your ideas, too, so please share any helpful hints you might have for getting ready for camp as well as ways to stay healthy at camp.

Thanks and have a GREAT summer!
Hugs,
Lisa
 
L

LisaGreene

New member
Hi All,
I am getting paperwork ready for my kids to attend a couple of camps and wanted to let you know about some forms that I use that are helpful for educating camp counselors about CF.

Go to my website at www.TipsForCFParents.com and click on "Tips for Summer Camps".

Link: <a target=_blank class=ftalternatingbarlinklarge href="http://www.happyheartfamilies.com/TipsForCFParents.html
">http://www.happyheartfamilies....TipsForCFParents.html
</a>
I'd like to add your ideas, too, so please share any helpful hints you might have for getting ready for camp as well as ways to stay healthy at camp.

Thanks and have a GREAT summer!
Hugs,
Lisa
 
L

LisaGreene

New member
Hi All,
<br />I am getting paperwork ready for my kids to attend a couple of camps and wanted to let you know about some forms that I use that are helpful for educating camp counselors about CF.
<br />
<br />Go to my website at www.TipsForCFParents.com and click on "Tips for Summer Camps".
<br />
<br />Link: <a target=_blank class=ftalternatingbarlinklarge href="http://www.happyheartfamilies.com/TipsForCFParents.html
">http://www.happyheartfamilies....TipsForCFParents.html
</a><br />
<br />I'd like to add your ideas, too, so please share any helpful hints you might have for getting ready for camp as well as ways to stay healthy at camp.
<br />
<br />Thanks and have a GREAT summer!
<br />Hugs,
<br />Lisa
<br />
<br />
 
L

LisaGreene

New member
I posted a request for tips on the Teenagers/ Young People forum. I know they will have some good advice for us! I'll copy them here as they reply. Thanks, Blake, for your great ideas. Lisa

**********

Hey Lisa, I don't have kids myself but I do have CF, and I attended scout camp yearly when I was younger.
Our camp was set up where you picked classes/activities sort of like a school day, so I just spoke with some of the leaders and set up to have the first 'period' after breakfast free, so that was everybody else was gone from camp and it allowed me to do all my treatments and such.

I also learned by the second year of camp to carry some salt tablets around with me. Being out in the sun all day COMPLETELY drained me so being able to pop a salt tablet/pill or carrying around a water bottle with mixed-in gatorade powder made a huge difference in my energy and ability to participate.
We lose electrolytes and salt so quickly in the sun, it's even worse now that I'm older, if I don't sip gatorade while doing heavy work outside in the sun I don't last long.

Make sure you tell them to drink lots and lots and lots and lots of water. Water doesn't mean 'bug-juice', that is almost entirely sugar and will dehydrate us CFers much faster than a normal person. Water and gatorade were the key for me :)

Aside from that... I'm sure they are responsible and know how to take care of themselves and do their treatments... they will have a blast!

If I can think of anything else I'll let you know!

-------------------------
Blake - 24 CF'er (Double Delta F508) and brother to James - 28 CF'er.
Both DX from the start, both living our dreams, and there's nothing you can do to stop us!

"If He heals me, or if It kills me, I still win."
 
L

LisaGreene

New member
I posted a request for tips on the Teenagers/ Young People forum. I know they will have some good advice for us! I'll copy them here as they reply. Thanks, Blake, for your great ideas. Lisa

**********

Hey Lisa, I don't have kids myself but I do have CF, and I attended scout camp yearly when I was younger.
Our camp was set up where you picked classes/activities sort of like a school day, so I just spoke with some of the leaders and set up to have the first 'period' after breakfast free, so that was everybody else was gone from camp and it allowed me to do all my treatments and such.

I also learned by the second year of camp to carry some salt tablets around with me. Being out in the sun all day COMPLETELY drained me so being able to pop a salt tablet/pill or carrying around a water bottle with mixed-in gatorade powder made a huge difference in my energy and ability to participate.
We lose electrolytes and salt so quickly in the sun, it's even worse now that I'm older, if I don't sip gatorade while doing heavy work outside in the sun I don't last long.

Make sure you tell them to drink lots and lots and lots and lots of water. Water doesn't mean 'bug-juice', that is almost entirely sugar and will dehydrate us CFers much faster than a normal person. Water and gatorade were the key for me :)

Aside from that... I'm sure they are responsible and know how to take care of themselves and do their treatments... they will have a blast!

If I can think of anything else I'll let you know!

-------------------------
Blake - 24 CF'er (Double Delta F508) and brother to James - 28 CF'er.
Both DX from the start, both living our dreams, and there's nothing you can do to stop us!

"If He heals me, or if It kills me, I still win."
 
L

LisaGreene

New member
I posted a request for tips on the Teenagers/ Young People forum. I know they will have some good advice for us! I'll copy them here as they reply. Thanks, Blake, for your great ideas. Lisa
<br />
<br />**********
<br />
<br />Hey Lisa, I don't have kids myself but I do have CF, and I attended scout camp yearly when I was younger.
<br />Our camp was set up where you picked classes/activities sort of like a school day, so I just spoke with some of the leaders and set up to have the first 'period' after breakfast free, so that was everybody else was gone from camp and it allowed me to do all my treatments and such.
<br />
<br />I also learned by the second year of camp to carry some salt tablets around with me. Being out in the sun all day COMPLETELY drained me so being able to pop a salt tablet/pill or carrying around a water bottle with mixed-in gatorade powder made a huge difference in my energy and ability to participate.
<br />We lose electrolytes and salt so quickly in the sun, it's even worse now that I'm older, if I don't sip gatorade while doing heavy work outside in the sun I don't last long.
<br />
<br />Make sure you tell them to drink lots and lots and lots and lots of water. Water doesn't mean 'bug-juice', that is almost entirely sugar and will dehydrate us CFers much faster than a normal person. Water and gatorade were the key for me :)
<br />
<br />Aside from that... I'm sure they are responsible and know how to take care of themselves and do their treatments... they will have a blast!
<br />
<br />If I can think of anything else I'll let you know!
<br />
<br />-------------------------
<br />Blake - 24 CF'er (Double Delta F508) and brother to James - 28 CF'er.
<br />Both DX from the start, both living our dreams, and there's nothing you can do to stop us!
<br />
<br />"If He heals me, or if It kills me, I still win."
 
J

JORDYSMOM

New member
Blake had some great tips. Jane has 2 boys, and they've gone to scout camp for years. I know she could add some great advice. Unfortunately, the boys are in lock up right now, so she is pretty busy. Hope she sees this, and can contribute.

I hope that this post helps those parents who might not otherwise let their kids go to camp just because of CF.
Feeling "normal" is such a huge part of our kids' health.

Stacey
 
J

JORDYSMOM

New member
Blake had some great tips. Jane has 2 boys, and they've gone to scout camp for years. I know she could add some great advice. Unfortunately, the boys are in lock up right now, so she is pretty busy. Hope she sees this, and can contribute.

I hope that this post helps those parents who might not otherwise let their kids go to camp just because of CF.
Feeling "normal" is such a huge part of our kids' health.

Stacey
 
J

JORDYSMOM

New member
Blake had some great tips. Jane has 2 boys, and they've gone to scout camp for years. I know she could add some great advice. Unfortunately, the boys are in lock up right now, so she is pretty busy. Hope she sees this, and can contribute.
<br />
<br />I hope that this post helps those parents who might not otherwise let their kids go to camp just because of CF.
<br />Feeling "normal" is such a huge part of our kids' health.
<br />
<br />Stacey
 
You must log in or register to reply here.
Top