Sweat test

[laurakaura]

Our son has been getting lots of hands up in the air reactions. His sweat test came back with a score of 19. i am wondering if anyone had sweat test values changing dramatically over the first year. we read on the cf website that they can never change but the doctors say its a possiblity. i just wonder how often that actualy happens

 

[laurakaura]

Our son has been getting lots of hands up in the air reactions. His sweat test came back with a score of 19. i am wondering if anyone had sweat test values changing dramatically over the first year. we read on the cf website that they can never change but the doctors say its a possiblity. i just wonder how often that actualy happens

 

[laurakaura]

Our son has been getting lots of hands up in the air reactions. His sweat test came back with a score of 19. i am wondering if anyone had sweat test values changing dramatically over the first year. we read on the cf website that they can never change but the doctors say its a possiblity. i just wonder how often that actualy happens

 

[laurakaura]

Our son has been getting lots of hands up in the air reactions. His sweat test came back with a score of 19. i am wondering if anyone had sweat test values changing dramatically over the first year. we read on the cf website that they can never change but the doctors say its a possiblity. i just wonder how often that actualy happens

 

[laurakaura]

Our son has been getting lots of hands up in the air reactions. His sweat test came back with a score of 19. i am wondering if anyone had sweat test values changing dramatically over the first year. we read on the cf website that they can never change but the doctors say its a possiblity. i just wonder how often that actualy happens

 

[Buckeye]

I have heard that sweat tests in young babies are not that realiable and that some babies are then sweat tested again at a later date to get a more accurate one. But nowadays that they have the genetic testing available, if the genetic testing comes back positive (two mutations) then there is really no need for another sweat test.Sweat testing used to be the "gold standard" when that is all they had and it is still a useful diagnostic tool when the test results are very clearly positive. But there are many kids that test normal or borderline on the sweat that then go on to have the genetic test and show positive on that.If the CF clinic is telling you that your child has CF, then I would believe them or get a second opinion if you don't trust them. If you are just relying on a Pediatrician for the diagnosis, then get to a CF Center right away, so you can get started on treatments for your baby.

 

[Buckeye]

I have heard that sweat tests in young babies are not that realiable and that some babies are then sweat tested again at a later date to get a more accurate one. But nowadays that they have the genetic testing available, if the genetic testing comes back positive (two mutations) then there is really no need for another sweat test.Sweat testing used to be the "gold standard" when that is all they had and it is still a useful diagnostic tool when the test results are very clearly positive. But there are many kids that test normal or borderline on the sweat that then go on to have the genetic test and show positive on that.If the CF clinic is telling you that your child has CF, then I would believe them or get a second opinion if you don't trust them. If you are just relying on a Pediatrician for the diagnosis, then get to a CF Center right away, so you can get started on treatments for your baby.

 

[Buckeye]

I have heard that sweat tests in young babies are not that realiable and that some babies are then sweat tested again at a later date to get a more accurate one. But nowadays that they have the genetic testing available, if the genetic testing comes back positive (two mutations) then there is really no need for another sweat test.Sweat testing used to be the "gold standard" when that is all they had and it is still a useful diagnostic tool when the test results are very clearly positive. But there are many kids that test normal or borderline on the sweat that then go on to have the genetic test and show positive on that.If the CF clinic is telling you that your child has CF, then I would believe them or get a second opinion if you don't trust them. If you are just relying on a Pediatrician for the diagnosis, then get to a CF Center right away, so you can get started on treatments for your baby.

 

[Buckeye]

I have heard that sweat tests in young babies are not that realiable and that some babies are then sweat tested again at a later date to get a more accurate one. But nowadays that they have the genetic testing available, if the genetic testing comes back positive (two mutations) then there is really no need for another sweat test.Sweat testing used to be the "gold standard" when that is all they had and it is still a useful diagnostic tool when the test results are very clearly positive. But there are many kids that test normal or borderline on the sweat that then go on to have the genetic test and show positive on that.If the CF clinic is telling you that your child has CF, then I would believe them or get a second opinion if you don't trust them. If you are just relying on a Pediatrician for the diagnosis, then get to a CF Center right away, so you can get started on treatments for your baby.

 

[Buckeye]

I have heard that sweat tests in young babies are not that realiable and that some babies are then sweat tested again at a later date to get a more accurate one. But nowadays that they have the genetic testing available, if the genetic testing comes back positive (two mutations) then there is really no need for another sweat test.<p>Sweat testing used to be the "gold standard" when that is all they had and it is still a useful diagnostic tool when the test results are very clearly positive. But there are many kids that test normal or borderline on the sweat that then go on to have the genetic test and show positive on that.<p>If the CF clinic is telling you that your child has CF, then I would believe them or get a second opinion if you don't trust them. If you are just relying on a Pediatrician for the diagnosis, then get to a CF Center right away, so you can get started on treatments for your baby.

 

[JazzysMom]

I agree with Pam....one other thing is, was the sweat test done at an Accredited CF Center? This assures more accuracy!

 

[JazzysMom]

I agree with Pam....one other thing is, was the sweat test done at an Accredited CF Center? This assures more accuracy!

 

[JazzysMom]

I agree with Pam....one other thing is, was the sweat test done at an Accredited CF Center? This assures more accuracy!

 

[JazzysMom]

I agree with Pam....one other thing is, was the sweat test done at an Accredited CF Center? This assures more accuracy!

 

[JazzysMom]

I agree with Pam....one other thing is, was the sweat test done at an Accredited CF Center? This assures more accuracy!

 

[laurakaura]

Well i was wondering about the sweat test because we know he has it he has two mutations. however everyone is sort of confused by his situation because he passed the sweat test and isnt showing any symptoms anywhere. they are thinking he is atypical or a very mild case which i would love for it to stay. We were told he has two delta 508 genes which are two of the more severe ones. but the doctor cant figure out why he is doing so well. power of prayer is what we believe. however we also havent even gotten the offical results from the state dept and from IU Med. they sent hand written notes. and i have a friend that works for IU Med and there is no record of my son anywhere in the system. something very strange is going on. and thats what the doctors are telling me also. its frustrating.

So basically i wondered if anyone had a change in sweat test restults at a later date. I am looking for a piece of mind. The doctors say they are pretty sure he is atypical but want to wait and make sure his sweat doesnt change. We just keep hearing how strange and rare whats happening is.

 

[laurakaura]

Well i was wondering about the sweat test because we know he has it he has two mutations. however everyone is sort of confused by his situation because he passed the sweat test and isnt showing any symptoms anywhere. they are thinking he is atypical or a very mild case which i would love for it to stay. We were told he has two delta 508 genes which are two of the more severe ones. but the doctor cant figure out why he is doing so well. power of prayer is what we believe. however we also havent even gotten the offical results from the state dept and from IU Med. they sent hand written notes. and i have a friend that works for IU Med and there is no record of my son anywhere in the system. something very strange is going on. and thats what the doctors are telling me also. its frustrating.

So basically i wondered if anyone had a change in sweat test restults at a later date. I am looking for a piece of mind. The doctors say they are pretty sure he is atypical but want to wait and make sure his sweat doesnt change. We just keep hearing how strange and rare whats happening is.

 

[laurakaura]

Well i was wondering about the sweat test because we know he has it he has two mutations. however everyone is sort of confused by his situation because he passed the sweat test and isnt showing any symptoms anywhere. they are thinking he is atypical or a very mild case which i would love for it to stay. We were told he has two delta 508 genes which are two of the more severe ones. but the doctor cant figure out why he is doing so well. power of prayer is what we believe. however we also havent even gotten the offical results from the state dept and from IU Med. they sent hand written notes. and i have a friend that works for IU Med and there is no record of my son anywhere in the system. something very strange is going on. and thats what the doctors are telling me also. its frustrating.

So basically i wondered if anyone had a change in sweat test restults at a later date. I am looking for a piece of mind. The doctors say they are pretty sure he is atypical but want to wait and make sure his sweat doesnt change. We just keep hearing how strange and rare whats happening is.

 

[laurakaura]

Well i was wondering about the sweat test because we know he has it he has two mutations. however everyone is sort of confused by his situation because he passed the sweat test and isnt showing any symptoms anywhere. they are thinking he is atypical or a very mild case which i would love for it to stay. We were told he has two delta 508 genes which are two of the more severe ones. but the doctor cant figure out why he is doing so well. power of prayer is what we believe. however we also havent even gotten the offical results from the state dept and from IU Med. they sent hand written notes. and i have a friend that works for IU Med and there is no record of my son anywhere in the system. something very strange is going on. and thats what the doctors are telling me also. its frustrating.

So basically i wondered if anyone had a change in sweat test restults at a later date. I am looking for a piece of mind. The doctors say they are pretty sure he is atypical but want to wait and make sure his sweat doesnt change. We just keep hearing how strange and rare whats happening is.

 

[laurakaura]

Well i was wondering about the sweat test because we know he has it he has two mutations. however everyone is sort of confused by his situation because he passed the sweat test and isnt showing any symptoms anywhere. they are thinking he is atypical or a very mild case which i would love for it to stay. We were told he has two delta 508 genes which are two of the more severe ones. but the doctor cant figure out why he is doing so well. power of prayer is what we believe. however we also havent even gotten the offical results from the state dept and from IU Med. they sent hand written notes. and i have a friend that works for IU Med and there is no record of my son anywhere in the system. something very strange is going on. and thats what the doctors are telling me also. its frustrating.
<br />
<br />So basically i wondered if anyone had a change in sweat test restults at a later date. I am looking for a piece of mind. The doctors say they are pretty sure he is atypical but want to wait and make sure his sweat doesnt change. We just keep hearing how strange and rare whats happening is.