symptomatic Carrier?

[hopefulmommy]

Just trying to work through some things....

for background - our son was diagnosed with CF at 3 weeks old after having 2 elevated NB screens. Before that, neither my nor I knew we were carriers.

Since we both know that we're carriers now, I'm told that we won't get insurance to cover genetic testing for either of us, since it wouldn't be "beneficial"

Looking at DH - is it possible for him to mild symptoms only being a carrier?

He's always been thin, can eat whatever he wants, his poops always float (fatty?), he LOVES lots of salt on everything, he says that he's always had snot, and come to find out that the docs thought he had a bowel obstruction at some point during his childhood (don't ask - his mom is a loon and doesn't always have the best info!)

Am I just grasping at things? OR could he possibly have CF and just be very mild? Is there any way to get him tested and have insurance cover it?

 

[hopefulmommy]

Just trying to work through some things....

for background - our son was diagnosed with CF at 3 weeks old after having 2 elevated NB screens. Before that, neither my nor I knew we were carriers.

Since we both know that we're carriers now, I'm told that we won't get insurance to cover genetic testing for either of us, since it wouldn't be "beneficial"

Looking at DH - is it possible for him to mild symptoms only being a carrier?

He's always been thin, can eat whatever he wants, his poops always float (fatty?), he LOVES lots of salt on everything, he says that he's always had snot, and come to find out that the docs thought he had a bowel obstruction at some point during his childhood (don't ask - his mom is a loon and doesn't always have the best info!)

Am I just grasping at things? OR could he possibly have CF and just be very mild? Is there any way to get him tested and have insurance cover it?

 

[hopefulmommy]

Just trying to work through some things....

for background - our son was diagnosed with CF at 3 weeks old after having 2 elevated NB screens. Before that, neither my nor I knew we were carriers.

Since we both know that we're carriers now, I'm told that we won't get insurance to cover genetic testing for either of us, since it wouldn't be "beneficial"

Looking at DH - is it possible for him to mild symptoms only being a carrier?

He's always been thin, can eat whatever he wants, his poops always float (fatty?), he LOVES lots of salt on everything, he says that he's always had snot, and come to find out that the docs thought he had a bowel obstruction at some point during his childhood (don't ask - his mom is a loon and doesn't always have the best info!)

Am I just grasping at things? OR could he possibly have CF and just be very mild? Is there any way to get him tested and have insurance cover it?

 

[hopefulmommy]

Just trying to work through some things....

for background - our son was diagnosed with CF at 3 weeks old after having 2 elevated NB screens. Before that, neither my nor I knew we were carriers.

Since we both know that we're carriers now, I'm told that we won't get insurance to cover genetic testing for either of us, since it wouldn't be "beneficial"

Looking at DH - is it possible for him to mild symptoms only being a carrier?

He's always been thin, can eat whatever he wants, his poops always float (fatty?), he LOVES lots of salt on everything, he says that he's always had snot, and come to find out that the docs thought he had a bowel obstruction at some point during his childhood (don't ask - his mom is a loon and doesn't always have the best info!)

Am I just grasping at things? OR could he possibly have CF and just be very mild? Is there any way to get him tested and have insurance cover it?

 

[hopefulmommy]

Just trying to work through some things....

for background - our son was diagnosed with CF at 3 weeks old after having 2 elevated NB screens. Before that, neither my nor I knew we were carriers.

Since we both know that we're carriers now, I'm told that we won't get insurance to cover genetic testing for either of us, since it wouldn't be "beneficial"

Looking at DH - is it possible for him to mild symptoms only being a carrier?

He's always been thin, can eat whatever he wants, his poops always float (fatty?), he LOVES lots of salt on everything, he says that he's always had snot, and come to find out that the docs thought he had a bowel obstruction at some point during his childhood (don't ask - his mom is a loon and doesn't always have the best info!)

Am I just grasping at things? OR could he possibly have CF and just be very mild? Is there any way to get him tested and have insurance cover it?

 

[Sakem]

I would think insurance would care it, if he has symptoms....being that the test is being done more for a diagnosis than just finding out what gene he carries.

 

[Sakem]

I would think insurance would care it, if he has symptoms....being that the test is being done more for a diagnosis than just finding out what gene he carries.

 

[Sakem]

I would think insurance would care it, if he has symptoms....being that the test is being done more for a diagnosis than just finding out what gene he carries.

 

[Sakem]

I would think insurance would care it, if he has symptoms....being that the test is being done more for a diagnosis than just finding out what gene he carries.

 

[Sakem]

I would think insurance would care it, if he has symptoms....being that the test is being done more for a diagnosis than just finding out what gene he carries.

 

[hopefulmommy]

My guess is they'd want a sweat test first - my insurance denied my son's genetics after a positive sweat test **roll eyes**

 

[hopefulmommy]

My guess is they'd want a sweat test first - my insurance denied my son's genetics after a positive sweat test **roll eyes**

 

[hopefulmommy]

My guess is they'd want a sweat test first - my insurance denied my son's genetics after a positive sweat test **roll eyes**

 

[hopefulmommy]

My guess is they'd want a sweat test first - my insurance denied my son's genetics after a positive sweat test **roll eyes**

 

[hopefulmommy]

My guess is they'd want a sweat test first - my insurance denied my son's genetics after a positive sweat test **roll eyes**

 

[Mockingbird]

Ask your doctor if he/she will write a letter to the insurnace company explaining things. That usually helps. If it doesn't work, ask your doctor to write another letter, and another, and another, etc.

 

[Mockingbird]

Ask your doctor if he/she will write a letter to the insurnace company explaining things. That usually helps. If it doesn't work, ask your doctor to write another letter, and another, and another, etc.

 

[Mockingbird]

Ask your doctor if he/she will write a letter to the insurnace company explaining things. That usually helps. If it doesn't work, ask your doctor to write another letter, and another, and another, etc.

 

[Mockingbird]

Ask your doctor if he/she will write a letter to the insurnace company explaining things. That usually helps. If it doesn't work, ask your doctor to write another letter, and another, and another, etc.

 

[Mockingbird]

Ask your doctor if he/she will write a letter to the insurnace company explaining things. That usually helps. If it doesn't work, ask your doctor to write another letter, and another, and another, etc.