1 History of Bronchitis as a kid2 Thick Clear Mucus3 Often tested for Chronic Fatigue Syndrome, Mono, Pnemonia (always neg)4 Extreme cardiovascular exercise (especially in cold weather) stresses the lungs5 Sudden difficulty getting oxygen (feels like air doesn't go from lungs to blood stream, like overnight I became out of shape--which I am not)6 Chronic ear, sinus problems7 When told to drink 8 glasses of water a day, I felt like I peed every hour (like the water was just going right through me)8 Excessive sweat, more so than (same physical condition) others doing the same thing (started around the age of 15, I think).9 Salty sweat10 Feel extremely cold after extreme bouts of exercise11 Apathy after exercise not consistent with others of same physical condition doing the same exercise12 Sudden unknown cause of muscle fatigue (like my muscles give out)13 Confussion/lack of recall for english vocab/feel brain dead (kind of like hypoglycemic symptoms without the shakiness) when I haven't eaten in a whileLet me know if any of these seem familiar to anyone with CF or has been diagnosed as a CF carrier.
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Symptoms
- Thread starter CFCarrier
- Start date
I am a cf carrier...didn't know it though until my daughter was dx. As a child (and some as an adult) I, too, was constantly tested for mono, chronic fatigue, diabetes...I had constant respitory infections. the doctors just told me that I had a type of immune deficiency...no real explaination. I share many of your symptoms...i also suffer from infertility.My husband (who is also a carrier) has chronic sinus problems, several sets of tubes as a childMy son (w/o cf, but twin to my daughter with cf), although we don't know if he is a carrier, has frequent bouts of croup, ear infections, and constipation. Now are those things that say he's not yet two, or do they say he is a possible carrier?We were told that carriers are often CF symptomatic...it was very strange to look back at our childhoods and even our parents and make some connections.Christie
Hi,I am a carrier and so is my hubby. Our daughter is 5 with CF. I have heard that some carriers can be symptomatic (obviously more mild than someone with CF) I do not have any symptoms excep it takes me longer to get rid of colds and chest infections than the average person, and occasionally get bronchitis. The thick mucus, chronic ear/sinus problems, and salty sweat are obviously like cf symptoms, some of the other things sound like a bit low oxygen stats (the confusion and apathy after excercise). I don't know if this helps or not.Andrea
It was not until about a year ago that I found out that recent research suggests that CF carriers can be symptomatic to a milder extent. Apparently it is thought to be somewhat like being a sickle cell anemia carrier, in the fact that sickle cell anemia carriers do not have sickle cell, but are immune to malaria like those who actually have sickle cell anemia.Here is one of the limited things I was able to find on the internet about CF carrier problems. If anybody else knows where I can find more info on CF carriers, that would be most helpful. The following is one full address link. I had to press return after "E2B02?Open" to make sure it all fit on this message screen, we'll see if clicking on it works or if cut and paste works.http://www.docguide.com/news/content.nsf/news/0CF8C59E64FAF86785256A65006E2B02?OpenDocument&id=48dde4a73e09a969852568880078c249&c=Cystic%20Fibrosis&count=10<u>Text</u>ECF: Cystic Fibrosis Carriers May Be Predispose To Other Illnesses--June 8, 2001--It is not clear what being a carrier means to that individual. Dr. Gary Cutting, from the department of Genetics, Johns Hopkins Hospital, in Baltimore, Maryland concluded that there was evidence that being a carrier for the CF gene (about one in 20 to 25 of Caucasians are carriers) may predispose to respiratory illness that is not cystic fibrosis.I have recently started to wonder if I have mild CF. That is why I decided to ask others about their possible symptoms: CF carrier symptoms vs. actual CF symptoms. I also analyze things a lot, so sometimes I wonder if I am reading TOO MUCH into something.In addition to my previously stated #1-#13 previously questioned symptoms, I want to add another. #14, has a longer explanation. I also remember getting strep throat a few years ago and was placed on antibiotics--penicillin. When I no longer had strep throat and returned to athletic practice, I felt like a new person physically--ready to take on the world. After that episode I decided that perhaps I had also had pneumonia or bronchitis that also went undiagnosed. The penicillin left in the container was more than I was prescribed (more antibiotics than needed for 10 days), so I had this plan that if I had my #5 symptom (suddenly, like overnight, feeling as if oxygen was not getting into my blood stream from my lungs -- becoming out-of-shape overnight), then I was going to take the leftover penicillin. I figured a one-time shot of prescribing myself antibiotics would not kill me, and either it would cure my ailments, or at worst I would risk developing an immunity to penicillin. I was willing to take on the risk because things just didn't seem normal and the doctors that I had been to were not helpful. For some reason or another, though, I never did get to try out my plan. The other day I was looking into CF treatments on the internet and it talked about home antibiotic treatment. It reminded me about experience #14, so I wanted to add it in to see if anyone had a comment/question/concern on it.So if anybody has more info on cystic fibrosis carrier symptoms, or comments on any of my experiences (#1-#13 from a previous message and then #14 from this message), I would be more than grateful for responses.
Anonymous,I've never actually been tested for anything. I've just done my own research. I just assumed that if I were to be more than a cystic fibrosis carrier I would have had more (and to a higher degree of) problems from the time I was a kid. I'm thinking I may go in for tests now, although I am currently spending all my income on a college education, so I'm not sure about costs. Anybody know about how expensive tests are?And in response to your second question. I'm not sure what "dd" is?
Some people are carriers of one fully mutated gene and a mutation fragment. I am wondering if having a fragment as well as a fully mutated gene would increase the possibility of being a symptomatic carrier? (just thinking out loud) The genetic test might be covered by your insurance. It might be worth it to request testingAndrea