Am I looking in the wrong area? I just need a CF something to let my 12 year old son take to let his teacher know what it he has and how to help him. Without all the stress and questions toward my son. Do any of you have any suggestions on where I could maybe look? I would greatly appreciate it.
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TEACHER OR SCHOOL WHAT IS CF FOR THE STUDENT?
- Thread starter anonymous
- Start date
If you go to www.cff.org there is a pamphlet that you can print out call 'THE TEACHERS GUIDE TO CF". I print this out every year and give it to Courtney's teachers. It has everything that teachers and school staff need to know about CF.
Hope that helps!
Seana
mom to Lauren, 14, no CF- Courtney, 12, with CF- Cameron 10, no CF
Hope that helps!
Seana
mom to Lauren, 14, no CF- Courtney, 12, with CF- Cameron 10, no CF
CFHockeyMom
New member
Your social worker should also have some great booklets not only for your childs teacher but the school's staff (i.e. principal, nurse, etc.). Once we know who our teacher is going to be, I make an appointment with her/him before the school year starts to give them the info and discuss special needs (i.e. potty breaks, enzymes, etc.).
blindhearted
New member
As Seana and CFHockeyMom said, go print the Guide off of CFF.org and talk to your CF Center (doctors and socal workers) about any information they can give you. Get it for each teacher. Once you know who his teachers are, it might be easier to make an appointment with them, that way if they have any questions they can ask you and you know they got the information and looked at it and not just took it and tossed it on their desk. Ask your son if he wants to go or not, it might be easier with just you and the teacher but nice to ask so he feels included or doesnt want to be in that situation. It can be his choice. Also talk with the principal. Its always good for them to know, specially if he has more sick days than he should, the principal see that he gets his work (hopefully he will stay well and that wont come into play). Something else to think about some schools dont like kids to take medicine on school grounds. I had a doctors note (saying what I had, I knew alot about it, had medicine and could administer it myself) that I carried around with me at all times (wallet/purse) and was also on my school file. So if a Substitue came in and wouldnt let me take what I needed, I would go to the principal and they would fix it due to my note (this came in handy because I was written up once due to walking out and taking medicine after the Substitute said not to even though I explained the note, due to this note being on file I got out of it and nothing was on my record.) Do all of these appointments/meetings as soon as the school year starts so there will be (hopefully) less problems as the year goes on. I also recommend doing this every school year with the teachers or if a teacher is replaced mid-year. That way they cant say they didn't know.
I even continued to give teachers information through college.
Hope this helps!
I even continued to give teachers information through college.
Hope this helps!
There should be little booklets available for you to give to the teacher. You can even point the teacher to the appropriate websites. When I was in school my mother made copies of a booklet provided by the CF Foundation. She provided these to my teachers at the beginning of the school year along with a letter from my doctor stating my limitations and the fact that I will spend time in the hospital so that their assistance in my schoolwork would be helpful. I only had problems with two teachers (a P.E. teacher, and a Science teacher). That was from kindergarten through senior year in high school. Also see what the school is required by law to provide for your child. In CA schools are supposed to provide chronically ill children with a tutor (at the school's expense) if they miss more than 3 days of school. You'll have to do some research on that because my school tried to weasle out of providing a tutor for me.
-Sunnie
-Sunnie
I have two children with cf, 12 & 13 years old. I also work as a clinic aide where they used to attend in elementary school. Even though your child is 12 there is a book Mallaries 65 Roses we got at the cf center this is an excellent knowledgeable book, there is also a really good cf pamphlet. I find it is always helpful to go have a meeting before school starts w/ everyone involved with my kids present. This seems to help the faculty and us as a family. Good luck!