Tell how hard it is to live with CF.

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girlwithCF123

Guest
Hi I'm Adriana and I'm 12 years-old. I wanted to see how CF affects you and what you think of it. I want to hear all kinds of stories and see if some relate to me or other people's. I would at least want to know about what you think of doing your treatments everyday and taking enzymes when you eat and all that kind of stuff because I get very fustrated having to do my nebulizer everyday twice a day and at the same time getting my grades up. Can you people help me?? Because I want to figure out how I can fit everything into my day and still have a little time for fun!! so I really need your help!! well please tell me wat you think and if you want to talk about CF or something here's my e-mail address: ilovesasuke@att.net
myspace: myspace.com/ILUVSASUKEANDNEJI so yea send me something on myspace or my e-mail address I would prefer myspace but the other one is okay!!
 
G

girlwithCF123

Guest
Hi I'm Adriana and I'm 12 years-old. I wanted to see how CF affects you and what you think of it. I want to hear all kinds of stories and see if some relate to me or other people's. I would at least want to know about what you think of doing your treatments everyday and taking enzymes when you eat and all that kind of stuff because I get very fustrated having to do my nebulizer everyday twice a day and at the same time getting my grades up. Can you people help me?? Because I want to figure out how I can fit everything into my day and still have a little time for fun!! so I really need your help!! well please tell me wat you think and if you want to talk about CF or something here's my e-mail address: ilovesasuke@att.net
myspace: myspace.com/ILUVSASUKEANDNEJI so yea send me something on myspace or my e-mail address I would prefer myspace but the other one is okay!!
 
G

girlwithCF123

Guest
Hi I'm Adriana and I'm 12 years-old. I wanted to see how CF affects you and what you think of it. I want to hear all kinds of stories and see if some relate to me or other people's. I would at least want to know about what you think of doing your treatments everyday and taking enzymes when you eat and all that kind of stuff because I get very fustrated having to do my nebulizer everyday twice a day and at the same time getting my grades up. Can you people help me?? Because I want to figure out how I can fit everything into my day and still have a little time for fun!! so I really need your help!! well please tell me wat you think and if you want to talk about CF or something here's my e-mail address: ilovesasuke@att.net
myspace: myspace.com/ILUVSASUKEANDNEJI so yea send me something on myspace or my e-mail address I would prefer myspace but the other one is okay!!
 
G

girlwithCF123

Guest
Hi I'm Adriana and I'm 12 years-old. I wanted to see how CF affects you and what you think of it. I want to hear all kinds of stories and see if some relate to me or other people's. I would at least want to know about what you think of doing your treatments everyday and taking enzymes when you eat and all that kind of stuff because I get very fustrated having to do my nebulizer everyday twice a day and at the same time getting my grades up. Can you people help me?? Because I want to figure out how I can fit everything into my day and still have a little time for fun!! so I really need your help!! well please tell me wat you think and if you want to talk about CF or something here's my e-mail address: ilovesasuke@att.net
myspace: myspace.com/ILUVSASUKEANDNEJI so yea send me something on myspace or my e-mail address I would prefer myspace but the other one is okay!!
 
G

girlwithCF123

Guest
Hi I'm Adriana and I'm 12 years-old. I wanted to see how CF affects you and what you think of it. I want to hear all kinds of stories and see if some relate to me or other people's. I would at least want to know about what you think of doing your treatments everyday and taking enzymes when you eat and all that kind of stuff because I get very fustrated having to do my nebulizer everyday twice a day and at the same time getting my grades up. Can you people help me?? Because I want to figure out how I can fit everything into my day and still have a little time for fun!! so I really need your help!! well please tell me wat you think and if you want to talk about CF or something here's my e-mail address: ilovesasuke@att.net
<br />myspace: myspace.com/ILUVSASUKEANDNEJI so yea send me something on myspace or my e-mail address I would prefer myspace but the other one is okay!!
 
B

browneyedgirl

New member
Hey Adriana, I'm afraid I can't help you there. I have the exact same problem and I'm almost 18! I'll have phases when I'm really on top of everything and I do my treatments twice a day, but then I always get to a point when I just get so frustrated and sick of it, I stop. I've actually talked to my therapist about it and it's really just about responsibilty, because if you really think about it it's better to be on top of all your treatments all the time so then you feel better and have more energy to go out and do stuff and have fun, which is ultimately a better life. I'm working on it too. You just have to get on some kind of strict schedule to do all your health stuff first to get it out of the way so you have more time for other things, I guess it's just about balance. I'm not sure if that was much help, but thats just what I've learned over the years. So good luck! and stay healthy!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

browneyedgirl

New member
Hey Adriana, I'm afraid I can't help you there. I have the exact same problem and I'm almost 18! I'll have phases when I'm really on top of everything and I do my treatments twice a day, but then I always get to a point when I just get so frustrated and sick of it, I stop. I've actually talked to my therapist about it and it's really just about responsibilty, because if you really think about it it's better to be on top of all your treatments all the time so then you feel better and have more energy to go out and do stuff and have fun, which is ultimately a better life. I'm working on it too. You just have to get on some kind of strict schedule to do all your health stuff first to get it out of the way so you have more time for other things, I guess it's just about balance. I'm not sure if that was much help, but thats just what I've learned over the years. So good luck! and stay healthy!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

browneyedgirl

New member
Hey Adriana, I'm afraid I can't help you there. I have the exact same problem and I'm almost 18! I'll have phases when I'm really on top of everything and I do my treatments twice a day, but then I always get to a point when I just get so frustrated and sick of it, I stop. I've actually talked to my therapist about it and it's really just about responsibilty, because if you really think about it it's better to be on top of all your treatments all the time so then you feel better and have more energy to go out and do stuff and have fun, which is ultimately a better life. I'm working on it too. You just have to get on some kind of strict schedule to do all your health stuff first to get it out of the way so you have more time for other things, I guess it's just about balance. I'm not sure if that was much help, but thats just what I've learned over the years. So good luck! and stay healthy!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

browneyedgirl

New member
Hey Adriana, I'm afraid I can't help you there. I have the exact same problem and I'm almost 18! I'll have phases when I'm really on top of everything and I do my treatments twice a day, but then I always get to a point when I just get so frustrated and sick of it, I stop. I've actually talked to my therapist about it and it's really just about responsibilty, because if you really think about it it's better to be on top of all your treatments all the time so then you feel better and have more energy to go out and do stuff and have fun, which is ultimately a better life. I'm working on it too. You just have to get on some kind of strict schedule to do all your health stuff first to get it out of the way so you have more time for other things, I guess it's just about balance. I'm not sure if that was much help, but thats just what I've learned over the years. So good luck! and stay healthy!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

browneyedgirl

New member
Hey Adriana, I'm afraid I can't help you there. I have the exact same problem and I'm almost 18! I'll have phases when I'm really on top of everything and I do my treatments twice a day, but then I always get to a point when I just get so frustrated and sick of it, I stop. I've actually talked to my therapist about it and it's really just about responsibilty, because if you really think about it it's better to be on top of all your treatments all the time so then you feel better and have more energy to go out and do stuff and have fun, which is ultimately a better life. I'm working on it too. You just have to get on some kind of strict schedule to do all your health stuff first to get it out of the way so you have more time for other things, I guess it's just about balance. I'm not sure if that was much help, but thats just what I've learned over the years. So good luck! and stay healthy!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

letsrockcfem

New member
I love your positive attitude browneyedgirl! Staying one step ahead of CF is the key to keeping healthy. Once you guys get into a routine you'll be rockin.' It may take a while and it definitely gets frustrating at times. It's ok just relax and try to get back on track. It took me time to play around with things, figure out what time I have to wake up to get in all my meds and still work or go to school, play in a band and exercise every day. Message me with any questions guys. You've got this!

Rock CF!
Em
 
L

letsrockcfem

New member
I love your positive attitude browneyedgirl! Staying one step ahead of CF is the key to keeping healthy. Once you guys get into a routine you'll be rockin.' It may take a while and it definitely gets frustrating at times. It's ok just relax and try to get back on track. It took me time to play around with things, figure out what time I have to wake up to get in all my meds and still work or go to school, play in a band and exercise every day. Message me with any questions guys. You've got this!

Rock CF!
Em
 
L

letsrockcfem

New member
I love your positive attitude browneyedgirl! Staying one step ahead of CF is the key to keeping healthy. Once you guys get into a routine you'll be rockin.' It may take a while and it definitely gets frustrating at times. It's ok just relax and try to get back on track. It took me time to play around with things, figure out what time I have to wake up to get in all my meds and still work or go to school, play in a band and exercise every day. Message me with any questions guys. You've got this!

Rock CF!
Em
 
L

letsrockcfem

New member
I love your positive attitude browneyedgirl! Staying one step ahead of CF is the key to keeping healthy. Once you guys get into a routine you'll be rockin.' It may take a while and it definitely gets frustrating at times. It's ok just relax and try to get back on track. It took me time to play around with things, figure out what time I have to wake up to get in all my meds and still work or go to school, play in a band and exercise every day. Message me with any questions guys. You've got this!

Rock CF!
Em
 
L

letsrockcfem

New member
I love your positive attitude browneyedgirl! Staying one step ahead of CF is the key to keeping healthy. Once you guys get into a routine you'll be rockin.' It may take a while and it definitely gets frustrating at times. It's ok just relax and try to get back on track. It took me time to play around with things, figure out what time I have to wake up to get in all my meds and still work or go to school, play in a band and exercise every day. Message me with any questions guys. You've got this!
<br />
<br />Rock CF!
<br />Em
<br />
 
J

JazzysMom

New member
I dont have any real advise, but more of a thought. No matter how frustrating/tiring/time consuming these treatments are.......there is nothing like not breathing, ending up in the hospital or on iv's to REALLY put a damper on fun!

It is what it is Sweety! You can figure something out!
 
J

JazzysMom

New member
I dont have any real advise, but more of a thought. No matter how frustrating/tiring/time consuming these treatments are.......there is nothing like not breathing, ending up in the hospital or on iv's to REALLY put a damper on fun!

It is what it is Sweety! You can figure something out!
 
J

JazzysMom

New member
I dont have any real advise, but more of a thought. No matter how frustrating/tiring/time consuming these treatments are.......there is nothing like not breathing, ending up in the hospital or on iv's to REALLY put a damper on fun!

It is what it is Sweety! You can figure something out!
 
J

JazzysMom

New member
I dont have any real advise, but more of a thought. No matter how frustrating/tiring/time consuming these treatments are.......there is nothing like not breathing, ending up in the hospital or on iv's to REALLY put a damper on fun!

It is what it is Sweety! You can figure something out!
 
J

JazzysMom

New member
I dont have any real advise, but more of a thought. No matter how frustrating/tiring/time consuming these treatments are.......there is nothing like not breathing, ending up in the hospital or on iv's to REALLY put a damper on fun!
<br />
<br />It is what it is Sweety! You can figure something out!
 
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