I am 11 weeks pregnant, and just found out that both my husband and I are carriers of CF. Neither of us knew prior to getting pregnant as we don't have CF. We are meeting with a genetic counselor this week to find out more about the situation. I always thought I'd want as much information as possible, and we have a CVS test scheduled. However, I am having second thoughts about the test, not only because it is invasive but also because I don't think it will matter to us in the end. This whole process is very emotional and confusing, and am wondering if anyone has any advice here. Has anyone been through this and why did you choose how you did? It would be really helpful to hear some stories, as I don't have anyone that I can really relate to right now.
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Testing for CF
- Thread starter fegardner
- Start date
I am 11 weeks pregnant, and just found out that both my husband and I are carriers of CF. Neither of us knew prior to getting pregnant as we don't have CF. We are meeting with a genetic counselor this week to find out more about the situation. I always thought I'd want as much information as possible, and we have a CVS test scheduled. However, I am having second thoughts about the test, not only because it is invasive but also because I don't think it will matter to us in the end. This whole process is very emotional and confusing, and am wondering if anyone has any advice here. Has anyone been through this and why did you choose how you did? It would be really helpful to hear some stories, as I don't have anyone that I can really relate to right now.
I am 11 weeks pregnant, and just found out that both my husband and I are carriers of CF. Neither of us knew prior to getting pregnant as we don't have CF. We are meeting with a genetic counselor this week to find out more about the situation. I always thought I'd want as much information as possible, and we have a CVS test scheduled. However, I am having second thoughts about the test, not only because it is invasive but also because I don't think it will matter to us in the end. This whole process is very emotional and confusing, and am wondering if anyone has any advice here. Has anyone been through this and why did you choose how you did? It would be really helpful to hear some stories, as I don't have anyone that I can really relate to right now.
I am 11 weeks pregnant, and just found out that both my husband and I are carriers of CF. Neither of us knew prior to getting pregnant as we don't have CF. We are meeting with a genetic counselor this week to find out more about the situation. I always thought I'd want as much information as possible, and we have a CVS test scheduled. However, I am having second thoughts about the test, not only because it is invasive but also because I don't think it will matter to us in the end. This whole process is very emotional and confusing, and am wondering if anyone has any advice here. Has anyone been through this and why did you choose how you did? It would be really helpful to hear some stories, as I don't have anyone that I can really relate to right now.
I am 11 weeks pregnant, and just found out that both my husband and I are carriers of CF. Neither of us knew prior to getting pregnant as we don't have CF. We are meeting with a genetic counselor this week to find out more about the situation. I always thought I'd want as much information as possible, and we have a CVS test scheduled. However, I am having second thoughts about the test, not only because it is invasive but also because I don't think it will matter to us in the end. This whole process is very emotional and confusing, and am wondering if anyone has any advice here. Has anyone been through this and why did you choose how you did? It would be really helpful to hear some stories, as I don't have anyone that I can really relate to right now.
You should post this under "New Diagnosis" and you'll get more responses. This section is for topics to do with family expansion for couples efflicted with cf mostly. That being said, there are threads in this section to do with your very topic because it is a common missconception. Good luck!
You should post this under "New Diagnosis" and you'll get more responses. This section is for topics to do with family expansion for couples efflicted with cf mostly. That being said, there are threads in this section to do with your very topic because it is a common missconception. Good luck!
You should post this under "New Diagnosis" and you'll get more responses. This section is for topics to do with family expansion for couples efflicted with cf mostly. That being said, there are threads in this section to do with your very topic because it is a common missconception. Good luck!
You should post this under "New Diagnosis" and you'll get more responses. This section is for topics to do with family expansion for couples efflicted with cf mostly. That being said, there are threads in this section to do with your very topic because it is a common missconception. Good luck!
You should post this under "New Diagnosis" and you'll get more responses. This section is for topics to do with family expansion for couples efflicted with cf mostly. That being said, there are threads in this section to do with your very topic because it is a common missconception. Good luck!
truckin4tucker
New member
I can relate to what you are going through. My husband and I have a 6 year old son with CF and a 3 year old daughter w/o CF, who was adopted. Our son was diagnosed at one week of age through the newborn screening process. We decided when he was 2 that we were going to have one more child. However, at the time, we wanted to emotionally prepare ourselves for the possibility of having a second child with CF. So, we had a CVS done at 10 or 11 weeks of the pregnancy. We found out a week later, the baby did not have CF and was only a carrier of the CF gene. What a relief! Unfortunately a few weeks after the procedure I began to get really sick. To make a long story short, I ended up being one of the .08% of the people that suffered a miscarriage at 20 weeks of pregnancy from the CVS. I ended up getting an infection from the procedure, which attacked my placenta, causing it to detach, which in turn caused me to miscarry our daughter Rylie, who weighed 6 oz. and was 8 in. long... 10 fingers, 10 toes, and long legs like mine! She was beautiful!
My story is not to scare you, but to just make you aware of the risks you take with this procedure. I can say I konw regret ever having had that procedure done, but at that time, it is what we felt we needed to do.
Good luck with your decision. I know it is not an easy one to make. Feel free to PM me if you have any other questions. You will be in my thoughts.
My story is not to scare you, but to just make you aware of the risks you take with this procedure. I can say I konw regret ever having had that procedure done, but at that time, it is what we felt we needed to do.
Good luck with your decision. I know it is not an easy one to make. Feel free to PM me if you have any other questions. You will be in my thoughts.
truckin4tucker
New member
I can relate to what you are going through. My husband and I have a 6 year old son with CF and a 3 year old daughter w/o CF, who was adopted. Our son was diagnosed at one week of age through the newborn screening process. We decided when he was 2 that we were going to have one more child. However, at the time, we wanted to emotionally prepare ourselves for the possibility of having a second child with CF. So, we had a CVS done at 10 or 11 weeks of the pregnancy. We found out a week later, the baby did not have CF and was only a carrier of the CF gene. What a relief! Unfortunately a few weeks after the procedure I began to get really sick. To make a long story short, I ended up being one of the .08% of the people that suffered a miscarriage at 20 weeks of pregnancy from the CVS. I ended up getting an infection from the procedure, which attacked my placenta, causing it to detach, which in turn caused me to miscarry our daughter Rylie, who weighed 6 oz. and was 8 in. long... 10 fingers, 10 toes, and long legs like mine! She was beautiful!
My story is not to scare you, but to just make you aware of the risks you take with this procedure. I can say I konw regret ever having had that procedure done, but at that time, it is what we felt we needed to do.
Good luck with your decision. I know it is not an easy one to make. Feel free to PM me if you have any other questions. You will be in my thoughts.
My story is not to scare you, but to just make you aware of the risks you take with this procedure. I can say I konw regret ever having had that procedure done, but at that time, it is what we felt we needed to do.
Good luck with your decision. I know it is not an easy one to make. Feel free to PM me if you have any other questions. You will be in my thoughts.
truckin4tucker
New member
I can relate to what you are going through. My husband and I have a 6 year old son with CF and a 3 year old daughter w/o CF, who was adopted. Our son was diagnosed at one week of age through the newborn screening process. We decided when he was 2 that we were going to have one more child. However, at the time, we wanted to emotionally prepare ourselves for the possibility of having a second child with CF. So, we had a CVS done at 10 or 11 weeks of the pregnancy. We found out a week later, the baby did not have CF and was only a carrier of the CF gene. What a relief! Unfortunately a few weeks after the procedure I began to get really sick. To make a long story short, I ended up being one of the .08% of the people that suffered a miscarriage at 20 weeks of pregnancy from the CVS. I ended up getting an infection from the procedure, which attacked my placenta, causing it to detach, which in turn caused me to miscarry our daughter Rylie, who weighed 6 oz. and was 8 in. long... 10 fingers, 10 toes, and long legs like mine! She was beautiful!
My story is not to scare you, but to just make you aware of the risks you take with this procedure. I can say I konw regret ever having had that procedure done, but at that time, it is what we felt we needed to do.
Good luck with your decision. I know it is not an easy one to make. Feel free to PM me if you have any other questions. You will be in my thoughts.
My story is not to scare you, but to just make you aware of the risks you take with this procedure. I can say I konw regret ever having had that procedure done, but at that time, it is what we felt we needed to do.
Good luck with your decision. I know it is not an easy one to make. Feel free to PM me if you have any other questions. You will be in my thoughts.
truckin4tucker
New member
I can relate to what you are going through. My husband and I have a 6 year old son with CF and a 3 year old daughter w/o CF, who was adopted. Our son was diagnosed at one week of age through the newborn screening process. We decided when he was 2 that we were going to have one more child. However, at the time, we wanted to emotionally prepare ourselves for the possibility of having a second child with CF. So, we had a CVS done at 10 or 11 weeks of the pregnancy. We found out a week later, the baby did not have CF and was only a carrier of the CF gene. What a relief! Unfortunately a few weeks after the procedure I began to get really sick. To make a long story short, I ended up being one of the .08% of the people that suffered a miscarriage at 20 weeks of pregnancy from the CVS. I ended up getting an infection from the procedure, which attacked my placenta, causing it to detach, which in turn caused me to miscarry our daughter Rylie, who weighed 6 oz. and was 8 in. long... 10 fingers, 10 toes, and long legs like mine! She was beautiful!
My story is not to scare you, but to just make you aware of the risks you take with this procedure. I can say I konw regret ever having had that procedure done, but at that time, it is what we felt we needed to do.
Good luck with your decision. I know it is not an easy one to make. Feel free to PM me if you have any other questions. You will be in my thoughts.
My story is not to scare you, but to just make you aware of the risks you take with this procedure. I can say I konw regret ever having had that procedure done, but at that time, it is what we felt we needed to do.
Good luck with your decision. I know it is not an easy one to make. Feel free to PM me if you have any other questions. You will be in my thoughts.
truckin4tucker
New member
I can relate to what you are going through. My husband and I have a 6 year old son with CF and a 3 year old daughter w/o CF, who was adopted. Our son was diagnosed at one week of age through the newborn screening process. We decided when he was 2 that we were going to have one more child. However, at the time, we wanted to emotionally prepare ourselves for the possibility of having a second child with CF. So, we had a CVS done at 10 or 11 weeks of the pregnancy. We found out a week later, the baby did not have CF and was only a carrier of the CF gene. What a relief! Unfortunately a few weeks after the procedure I began to get really sick. To make a long story short, I ended up being one of the .08% of the people that suffered a miscarriage at 20 weeks of pregnancy from the CVS. I ended up getting an infection from the procedure, which attacked my placenta, causing it to detach, which in turn caused me to miscarry our daughter Rylie, who weighed 6 oz. and was 8 in. long... 10 fingers, 10 toes, and long legs like mine! She was beautiful!
My story is not to scare you, but to just make you aware of the risks you take with this procedure. I can say I konw regret ever having had that procedure done, but at that time, it is what we felt we needed to do.
Good luck with your decision. I know it is not an easy one to make. Feel free to PM me if you have any other questions. You will be in my thoughts.
My story is not to scare you, but to just make you aware of the risks you take with this procedure. I can say I konw regret ever having had that procedure done, but at that time, it is what we felt we needed to do.
Good luck with your decision. I know it is not an easy one to make. Feel free to PM me if you have any other questions. You will be in my thoughts.