Thank You

[osterholz88]

I just found out four days ago that I am a carrier for CF. Came as a complete surprise since this had never been brought up in my family before. But I'm not sure anyone has ever been tested for carrier status in the past either. I am 10 weeks pregnant and the test was run as part of my bloodwork (I had no idea the test was going to be run). I spent two days crying about it and then found this forum. I cannot thank you enough! My knowledge of CF prior to reading this forum was that it was a horrible disease that required lots of pounding on your back and resulted in death by 20. I just couldn't imagine having a child with that death sentence. What I have learned though, is that people with CF cope with the disease, treatments are greatly improved, and life expectancy is much longer than I thought! We are waiting on my husband's test results, and I still pray that he is not a carrier, but if he is, this forum has helped me to realize that if we are both carriers and both pass on the gene, we can cope with what happens. So again, I say thank you! Four days ago, I felt hopeless. Today, I feel optimistic!

 

[osterholz88]

I just found out four days ago that I am a carrier for CF. Came as a complete surprise since this had never been brought up in my family before. But I'm not sure anyone has ever been tested for carrier status in the past either. I am 10 weeks pregnant and the test was run as part of my bloodwork (I had no idea the test was going to be run). I spent two days crying about it and then found this forum. I cannot thank you enough! My knowledge of CF prior to reading this forum was that it was a horrible disease that required lots of pounding on your back and resulted in death by 20. I just couldn't imagine having a child with that death sentence. What I have learned though, is that people with CF cope with the disease, treatments are greatly improved, and life expectancy is much longer than I thought! We are waiting on my husband's test results, and I still pray that he is not a carrier, but if he is, this forum has helped me to realize that if we are both carriers and both pass on the gene, we can cope with what happens. So again, I say thank you! Four days ago, I felt hopeless. Today, I feel optimistic!

 

[osterholz88]

I just found out four days ago that I am a carrier for CF. Came as a complete surprise since this had never been brought up in my family before. But I'm not sure anyone has ever been tested for carrier status in the past either. I am 10 weeks pregnant and the test was run as part of my bloodwork (I had no idea the test was going to be run). I spent two days crying about it and then found this forum. I cannot thank you enough! My knowledge of CF prior to reading this forum was that it was a horrible disease that required lots of pounding on your back and resulted in death by 20. I just couldn't imagine having a child with that death sentence. What I have learned though, is that people with CF cope with the disease, treatments are greatly improved, and life expectancy is much longer than I thought! We are waiting on my husband's test results, and I still pray that he is not a carrier, but if he is, this forum has helped me to realize that if we are both carriers and both pass on the gene, we can cope with what happens. So again, I say thank you! Four days ago, I felt hopeless. Today, I feel optimistic!

 

[osterholz88]

I just found out four days ago that I am a carrier for CF. Came as a complete surprise since this had never been brought up in my family before. But I'm not sure anyone has ever been tested for carrier status in the past either. I am 10 weeks pregnant and the test was run as part of my bloodwork (I had no idea the test was going to be run). I spent two days crying about it and then found this forum. I cannot thank you enough! My knowledge of CF prior to reading this forum was that it was a horrible disease that required lots of pounding on your back and resulted in death by 20. I just couldn't imagine having a child with that death sentence. What I have learned though, is that people with CF cope with the disease, treatments are greatly improved, and life expectancy is much longer than I thought! We are waiting on my husband's test results, and I still pray that he is not a carrier, but if he is, this forum has helped me to realize that if we are both carriers and both pass on the gene, we can cope with what happens. So again, I say thank you! Four days ago, I felt hopeless. Today, I feel optimistic!

 

[osterholz88]

I just found out four days ago that I am a carrier for CF. Came as a complete surprise since this had never been brought up in my family before. But I'm not sure anyone has ever been tested for carrier status in the past either. I am 10 weeks pregnant and the test was run as part of my bloodwork (I had no idea the test was going to be run). I spent two days crying about it and then found this forum. I cannot thank you enough! My knowledge of CF prior to reading this forum was that it was a horrible disease that required lots of pounding on your back and resulted in death by 20. I just couldn't imagine having a child with that death sentence. What I have learned though, is that people with CF cope with the disease, treatments are greatly improved, and life expectancy is much longer than I thought! We are waiting on my husband's test results, and I still pray that he is not a carrier, but if he is, this forum has helped me to realize that if we are both carriers and both pass on the gene, we can cope with what happens. So again, I say thank you! Four days ago, I felt hopeless. Today, I feel optimistic!

 

[JazzysMom]

There is a HUGE # of CF diagnoses that have no known family history. First remember that genetic testing only started in the last 20 years so anything before that was hit & miss.

Most people before the genetic testing had to show symptoms & hope that the sweat test would show clear cut results. We have since found out that there are many "iffy" answers from the sweat test.

I advocate for newborn & routine OB screening for ALL US states to include CF screening in their panels of tests. We still have a way to go, but its getting there.


Be sure to let us know when your husbands results come back. I am glad that the forum has been a help so far!

 

[JazzysMom]

There is a HUGE # of CF diagnoses that have no known family history. First remember that genetic testing only started in the last 20 years so anything before that was hit & miss.

Most people before the genetic testing had to show symptoms & hope that the sweat test would show clear cut results. We have since found out that there are many "iffy" answers from the sweat test.

I advocate for newborn & routine OB screening for ALL US states to include CF screening in their panels of tests. We still have a way to go, but its getting there.


Be sure to let us know when your husbands results come back. I am glad that the forum has been a help so far!

 

[JazzysMom]

There is a HUGE # of CF diagnoses that have no known family history. First remember that genetic testing only started in the last 20 years so anything before that was hit & miss.

Most people before the genetic testing had to show symptoms & hope that the sweat test would show clear cut results. We have since found out that there are many "iffy" answers from the sweat test.

I advocate for newborn & routine OB screening for ALL US states to include CF screening in their panels of tests. We still have a way to go, but its getting there.


Be sure to let us know when your husbands results come back. I am glad that the forum has been a help so far!

 

[JazzysMom]

There is a HUGE # of CF diagnoses that have no known family history. First remember that genetic testing only started in the last 20 years so anything before that was hit & miss.

Most people before the genetic testing had to show symptoms & hope that the sweat test would show clear cut results. We have since found out that there are many "iffy" answers from the sweat test.

I advocate for newborn & routine OB screening for ALL US states to include CF screening in their panels of tests. We still have a way to go, but its getting there.


Be sure to let us know when your husbands results come back. I am glad that the forum has been a help so far!

 

[JazzysMom]

There is a HUGE # of CF diagnoses that have no known family history. First remember that genetic testing only started in the last 20 years so anything before that was hit & miss.
<br />
<br />Most people before the genetic testing had to show symptoms & hope that the sweat test would show clear cut results. We have since found out that there are many "iffy" answers from the sweat test.
<br />
<br />I advocate for newborn & routine OB screening for ALL US states to include CF screening in their panels of tests. We still have a way to go, but its getting there.
<br />
<br />
<br />Be sure to let us know when your husbands results come back. I am glad that the forum has been a help so far!

 

[CaliSally]

I'm so glad you found us and that you found hope through us. <img src="i/expressions/face-icon-small-smile.gif" border="0">

CF has made huge advances. ...Better ways of treating and managing the disease, allowing those with CF to live longer and healthier.

The key to treating CF is <u>prevention</u>. I would be much healthier than I am now, had I been instructed about prevention (doing treatments whether or not you have symptoms). Nonetheless, I turned 42 last month!

I hope your hubby's tests are negative. Please keep us posted!

Best Wishes <img src="i/expressions/heart.gif" border="0">

 

[CaliSally]

I'm so glad you found us and that you found hope through us. <img src="i/expressions/face-icon-small-smile.gif" border="0">

CF has made huge advances. ...Better ways of treating and managing the disease, allowing those with CF to live longer and healthier.

The key to treating CF is <u>prevention</u>. I would be much healthier than I am now, had I been instructed about prevention (doing treatments whether or not you have symptoms). Nonetheless, I turned 42 last month!

I hope your hubby's tests are negative. Please keep us posted!

Best Wishes <img src="i/expressions/heart.gif" border="0">

 

[CaliSally]

I'm so glad you found us and that you found hope through us. <img src="i/expressions/face-icon-small-smile.gif" border="0">

CF has made huge advances. ...Better ways of treating and managing the disease, allowing those with CF to live longer and healthier.

The key to treating CF is <u>prevention</u>. I would be much healthier than I am now, had I been instructed about prevention (doing treatments whether or not you have symptoms). Nonetheless, I turned 42 last month!

I hope your hubby's tests are negative. Please keep us posted!

Best Wishes <img src="i/expressions/heart.gif" border="0">

 

[CaliSally]

I'm so glad you found us and that you found hope through us. <img src="i/expressions/face-icon-small-smile.gif" border="0">

CF has made huge advances. ...Better ways of treating and managing the disease, allowing those with CF to live longer and healthier.

The key to treating CF is <u>prevention</u>. I would be much healthier than I am now, had I been instructed about prevention (doing treatments whether or not you have symptoms). Nonetheless, I turned 42 last month!

I hope your hubby's tests are negative. Please keep us posted!

Best Wishes <img src="i/expressions/heart.gif" border="0">

 

[CaliSally]

I'm so glad you found us and that you found hope through us. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />CF has made huge advances. ...Better ways of treating and managing the disease, allowing those with CF to live longer and healthier.
<br />
<br />The key to treating CF is <u>prevention</u>. I would be much healthier than I am now, had I been instructed about prevention (doing treatments whether or not you have symptoms). Nonetheless, I turned 42 last month!
<br />
<br />I hope your hubby's tests are negative. Please keep us posted!
<br />
<br />Best Wishes <img src="i/expressions/heart.gif" border="0">

 

[JORDYSMOM]

Welcome! I am glad you found us. This site is great, and I can't imagine dealing with this disease without the help of the people here. Please keep us posted on you guys.

Stacey

 

[JORDYSMOM]

Welcome! I am glad you found us. This site is great, and I can't imagine dealing with this disease without the help of the people here. Please keep us posted on you guys.

Stacey

 

[JORDYSMOM]

Welcome! I am glad you found us. This site is great, and I can't imagine dealing with this disease without the help of the people here. Please keep us posted on you guys.

Stacey

 

[JORDYSMOM]

Welcome! I am glad you found us. This site is great, and I can't imagine dealing with this disease without the help of the people here. Please keep us posted on you guys.

Stacey

 

[JORDYSMOM]

Welcome! I am glad you found us. This site is great, and I can't imagine dealing with this disease without the help of the people here. Please keep us posted on you guys.
<br />
<br />Stacey