juliesdreamteam
New member
Just wanted to take a second to thank everyone that has offered thoughts and prayers for my Julie, here on CF.com. This is a wonderful site and we're lucky to have it as a means to share and assist each other.
We know as CF families that only another CF family can truly "know" what its like. It ain't easy at all. But we press forward. Our loved ones with CF don't get a break from CF and we, through our love of them, can do little more than be supportive and praying for a cure to be found.
Speaking of which........I know a lot of you have/will be taking Great Strides. Julie's Dream Team has grown into something truly phenomenal. Roughly 1700 people across America have learned more about CF and has helped JDT raise approximately $50,000 for CF research. The beauty of this is that we asked these wonderful people to spend their money on themselves at local restaurants. They did so in DROVES! The restraunts donated 20% directly to our CF Foundation.
Our target for Great Strides is $75K. I really think we're going to nail it down. 600 will walk with us at the Louisville Great Strides and JDT has 13 sister teams walking in 10 states. We are truly honored to have friends that would give their time to help my Julie and by proxy, help all of those with CF.
We're about 20 people away from 1700 members on our FaceBook group. If you all would like to join us, visit www.juliesdreamteam.com and click on the FaceBook icon....it'll take you right to the page.
Thanks again to all of you for your continued passion in finding a cure. My gut tells me that we are VERY close to a levy breaking flood of new meds. VX-770 appears to be having amazing results in that 4% group that it will help. Keep praying and pressing forward. Until the day comes that we can say Cure Found, thanks for being there for each other!
God Bless,
Roy E. Ice
Julie's Dream Team
We know as CF families that only another CF family can truly "know" what its like. It ain't easy at all. But we press forward. Our loved ones with CF don't get a break from CF and we, through our love of them, can do little more than be supportive and praying for a cure to be found.
Speaking of which........I know a lot of you have/will be taking Great Strides. Julie's Dream Team has grown into something truly phenomenal. Roughly 1700 people across America have learned more about CF and has helped JDT raise approximately $50,000 for CF research. The beauty of this is that we asked these wonderful people to spend their money on themselves at local restaurants. They did so in DROVES! The restraunts donated 20% directly to our CF Foundation.
Our target for Great Strides is $75K. I really think we're going to nail it down. 600 will walk with us at the Louisville Great Strides and JDT has 13 sister teams walking in 10 states. We are truly honored to have friends that would give their time to help my Julie and by proxy, help all of those with CF.
We're about 20 people away from 1700 members on our FaceBook group. If you all would like to join us, visit www.juliesdreamteam.com and click on the FaceBook icon....it'll take you right to the page.
Thanks again to all of you for your continued passion in finding a cure. My gut tells me that we are VERY close to a levy breaking flood of new meds. VX-770 appears to be having amazing results in that 4% group that it will help. Keep praying and pressing forward. Until the day comes that we can say Cure Found, thanks for being there for each other!
God Bless,
Roy E. Ice
Julie's Dream Team