I have just been reading lots of posts . I have not been on here for ages but those who remember me ..I am Preciousjewel . Paula ..Mum to Ruby aged 8 1/2 mths.I never get the time with 2 little ones.
I will never forget how you all helped me when Ruby was first diagonised.. You where all brill..esp. Jazzys Mom and Emily 65 roses Mum.. I remember your first posts and they really really reasurred me so thanks for that. I hope you are all keeping well. Emily i hope you are ok too x x Erins mommy - I hope Erin is doing well x x x
I now tend to use the Uk Trust site as the meds are all the same over here... We still have a wierdo called Sean Davis talking about Oregano Oil though!!! He says he is from the US... Maybe he uses this site too. Hey its working for him though x x
Anyway thanks again........The gene Therapy trials which sound so promising are starting next yr 2006 so things look great x
Paula x
I will never forget how you all helped me when Ruby was first diagonised.. You where all brill..esp. Jazzys Mom and Emily 65 roses Mum.. I remember your first posts and they really really reasurred me so thanks for that. I hope you are all keeping well. Emily i hope you are ok too x x Erins mommy - I hope Erin is doing well x x x
I now tend to use the Uk Trust site as the meds are all the same over here... We still have a wierdo called Sean Davis talking about Oregano Oil though!!! He says he is from the US... Maybe he uses this site too. Hey its working for him though x x
Anyway thanks again........The gene Therapy trials which sound so promising are starting next yr 2006 so things look great x
Paula x