Thanks x

anonymous

New member
I have just been reading lots of posts . I have not been on here for ages but those who remember me ..I am Preciousjewel . Paula ..Mum to Ruby aged 8 1/2 mths.I never get the time with 2 little ones.
I will never forget how you all helped me when Ruby was first diagonised.. You where all brill..esp. Jazzys Mom and Emily 65 roses Mum.. I remember your first posts and they really really reasurred me so thanks for that. I hope you are all keeping well. Emily i hope you are ok too x x Erins mommy - I hope Erin is doing well x x x

I now tend to use the Uk Trust site as the meds are all the same over here... We still have a wierdo called Sean Davis talking about Oregano Oil though!!! He says he is from the US... Maybe he uses this site too. Hey its working for him though x x
Anyway thanks again........The gene Therapy trials which sound so promising are starting next yr 2006 so things look great x

Paula x
 

JazzysMom

New member
I LOL at your post about Sean Davis. Yes he has introduced himself & his trial with the alternative care. I personally havent tried these things, but my understanding is some CFers from here have & the last I knew were having good results. I wish them the best. I just found it funny your opinion since some of us have ??? his personality or humour traits. Welcome Back again Paula & I hope to hear more from you! I am also happy to hear that you found another site in which the meds are similiar for you. That does make it easier to understand especially when new to the CF scene!
 
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