Thoughts on internet education increasing health

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welshwitch

Guest
Maybe this does not apply to everyone, as CF is a tough disease and can strike at anytime. However, for me it is pretty manageable, and I feel like I have really gotten more control over it since I have become more proactive with it. Since I became a "member" of this website last year...

*my PFTs have improved 5%
*I started taking pulmozyme every day, instead of sporadically
*I got rid of my car and started biking everywhere, increasing my physical fitness
*I finally learned how to get ADEKs mailed to me
*I have become more assertive with my doctor
*I have become less afraid in general

One thing that really helps is logging into this site and troubleshooting things and "checking in" with myself and others....do you think that internet medicine and e-patients will improve lifespans for people w. CF and other conditions?
 
W

welshwitch

Guest
Maybe this does not apply to everyone, as CF is a tough disease and can strike at anytime. However, for me it is pretty manageable, and I feel like I have really gotten more control over it since I have become more proactive with it. Since I became a "member" of this website last year...

*my PFTs have improved 5%
*I started taking pulmozyme every day, instead of sporadically
*I got rid of my car and started biking everywhere, increasing my physical fitness
*I finally learned how to get ADEKs mailed to me
*I have become more assertive with my doctor
*I have become less afraid in general

One thing that really helps is logging into this site and troubleshooting things and "checking in" with myself and others....do you think that internet medicine and e-patients will improve lifespans for people w. CF and other conditions?
 
W

welshwitch

Guest
Maybe this does not apply to everyone, as CF is a tough disease and can strike at anytime. However, for me it is pretty manageable, and I feel like I have really gotten more control over it since I have become more proactive with it. Since I became a "member" of this website last year...

*my PFTs have improved 5%
*I started taking pulmozyme every day, instead of sporadically
*I got rid of my car and started biking everywhere, increasing my physical fitness
*I finally learned how to get ADEKs mailed to me
*I have become more assertive with my doctor
*I have become less afraid in general

One thing that really helps is logging into this site and troubleshooting things and "checking in" with myself and others....do you think that internet medicine and e-patients will improve lifespans for people w. CF and other conditions?
 
W

welshwitch

Guest
Maybe this does not apply to everyone, as CF is a tough disease and can strike at anytime. However, for me it is pretty manageable, and I feel like I have really gotten more control over it since I have become more proactive with it. Since I became a "member" of this website last year...

*my PFTs have improved 5%
*I started taking pulmozyme every day, instead of sporadically
*I got rid of my car and started biking everywhere, increasing my physical fitness
*I finally learned how to get ADEKs mailed to me
*I have become more assertive with my doctor
*I have become less afraid in general

One thing that really helps is logging into this site and troubleshooting things and "checking in" with myself and others....do you think that internet medicine and e-patients will improve lifespans for people w. CF and other conditions?
 
W

welshwitch

Guest
Maybe this does not apply to everyone, as CF is a tough disease and can strike at anytime. However, for me it is pretty manageable, and I feel like I have really gotten more control over it since I have become more proactive with it. Since I became a "member" of this website last year...
<br />
<br />*my PFTs have improved 5%
<br />*I started taking pulmozyme every day, instead of sporadically
<br />*I got rid of my car and started biking everywhere, increasing my physical fitness
<br />*I finally learned how to get ADEKs mailed to me
<br />*I have become more assertive with my doctor
<br />*I have become less afraid in general
<br />
<br />One thing that really helps is logging into this site and troubleshooting things and "checking in" with myself and others....do you think that internet medicine and e-patients will improve lifespans for people w. CF and other conditions?
 

JazzysMom

New member
My health hasnt improved, but I am definitely more educated. I am aware of things I wasnt, I am looking for things I never heard of & I am more prepared thanks to both!
 

JazzysMom

New member
My health hasnt improved, but I am definitely more educated. I am aware of things I wasnt, I am looking for things I never heard of & I am more prepared thanks to both!
 

JazzysMom

New member
My health hasnt improved, but I am definitely more educated. I am aware of things I wasnt, I am looking for things I never heard of & I am more prepared thanks to both!
 

JazzysMom

New member
My health hasnt improved, but I am definitely more educated. I am aware of things I wasnt, I am looking for things I never heard of & I am more prepared thanks to both!
 

JazzysMom

New member
My health hasnt improved, but I am definitely more educated. I am aware of things I wasnt, I am looking for things I never heard of & I am more prepared thanks to both!
 

barbc888

New member
My health has not improved, but I've learned so much from everyone here. Like welshwitch, I've become more assertive when it comes to my health and what I want and need. Bottom line, this site brings me some peace of mind and education.
 

barbc888

New member
My health has not improved, but I've learned so much from everyone here. Like welshwitch, I've become more assertive when it comes to my health and what I want and need. Bottom line, this site brings me some peace of mind and education.
 

barbc888

New member
My health has not improved, but I've learned so much from everyone here. Like welshwitch, I've become more assertive when it comes to my health and what I want and need. Bottom line, this site brings me some peace of mind and education.
 

barbc888

New member
My health has not improved, but I've learned so much from everyone here. Like welshwitch, I've become more assertive when it comes to my health and what I want and need. Bottom line, this site brings me some peace of mind and education.
 

barbc888

New member
My health has not improved, but I've learned so much from everyone here. Like welshwitch, I've become more assertive when it comes to my health and what I want and need. Bottom line, this site brings me some peace of mind and education.
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Emily65Roses

New member
It seems easier for me sometimes to get off my ass and go get nebs when everyone else is going "hang on must get nebs". It's like "yeah okay me too". But other than that, nope. I just like having you people around to bounce stuff off of... and primarily I like to go into chat and play. <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Emily65Roses

New member
It seems easier for me sometimes to get off my ass and go get nebs when everyone else is going "hang on must get nebs". It's like "yeah okay me too". But other than that, nope. I just like having you people around to bounce stuff off of... and primarily I like to go into chat and play. <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Emily65Roses

New member
It seems easier for me sometimes to get off my ass and go get nebs when everyone else is going "hang on must get nebs". It's like "yeah okay me too". But other than that, nope. I just like having you people around to bounce stuff off of... and primarily I like to go into chat and play. <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Emily65Roses

New member
It seems easier for me sometimes to get off my ass and go get nebs when everyone else is going "hang on must get nebs". It's like "yeah okay me too". But other than that, nope. I just like having you people around to bounce stuff off of... and primarily I like to go into chat and play. <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Emily65Roses

New member
It seems easier for me sometimes to get off my ass and go get nebs when everyone else is going "hang on must get nebs". It's like "yeah okay me too". But other than that, nope. I just like having you people around to bounce stuff off of... and primarily I like to go into chat and play. <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
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