M
Mommafirst
Guest
SIX weeks ago we had clinic. Alyssa was prescribed pulmozyme. We got a months amount for free overnighted to us by the company. But when we got the pulmozyme we discovered that our compressor we were using for albuterol isn't on the approved list.
SO I called the CF center after her first dose and they said, yeah you'll need a new compressor. So I worked very closely with the RT to figure out what to get. We decided on a hospital grade 50psi compressor so that it would be good for any medicine that comes our way in the upcoming years. We got approval from our insurance company that they will cover the better machine. Our RT called the medical company that gets the machine and they majorly dropped the ball.
Weeks went by and I finally called to check on it. AFter much research, they realized it was on back order. Okay, how long will it take to come in. I don't know, I'll get back to you they told me. They didn't.
So I called again, this time they still don't know how much longer it will take. I made a bit of a fuss, straight out saying I have a kid with a lung disease, I can't wait indefinitely for this machine. So they are offerring to lend us one of theirs until a new one comes in. I'm not sure how I feel about this.
How will this compromise her germ wise??? If another CFer used the machine is it dangerous or the same as using the air in the hospital???? What should I do here?
SO I called the CF center after her first dose and they said, yeah you'll need a new compressor. So I worked very closely with the RT to figure out what to get. We decided on a hospital grade 50psi compressor so that it would be good for any medicine that comes our way in the upcoming years. We got approval from our insurance company that they will cover the better machine. Our RT called the medical company that gets the machine and they majorly dropped the ball.
Weeks went by and I finally called to check on it. AFter much research, they realized it was on back order. Okay, how long will it take to come in. I don't know, I'll get back to you they told me. They didn't.
So I called again, this time they still don't know how much longer it will take. I made a bit of a fuss, straight out saying I have a kid with a lung disease, I can't wait indefinitely for this machine. So they are offerring to lend us one of theirs until a new one comes in. I'm not sure how I feel about this.
How will this compromise her germ wise??? If another CFer used the machine is it dangerous or the same as using the air in the hospital???? What should I do here?