tinamarie is listed

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LouLou

New member
Hi, I just read online that TinaMarie who hasn't posted here in a while is listed for transplant. She was a frequent contributor at one point and I enjoyed her posts and pics of daughter Breanne who is probably about 2.5 yrs old.

I just wanted to wish her good luck and ask that every lift her up in prayer or well wishes.
 
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LouLou

New member
Hi, I just read online that TinaMarie who hasn't posted here in a while is listed for transplant. She was a frequent contributor at one point and I enjoyed her posts and pics of daughter Breanne who is probably about 2.5 yrs old.

I just wanted to wish her good luck and ask that every lift her up in prayer or well wishes.
 
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LouLou

New member
Hi, I just read online that TinaMarie who hasn't posted here in a while is listed for transplant. She was a frequent contributor at one point and I enjoyed her posts and pics of daughter Breanne who is probably about 2.5 yrs old.
<br />
<br />I just wanted to wish her good luck and ask that every lift her up in prayer or well wishes.
 
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my65roses4me

New member
Hi Lou Lou,
I am sorry to hear about Tina, I do remember her from awhile ago and have always liked her. Its so odd how it was so sudden. I wish we knew more info about her passing.
I just have a suggestion for you and I hope you dont take this the wrong way.
You have posted a couple times about the passing and or transplants of other CF mommies in this section. I myself find it very discouraging to read these kind of posts in the pregnancy section. I know it a real probable outcome for all of us that want to be or already are CF patients with kids, to some day leave them behind. I find that part very sad and the most frustrating thing about having CF. But when I come to the pregnancy section, I come for ideas and support about becoming a mom. I dont want to come hear to read about other's passing.
Maybe we can suggest another section to be added about CF parents and maybe be able to have a place to express our sadness over the losses and or hopes for a good outcome of transplant. But I just dont feel that the pregnancy section is the appropriate place for it. I hope you understand what I mean. I never speak up here about this kind of stuff but this one really brought me down. Thanks for your consideration!!
Much love
Khristina
 
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my65roses4me

New member
Hi Lou Lou,
I am sorry to hear about Tina, I do remember her from awhile ago and have always liked her. Its so odd how it was so sudden. I wish we knew more info about her passing.
I just have a suggestion for you and I hope you dont take this the wrong way.
You have posted a couple times about the passing and or transplants of other CF mommies in this section. I myself find it very discouraging to read these kind of posts in the pregnancy section. I know it a real probable outcome for all of us that want to be or already are CF patients with kids, to some day leave them behind. I find that part very sad and the most frustrating thing about having CF. But when I come to the pregnancy section, I come for ideas and support about becoming a mom. I dont want to come hear to read about other's passing.
Maybe we can suggest another section to be added about CF parents and maybe be able to have a place to express our sadness over the losses and or hopes for a good outcome of transplant. But I just dont feel that the pregnancy section is the appropriate place for it. I hope you understand what I mean. I never speak up here about this kind of stuff but this one really brought me down. Thanks for your consideration!!
Much love
Khristina
 
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my65roses4me

New member
Hi Lou Lou,
<br />I am sorry to hear about Tina, I do remember her from awhile ago and have always liked her. Its so odd how it was so sudden. I wish we knew more info about her passing.
<br />I just have a suggestion for you and I hope you dont take this the wrong way.
<br />You have posted a couple times about the passing and or transplants of other CF mommies in this section. I myself find it very discouraging to read these kind of posts in the pregnancy section. I know it a real probable outcome for all of us that want to be or already are CF patients with kids, to some day leave them behind. I find that part very sad and the most frustrating thing about having CF. But when I come to the pregnancy section, I come for ideas and support about becoming a mom. I dont want to come hear to read about other's passing.
<br />Maybe we can suggest another section to be added about CF parents and maybe be able to have a place to express our sadness over the losses and or hopes for a good outcome of transplant. But I just dont feel that the pregnancy section is the appropriate place for it. I hope you understand what I mean. I never speak up here about this kind of stuff but this one really brought me down. Thanks for your consideration!!
<br />Much love
<br />Khristina
 
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LouLou

New member
K, What, she passed? My post did not state this at all. Okay just read Candices very generically titled post over in adults. Many people visited only this section over the years so they might have appreciated seeing the news. Also Tina wasn't active anywhere other than the preg section. Nor was Charlotte who I asked about too. For many of us the preg section is more of a "parenting with cf" section so I feel this post totally pertinent and on subject. I think this falls under the topic of if you don't like the topic don't read the post. Once you go through pregnancy (and maybe even before??) you feel this sort of kinship with other cf moms. Transplant is all just part of the process and let's just face it pregnancy and child-rearing can speed along the need for some. It ain't all happy news I'm afraid.
 
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LouLou

New member
K, What, she passed? My post did not state this at all. Okay just read Candices very generically titled post over in adults. Many people visited only this section over the years so they might have appreciated seeing the news. Also Tina wasn't active anywhere other than the preg section. Nor was Charlotte who I asked about too. For many of us the preg section is more of a "parenting with cf" section so I feel this post totally pertinent and on subject. I think this falls under the topic of if you don't like the topic don't read the post. Once you go through pregnancy (and maybe even before??) you feel this sort of kinship with other cf moms. Transplant is all just part of the process and let's just face it pregnancy and child-rearing can speed along the need for some. It ain't all happy news I'm afraid.
 
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LouLou

New member
K, What, she passed? My post did not state this at all. Okay just read Candices very generically titled post over in adults. Many people visited only this section over the years so they might have appreciated seeing the news. Also Tina wasn't active anywhere other than the preg section. Nor was Charlotte who I asked about too. For many of us the preg section is more of a "parenting with cf" section so I feel this post totally pertinent and on subject. I think this falls under the topic of if you don't like the topic don't read the post. Once you go through pregnancy (and maybe even before??) you feel this sort of kinship with other cf moms. Transplant is all just part of the process and let's just face it pregnancy and child-rearing can speed along the need for some. It ain't all happy news I'm afraid.
 
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Melissa75

Administrator
I have written this post about three times, so I hope I hit the right tone and I am super sorry if I don't...and lots of hugs too for how sad we all are.

Forums and message boards try to divide by information, but people tend to divide themselves as well, and it is tricky say what is more important: categorizing the info or relaying important news. This posting made me very sad too, but this is where Tinamarie hung out, and this is where people who would know of her probably still hang out. I was mostly a lurker when she was pregnant, but I remember she had a subchorionic hemorrhage, which I also had when I was pregnant.

While I understand wanting to get different forums focused on different subject matter, I did appreciate hearing about her here, because had this been posted in Transplants or Prayer Requests, I would never have seen it. Also, I think it would be just as upsetting for a person to post in a hypothetical Parenting with CF category about a fellow parent who is listed or has passed. Nonetheless if that were the forum that the person was "known" it would make sense to me to convey the news there. This is just my opinion...two cents...
 
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Melissa75

Administrator
I have written this post about three times, so I hope I hit the right tone and I am super sorry if I don't...and lots of hugs too for how sad we all are.

Forums and message boards try to divide by information, but people tend to divide themselves as well, and it is tricky say what is more important: categorizing the info or relaying important news. This posting made me very sad too, but this is where Tinamarie hung out, and this is where people who would know of her probably still hang out. I was mostly a lurker when she was pregnant, but I remember she had a subchorionic hemorrhage, which I also had when I was pregnant.

While I understand wanting to get different forums focused on different subject matter, I did appreciate hearing about her here, because had this been posted in Transplants or Prayer Requests, I would never have seen it. Also, I think it would be just as upsetting for a person to post in a hypothetical Parenting with CF category about a fellow parent who is listed or has passed. Nonetheless if that were the forum that the person was "known" it would make sense to me to convey the news there. This is just my opinion...two cents...
 
M

Melissa75

Administrator
I have written this post about three times, so I hope I hit the right tone and I am super sorry if I don't...and lots of hugs too for how sad we all are.
<br />
<br />Forums and message boards try to divide by information, but people tend to divide themselves as well, and it is tricky say what is more important: categorizing the info or relaying important news. This posting made me very sad too, but this is where Tinamarie hung out, and this is where people who would know of her probably still hang out. I was mostly a lurker when she was pregnant, but I remember she had a subchorionic hemorrhage, which I also had when I was pregnant.
<br />
<br />While I understand wanting to get different forums focused on different subject matter, I did appreciate hearing about her here, because had this been posted in Transplants or Prayer Requests, I would never have seen it. Also, I think it would be just as upsetting for a person to post in a hypothetical Parenting with CF category about a fellow parent who is listed or has passed. Nonetheless if that were the forum that the person was "known" it would make sense to me to convey the news there. This is just my opinion...two cents...
 
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my65roses4me

New member
I think I will recommend to the web host to start a section with the title "parenting with CF". I think that it would be great to have a section like this to gain support from other parents that are affected by this horrible disease. I dont think I am trying to gain only good news as I know that CF isn't always good. CF sucks and there are so many aspects to this disease that we all have in common. I totally agree that pregnancy and child rearing does speed along the need for a transplant.
So I will make it a goal to try to get another section for you all that are already blessed with children of your own.
 
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my65roses4me

New member
I think I will recommend to the web host to start a section with the title "parenting with CF". I think that it would be great to have a section like this to gain support from other parents that are affected by this horrible disease. I dont think I am trying to gain only good news as I know that CF isn't always good. CF sucks and there are so many aspects to this disease that we all have in common. I totally agree that pregnancy and child rearing does speed along the need for a transplant.
So I will make it a goal to try to get another section for you all that are already blessed with children of your own.
 
M

my65roses4me

New member
I think I will recommend to the web host to start a section with the title "parenting with CF". I think that it would be great to have a section like this to gain support from other parents that are affected by this horrible disease. I dont think I am trying to gain only good news as I know that CF isn't always good. CF sucks and there are so many aspects to this disease that we all have in common. I totally agree that pregnancy and child rearing does speed along the need for a transplant.
<br />So I will make it a goal to try to get another section for you all that are already blessed with children of your own.
 
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littlemisssilly

Guest
This thread was started to pass on information about a member who, was a mother with CF. It naturally belongs in this section. Now this thread is overtaken by people's sensitivities and I think that that is a shame.

I persoanlly don't want another section that seperates pregnancy / childbirth from parenting, the two seem to me, to be so related that it makes no sense to seprarte them. I, now 25 weeks pregnant, love coming to this forum and reading all the posts from pregnancy through to how all these amazing women juggle having children and cf.
 
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littlemisssilly

Guest
This thread was started to pass on information about a member who, was a mother with CF. It naturally belongs in this section. Now this thread is overtaken by people's sensitivities and I think that that is a shame.

I persoanlly don't want another section that seperates pregnancy / childbirth from parenting, the two seem to me, to be so related that it makes no sense to seprarte them. I, now 25 weeks pregnant, love coming to this forum and reading all the posts from pregnancy through to how all these amazing women juggle having children and cf.
 
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littlemisssilly

Guest
This thread was started to pass on information about a member who, was a mother with CF. It naturally belongs in this section. Now this thread is overtaken by people's sensitivities and I think that that is a shame.
<br />
<br />I persoanlly don't want another section that seperates pregnancy / childbirth from parenting, the two seem to me, to be so related that it makes no sense to seprarte them. I, now 25 weeks pregnant, love coming to this forum and reading all the posts from pregnancy through to how all these amazing women juggle having children and cf.
 
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