My daughter (11) was hospitalized last yr for the 1st time, for exacerbation. She dropped 15lbs in about 2 months, which put her at 50 lbs. she had no appetite, would get nauseated when trying to eat, vomiting, low lung function 50%, diagnosed with CFRD, all kinds of stuff. It took her a year to regain her weight & strength. She had to go back in for a tune up this feb. 2 wks in hospital, then another 2 wks on home IV. Since then she has gone up to 79 lbs & her lung function was 104% (highest it's ever been), and no longer needing insulin.
Recently, she's lost about 5 lbs, since her last appt on 7/9. Her appetite has decreased. She said she feels bloated when eating & can't eat much. Her BMs are regular, no vomiting, or anything else like last year. She's still very active.
I've been giving her gas x 2x a day to help with the bloating. She takes a capful of miralax daily. She gets periactin 2x a day to increase appetite, but I don't feel like it's working anymore.
I'm wondering what else I can do for her. Or if she needs a clean-out. Or something else.
Anyone experience these symptoms, and have any advice??
Thanks in advance.
Recently, she's lost about 5 lbs, since her last appt on 7/9. Her appetite has decreased. She said she feels bloated when eating & can't eat much. Her BMs are regular, no vomiting, or anything else like last year. She's still very active.
I've been giving her gas x 2x a day to help with the bloating. She takes a capful of miralax daily. She gets periactin 2x a day to increase appetite, but I don't feel like it's working anymore.
I'm wondering what else I can do for her. Or if she needs a clean-out. Or something else.
Anyone experience these symptoms, and have any advice??
Thanks in advance.
