TO EDEN - Hands Pruning in Water

[edan]

Hi Eden,

For some reason on your post I didn't get a reply option. I see the reply button on other threads, so who knows. Anyway, THIS IS EXACTLY WHAT HAPPENS TO MY DAUGHTER.

Except on occassion, the palm of her hand also puffs up as if water is pooling under her skin. Send me a private message with your email and I will send you an article/study done by a researcher in Ireland. To my knowledge, this is the only study done on AWP (aquagenic wrinkling of the palms) and it is not as informative as I would like. I am trying to figure out why my daughter has this, because before diagnosis (in May...she is now almost 4), this never happened to her to such a degree (well, I wasn't looking for it either), but then one day the hands swelled in addition and so now I am hypersensitive to it. For us, I believe it happens either when she has a day of not enough liquids OR after she has been on pulmozyme for an extended use of time. I have taken her off and on twice and after a few weeks it shows up, but I can't rule out the dehydration either. My guess is your doctor won't be able to tell you anything informative about it, but if he/she does, please let me know!!

 

[edan]

Hi Eden,

For some reason on your post I didn't get a reply option. I see the reply button on other threads, so who knows. Anyway, THIS IS EXACTLY WHAT HAPPENS TO MY DAUGHTER.

Except on occassion, the palm of her hand also puffs up as if water is pooling under her skin. Send me a private message with your email and I will send you an article/study done by a researcher in Ireland. To my knowledge, this is the only study done on AWP (aquagenic wrinkling of the palms) and it is not as informative as I would like. I am trying to figure out why my daughter has this, because before diagnosis (in May...she is now almost 4), this never happened to her to such a degree (well, I wasn't looking for it either), but then one day the hands swelled in addition and so now I am hypersensitive to it. For us, I believe it happens either when she has a day of not enough liquids OR after she has been on pulmozyme for an extended use of time. I have taken her off and on twice and after a few weeks it shows up, but I can't rule out the dehydration either. My guess is your doctor won't be able to tell you anything informative about it, but if he/she does, please let me know!!

 

[edan]

Hi Eden,
<br />
<br />For some reason on your post I didn't get a reply option. I see the reply button on other threads, so who knows. Anyway, THIS IS EXACTLY WHAT HAPPENS TO MY DAUGHTER.
<br />
<br />Except on occassion, the palm of her hand also puffs up as if water is pooling under her skin. Send me a private message with your email and I will send you an article/study done by a researcher in Ireland. To my knowledge, this is the only study done on AWP (aquagenic wrinkling of the palms) and it is not as informative as I would like. I am trying to figure out why my daughter has this, because before diagnosis (in May...she is now almost 4), this never happened to her to such a degree (well, I wasn't looking for it either), but then one day the hands swelled in addition and so now I am hypersensitive to it. For us, I believe it happens either when she has a day of not enough liquids OR after she has been on pulmozyme for an extended use of time. I have taken her off and on twice and after a few weeks it shows up, but I can't rule out the dehydration either. My guess is your doctor won't be able to tell you anything informative about it, but if he/she does, please let me know!!