to treat pseudo or not to treat

anonymous

New member
Should it be treated everytime it is cultured or only when there are symptoms? Besides inhaling Tobi or Colistin what else do others do for treating?
 

NoExcuses

New member
Once you culture it, you will probably culture it forever. Unless you are a young child and you're culturing it for the 1st time, or you had it once before, it went away, and now it's back again.

I'm 24 and I think most CFers my age culture it 100% of the time. So by no means do I treat it all the time.

But it has its ways of creeping up. So TOBI or Colistin are good ways of keeping PA levels down so that you don't get an exacerbation.

IV antibiotics are another method to treat a flair up. Tobramycin is a commonly used antibiotic.

Quinolones, naimly Cipro, are effective for some mutations of PA. That's nice because it's a pill and you don't have to be in the hospital.

Hope this helps.
 

anonymous

New member
I didn't culture it until my 20s and then not every time. My doc siad since i was already an adult it wouldn't be eradicated and that since I am not consistently culturing it and my PFTs are not effected, we could hold off on treatment. I think it is different for children - at least the first culture, they try to get rid of it.
 

thelizardqueen

New member
You can't eradicate Pseudo once its colonized (meaning you've had it more then once and its mucoid). The only time I treat Pseudo is when I'm having an active flairup, i.e. chest infection. I usually culture it all the time, but it only gives me a hassle with chest infections. So usually I treat it about 2-3 times a year, sometimes 1.
 

Alyssa

New member
I think it's important to know if you are talking about mucoid or non mucoid PA -- because there is a big difference between the occasional non mucoid infection and being colonized with mucoid PA.

So it is my experience/understanding that many people with non mucoid infection can irradiate it with aggressive treatment (usually something like tobi and cipro.) If you are colonized with mucoid PA the treatment is more of a maintenance kind of thing -- just try and "knock down" the bacteria every so often -- you are in more of a "manage" it type of situation rather than "eradicate" it situation.

In some of the more mild cases, adults have been able to eradicate PA -- my daughter is almost 18, and has had PA once a year ago and it has not returned -- I know of another woman 31 years old (Marci -- on this list as a matter of fact) who has had PA two times in her 20's (once with each pregnancy) and has cleared it both times. She has not tested positive again either.
 
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