Tobi side effects

thefrogprincess

New member
I'm enrolled in a study with Tobi, they want to see if the levels of it build up in the lungs over time. Anyway, I've only ever done a two week course before and honestly was not very good about doing all the doses that time...oops...This time I'm doing much better about that but now I have this permanent weeze going on. And its much worse right after I do a dose of Tobi. I'm two weeks into the study which is a month long all together. I'm wondering if this is normal. I know some people can't use Tobi because it makes them so short of breath. I feel like I'm getting enough air, and albuterol either before or after doesn't seem to help.
 

thefrogprincess

New member
I'm enrolled in a study with Tobi, they want to see if the levels of it build up in the lungs over time. Anyway, I've only ever done a two week course before and honestly was not very good about doing all the doses that time...oops...This time I'm doing much better about that but now I have this permanent weeze going on. And its much worse right after I do a dose of Tobi. I'm two weeks into the study which is a month long all together. I'm wondering if this is normal. I know some people can't use Tobi because it makes them so short of breath. I feel like I'm getting enough air, and albuterol either before or after doesn't seem to help.
 

coltsfan715

New member
I know TOBI makes me cough more and kind of makes me hoarse, I don't recall having the wheezing though. I would ask about it if it is bothering you.
I was looking some things up on side effects and everything that listed side effects for TOBI, said to call your doc if you experience shortness of breath, increased coughing and/or wheezing, changes in hearing, ringing in ears, or skin rashes/itching/hives.

Hope that helps.

Lindsey
 

coltsfan715

New member
I know TOBI makes me cough more and kind of makes me hoarse, I don't recall having the wheezing though. I would ask about it if it is bothering you.
I was looking some things up on side effects and everything that listed side effects for TOBI, said to call your doc if you experience shortness of breath, increased coughing and/or wheezing, changes in hearing, ringing in ears, or skin rashes/itching/hives.

Hope that helps.

Lindsey
 

thelizardqueen

New member
TOBI usually iritates my lungs a bit for the first week I'm on it, but nothing too severe where I have to stop the treatment. I've been on TOBI for about 8 years now, so I guess I've built up a tolerance.
 

thelizardqueen

New member
TOBI usually iritates my lungs a bit for the first week I'm on it, but nothing too severe where I have to stop the treatment. I've been on TOBI for about 8 years now, so I guess I've built up a tolerance.
 
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