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Touchy subject
- Thread starter Seana30
- Start date
thelizardqueen
New member
Well if anyone wants to read my blog today you'll see that my new post is exactly about this. This is my opinion: I think its lame when parents don't allow their kids to be active for fear that they MIGHT be exposed to a bacteria or mold. You've got to draw the line somewhere - do you want kids that live in a bubble, and have poor lung function due to the fact that they're not allowed to play sports or be active outdoors? I've said it once, and I'll continue saying it - you may as well not let your kids see the light of day for fear of mold. H*ck, you may as well not let them see the dark for fear of mold. Mold is EVERYWHERE, not just in the dirt or at water parks. I contribute a lot of my lung function and healthiness due to the fact that I grew up swimming, playing outside, etc. Being active in general.
thelizardqueen
New member
All your children are so cute guys!
For me, this touches on the "feeling" and unsupportive vibe that I've been seeing here lately and briefly mentioned in the "Since the Blogs started... " thread. Although Seana, it's obvious that your intensions are to celebrate that your daughter is living a full life and experiencing fun in the outside world, in waterparks, playing in the dirt, etc, but this kind of thread posted soon after others were *questioning* about the concept can lead to turmoil. I think. It sounds like for you to post this and for Liz (on your blog) to sound upset as well by others wondering how others grew up (or when for kids to stay away from dirt and mold), that it stems from anger or something. That's how it sounds to me. The tone just isn't that hunky dorey, it's a bit abrassive. Do you think? It's like anger about someone else not getting what you get. There's been a lot of talk about *Why don't people accept that not everyone will agree on things?*, and I agree to disagree, but when the tone and approach someone takes is aggressive, it doesn't come across as accepting of others to disagree/agree. It sounds like: "This is what I feel damn it. So there!" The "SO THERE!" attitude that has started to show up in many people's repsonses, is not productive as a whole. Everybody is on defensive mode. This whole negative vibe for me, has been in part about people showing their anger/bitterness toward others on this site for whatever reason. Especially while at the same time the same people might yell "This is my opinion and I have a right to my opinion!". This is simply an example for me, not like this is the cause or an example of the whole scenario I'm referring to. The whole scenario is too big and mixed up to explain or for everyone to get on the same page with.
It's been like a game: people attack, then people defend, then people rant about how they have the right to their opinion, then people take sides so they don't feel alone, then some poeple feel stronger/invinsible, then people are so in tune with their sense of pride/freedom that the whole purpose of this support group gets lost. Support groups need a sense of humility, not aggression.
I'm all for pwcf playing in the dirt, but why put others on the defensive just b/c they might be learning how to raise their kid with CF and asking questions or just feeling concerned, or trying to learn what's best?
Seems to me that the balance of, these are my beliefs and those are your beliefs, and everyone is still respected, and I'm not irritated, isn't there much anymore. Some people say it is, but it doesn't sounds like it. Or when it is there, sometimes there's still that Well, we moved on from that a long time ago an we're fine....but the next day the same thing happens all over again. No one is looking at themselves. It's been growing.
It's been like a game: people attack, then people defend, then people rant about how they have the right to their opinion, then people take sides so they don't feel alone, then some poeple feel stronger/invinsible, then people are so in tune with their sense of pride/freedom that the whole purpose of this support group gets lost. Support groups need a sense of humility, not aggression.
I'm all for pwcf playing in the dirt, but why put others on the defensive just b/c they might be learning how to raise their kid with CF and asking questions or just feeling concerned, or trying to learn what's best?
Seems to me that the balance of, these are my beliefs and those are your beliefs, and everyone is still respected, and I'm not irritated, isn't there much anymore. Some people say it is, but it doesn't sounds like it. Or when it is there, sometimes there's still that Well, we moved on from that a long time ago an we're fine....but the next day the same thing happens all over again. No one is looking at themselves. It's been growing.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Seana30</b></i>
OH MY GOD KELLY!
Posts like yours is what starts the fights!!
I am giving my opinion WHICH I STATE SEVERAL TIMES!!!!
You take it how you want. If this post is "what is causing problems" on this site....
I GIVE UP!!!!! I AM DONE WITH IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Seana</end quote></div>
"This is simply an example for me, not like this is the cause or an example of the whole scenario I'm referring to."
Just thought I'd post my thoughts on this here since it made me think of it.
OH MY GOD KELLY!
Posts like yours is what starts the fights!!
I am giving my opinion WHICH I STATE SEVERAL TIMES!!!!
You take it how you want. If this post is "what is causing problems" on this site....
I GIVE UP!!!!! I AM DONE WITH IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Seana</end quote></div>
"This is simply an example for me, not like this is the cause or an example of the whole scenario I'm referring to."
Just thought I'd post my thoughts on this here since it made me think of it.
thelizardqueen
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MyNewfy</b></i>
It sounds like for you to post this and for Liz (on your blog) to sound upset as well by others wondering how others grew up (or when for kids to stay away from dirt and mold), that it stems from anger or something.</end quote></div>
While I appreciate that your opinion is different then mine Kelly - I'm a bit insulted that you would assume that my opinion stems from anger or something. Anger of what? That some people shelter us CFers a little too much? I don't think its anger, but rather annoyance. It doesn't make me angry that people are like this, it just doesn't make sense to me. That being said - that's why I posted MY opinion on MY blog because there I don't have to worry about people saying I'm wrong, or judging me. Just like you are entitled to your opinion, I'm entitled to mine. We can agree to disagree.
It sounds like for you to post this and for Liz (on your blog) to sound upset as well by others wondering how others grew up (or when for kids to stay away from dirt and mold), that it stems from anger or something.</end quote></div>
While I appreciate that your opinion is different then mine Kelly - I'm a bit insulted that you would assume that my opinion stems from anger or something. Anger of what? That some people shelter us CFers a little too much? I don't think its anger, but rather annoyance. It doesn't make me angry that people are like this, it just doesn't make sense to me. That being said - that's why I posted MY opinion on MY blog because there I don't have to worry about people saying I'm wrong, or judging me. Just like you are entitled to your opinion, I'm entitled to mine. We can agree to disagree.
Scarlett81
New member
I understand some of your points, mynewfy, I do.
But I think that Seana made it clear that she was just stating her opinion. And she has a right to. The thread on waterparks that was negative towards them already happened.
And she was just showing her side of the coin.
But I think that Seana made it clear that she was just stating her opinion. And she has a right to. The thread on waterparks that was negative towards them already happened.
And she was just showing her side of the coin.
i totally agree 110% with you that is what keep us all healthy, having as much fun and a good hands on approach to life, if i was t listen to my docs all the time then i would be siting around strapped to a feed maching or neb or both waiting to die, i dont and i cant sit down for tht long i am always on the go looking for something new and fun to do, if u ask me laughter is the best medicine i ahve ever taken, no matter how sick u is if u can laugh it dont seem as bad, bye the way i love swimming and waterparks so dont ever stop bringing your daughters to em, the docs want all pwcf to live there lives through a bloody text book its about tiem the looked up and smelled de reality of it all.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Seana30</b></i>
OH MY GOD KELLY!
Posts like yours is what starts the fights!!
I am giving my opinion WHICH I STATE SEVERAL TIMES!!!!
You take it how you want. If this post is "what is causing problems" on this site....
I GIVE UP!!!!! I AM DONE WITH IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Seana</end quote></div>
Seana, I did not intend to offend you how I did. Seems I obviously did, and that truly was not my intension.
I'm sorry for offending you.
Kelly, MyNewfy
OH MY GOD KELLY!
Posts like yours is what starts the fights!!
I am giving my opinion WHICH I STATE SEVERAL TIMES!!!!
You take it how you want. If this post is "what is causing problems" on this site....
I GIVE UP!!!!! I AM DONE WITH IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Seana</end quote></div>
Seana, I did not intend to offend you how I did. Seems I obviously did, and that truly was not my intension.
I'm sorry for offending you.
Kelly, MyNewfy
RoyalPrince
New member
i have read a lot of these back and forth posts... and for the most part i can tell when someone is simply stating their opinion by their saying so in the post...
it seems a lot of people read too much into what people are saying and taking it as being agressive, negative, funny, etc... its hard to judge someones tone in an online post and i believe some are taking these posts in an aggressive tone that simply was not meant to be put across as aggressive or negative...
just putting that out there, i could be totally off but thats what i'm assuming is going on in these threads and posts...
it seems a lot of people read too much into what people are saying and taking it as being agressive, negative, funny, etc... its hard to judge someones tone in an online post and i believe some are taking these posts in an aggressive tone that simply was not meant to be put across as aggressive or negative...
just putting that out there, i could be totally off but thats what i'm assuming is going on in these threads and posts...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thelizardqueen</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MyNewfy</b></i>
It sounds like for you to post this and for Liz (on your blog) to sound upset as well by others wondering how others grew up (or when for kids to stay away from dirt and mold), that it stems from anger or something.</end quote></div>
While I appreciate that your opinion is different then mine Kelly - I'm a bit insulted that you would assume that my opinion stems from anger or something. Anger of what? That some people shelter us CFers a little too much? I don't think its anger, but rather annoyance. It doesn't make me angry that people are like this, it just doesn't make sense to me. That being said - that's why I posted MY opinion on MY blog because there I don't have to worry about people saying I'm wrong, or judging me. Just like you are entitled to your opinion, I'm entitled to mine. We can agree to disagree.</end quote></div>
I didn't mean to offend you by what I said. I obviously offended both you and Seana, but I seriously didn't mean to. I'm sorry Liz for insulting you, that was not my intension.
Kelly, MyNewfy
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MyNewfy</b></i>
It sounds like for you to post this and for Liz (on your blog) to sound upset as well by others wondering how others grew up (or when for kids to stay away from dirt and mold), that it stems from anger or something.</end quote></div>
While I appreciate that your opinion is different then mine Kelly - I'm a bit insulted that you would assume that my opinion stems from anger or something. Anger of what? That some people shelter us CFers a little too much? I don't think its anger, but rather annoyance. It doesn't make me angry that people are like this, it just doesn't make sense to me. That being said - that's why I posted MY opinion on MY blog because there I don't have to worry about people saying I'm wrong, or judging me. Just like you are entitled to your opinion, I'm entitled to mine. We can agree to disagree.</end quote></div>
I didn't mean to offend you by what I said. I obviously offended both you and Seana, but I seriously didn't mean to. I'm sorry Liz for insulting you, that was not my intension.
Kelly, MyNewfy
I think its great to let kids lead as normal life as possible. I did.... went to waterparks, etc... growing up and perhaps that is where I contracted pseudo, and perhaps not. No way to tell. The fact is, if my mom and dad would have not allowed me to go to waterparks and such due to my CF at such a young age, I would not have understood it. I would feel very left out. Now, knowing that I MAY have gotten pseudo from a waterpark, and knowing all the fun I had at them, I still would probably go (knowing I'd get pseudo in the future).... however, if it were something worse that I'd gotten from a waterpark (like a resistant infection), I may think very differently. I guess hindight is 20/20.
I also try to live life to the fullest, and try not to let CF limit me (within reason, of course.... I still won't go to bars all night, etc.).... For example, I am planning on probably going to Russia (a country without the most strict health/hygeine standards). I know this may not be good for me. I may catch something from the food, water, smoking everywhere, weight loss, etc. But, I really want to experience Russian culture with my husband. So, I will probably go anyway, and be as careful as I can. I know its not exactly the same, cause no "reports" have said going to Russia can cause infections (such as they say about water parks, etc.), but I say this just to illustrate that I can be careful with what I do (i.e. wash hands, don't eat from a street vendor cart in Russia, visit smoke-free places), and I can also obstruct my life experiences by being too careful (not going at all cause I MAY get sick). This is just my thoughts. I suppose if I'd come home from Russia having picked up MRSA, I would perhaps feel differently, and maybe wish I hadn't gone. I don't know. Hindsight is a wonderful thing. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I also try to live life to the fullest, and try not to let CF limit me (within reason, of course.... I still won't go to bars all night, etc.).... For example, I am planning on probably going to Russia (a country without the most strict health/hygeine standards). I know this may not be good for me. I may catch something from the food, water, smoking everywhere, weight loss, etc. But, I really want to experience Russian culture with my husband. So, I will probably go anyway, and be as careful as I can. I know its not exactly the same, cause no "reports" have said going to Russia can cause infections (such as they say about water parks, etc.), but I say this just to illustrate that I can be careful with what I do (i.e. wash hands, don't eat from a street vendor cart in Russia, visit smoke-free places), and I can also obstruct my life experiences by being too careful (not going at all cause I MAY get sick). This is just my thoughts. I suppose if I'd come home from Russia having picked up MRSA, I would perhaps feel differently, and maybe wish I hadn't gone. I don't know. Hindsight is a wonderful thing. <img src="i/expressions/face-icon-small-smile.gif" border="0">
thelizardqueen
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thelizardqueen</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MyNewfy</b></i>
It sounds like for you to post this and for Liz (on your blog) to sound upset as well by others wondering how others grew up (or when for kids to stay away from dirt and mold), that it stems from anger or something.</end quote></div>
While I appreciate that your opinion is different then mine Kelly - I'm a bit insulted that you would assume that my opinion stems from anger or something. Anger of what? That some people shelter us CFers a little too much? I don't think its anger, but rather annoyance. It doesn't make me angry that people are like this, it just doesn't make sense to me. That being said - that's why I posted MY opinion on MY blog because there I don't have to worry about people saying I'm wrong, or judging me. Just like you are entitled to your opinion, I'm entitled to mine. We can agree to disagree.</end quote></div>
I didn't mean to offend you by what I said. I obviously offended both you and Seana, but I seriously didn't mean to. I'm sorry Liz for insulting you, that was not my intension.
Kelly, MyNewfy</end quote></div>
Not a problem Kelly. Like I said - I appreciate that you have a different opinion, I just don't want people to think that I'm coming off across as angry at the world about how CFers are raised. I just don't get the "no outdoor" thing is all.
I honestly think this thread should just be deleted. Its like highschool all over again with everyone.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thelizardqueen</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MyNewfy</b></i>
It sounds like for you to post this and for Liz (on your blog) to sound upset as well by others wondering how others grew up (or when for kids to stay away from dirt and mold), that it stems from anger or something.</end quote></div>
While I appreciate that your opinion is different then mine Kelly - I'm a bit insulted that you would assume that my opinion stems from anger or something. Anger of what? That some people shelter us CFers a little too much? I don't think its anger, but rather annoyance. It doesn't make me angry that people are like this, it just doesn't make sense to me. That being said - that's why I posted MY opinion on MY blog because there I don't have to worry about people saying I'm wrong, or judging me. Just like you are entitled to your opinion, I'm entitled to mine. We can agree to disagree.</end quote></div>
I didn't mean to offend you by what I said. I obviously offended both you and Seana, but I seriously didn't mean to. I'm sorry Liz for insulting you, that was not my intension.
Kelly, MyNewfy</end quote></div>
Not a problem Kelly. Like I said - I appreciate that you have a different opinion, I just don't want people to think that I'm coming off across as angry at the world about how CFers are raised. I just don't get the "no outdoor" thing is all.
I honestly think this thread should just be deleted. Its like highschool all over again with everyone.
Scarlett81
New member
To mynewfy,
Just wanted to say that I think very highly of you for apologizing for peace's sake. Good for you for taking the high road! You're a good example of what more of us should do.<img src="i/expressions/face-icon-small-smile.gif" border="0">
Just wanted to say that I think very highly of you for apologizing for peace's sake. Good for you for taking the high road! You're a good example of what more of us should do.<img src="i/expressions/face-icon-small-smile.gif" border="0">
Well, I´m 43 and still alive, although
- I had dogs, cats,rabbits,snakes
- raised frogs, birds and lambs
-played in the forest, on my aunts farm, in creeks, wet grass, dusty hay
-visited Africa, Asia and ate everything there, also on the streets, fresh fruit on markets,etc.
-tried parasailing, riding on horses,camels,elefants
-and did not do much therapy...
Maybe I was just lucky, but thats life and I lived my life and enjoyed it and still do!
And if I would die now I still would be happy that I had the chance for all these experiences and I had this chance also because of the cf, because I´ve always wanted to do as much as possible just in case, it could not be posibble anymore in my future!
Uli,43,Germany
- I had dogs, cats,rabbits,snakes
- raised frogs, birds and lambs
-played in the forest, on my aunts farm, in creeks, wet grass, dusty hay
-visited Africa, Asia and ate everything there, also on the streets, fresh fruit on markets,etc.
-tried parasailing, riding on horses,camels,elefants
-and did not do much therapy...
Maybe I was just lucky, but thats life and I lived my life and enjoyed it and still do!
And if I would die now I still would be happy that I had the chance for all these experiences and I had this chance also because of the cf, because I´ve always wanted to do as much as possible just in case, it could not be posibble anymore in my future!
Uli,43,Germany