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Transplant Question
- Thread starter pnhuffman
- Start date
Transplantmommy
New member
Yup! Once you have a transplant, you are on anti-rejection meds for the rest of your life! There is only one case that I have read about where a girl has not taken anti-rejection meds for 7 years (after a liver transplant I believe) because somehow, she took on the donors immune system. Doctors and scientists are baffled by this.
Right after the transplant, I was on Prograf, Valcyte, Cellcept, Magnesium, VFend, AmphoB (w/ nebulizer), Prednisone and maybe a couple more. I was also put on two types of insulin because I have medication induced Diabetes (most CFers get the CFRD anyway....I just hadn't yet). I was put on all of these after the transplants. I was taking about 50 pills a day at that time (at different times in the day). Now that I am a year and a half post transplant, I take about 25-30 pills a day (which includes my enzymes and vitamins). I am no longer on the Valcyte, Cellcept, Magnesium, or VFend (although the VFend was replaced with the Posaconazole which is the expensive one and it's liquid....yuck).
To fill people in, here is my list of medications that I take every day.
Creon 20: 4 w/meals, 2w/snacks
Multivitamin: 1/day
Prograf 1mg: 3mg in AM and 3mg in PM (this will change as the levels of the Prograf change in your bloodwork).
Prednisone 5mg: 1/day (used to be 40mg right after Tx, but they wean you down). The dosage goes back up if you go into rejection. There are also some transplant centers trying Prednisone free treatment....mine is not one of them.
Folic Acid 1mg: 1/day
Nexium 40mg: 1/day
Bactrim 400/80: 1 every M,W,F (this also used to be higher)
Vitamin D 50,000U: 1 every M,Th
Lactobacillus: 1 cap 3x daily (this is because of the colon issues that I had and since my colon is now gone, we have to keep the small intestine healthy)
Oscal 500: 3/day
Posaconazole 200mg oral suspension: 1 tsp 3x day
Lantus (insulin): 18U in the morning
Novolog (insulin): sliding scale w/meals
I have to say that with all of these medications, I really don't mind. I find taking all of these pills much better than having to do hours of breathing treatments and CPT every day!! Some of them are expensive, but I think that not going to the doctors all the time and having co-pays or co-insurance to pay, kind of (not all the way) makes the costs even. You're just paying more now for meds instead of going to your CF doc and doing IV treatments all the time. I have had only 2 appointments with my CF doc since the transplants and it was just so he could check on me.
My disclaimer: This is not how every single person reacts to transplants. Some people will have way more complications than I have had as is the case with Pepe and Trisha.
Right after the transplant, I was on Prograf, Valcyte, Cellcept, Magnesium, VFend, AmphoB (w/ nebulizer), Prednisone and maybe a couple more. I was also put on two types of insulin because I have medication induced Diabetes (most CFers get the CFRD anyway....I just hadn't yet). I was put on all of these after the transplants. I was taking about 50 pills a day at that time (at different times in the day). Now that I am a year and a half post transplant, I take about 25-30 pills a day (which includes my enzymes and vitamins). I am no longer on the Valcyte, Cellcept, Magnesium, or VFend (although the VFend was replaced with the Posaconazole which is the expensive one and it's liquid....yuck).
To fill people in, here is my list of medications that I take every day.
Creon 20: 4 w/meals, 2w/snacks
Multivitamin: 1/day
Prograf 1mg: 3mg in AM and 3mg in PM (this will change as the levels of the Prograf change in your bloodwork).
Prednisone 5mg: 1/day (used to be 40mg right after Tx, but they wean you down). The dosage goes back up if you go into rejection. There are also some transplant centers trying Prednisone free treatment....mine is not one of them.
Folic Acid 1mg: 1/day
Nexium 40mg: 1/day
Bactrim 400/80: 1 every M,W,F (this also used to be higher)
Vitamin D 50,000U: 1 every M,Th
Lactobacillus: 1 cap 3x daily (this is because of the colon issues that I had and since my colon is now gone, we have to keep the small intestine healthy)
Oscal 500: 3/day
Posaconazole 200mg oral suspension: 1 tsp 3x day
Lantus (insulin): 18U in the morning
Novolog (insulin): sliding scale w/meals
I have to say that with all of these medications, I really don't mind. I find taking all of these pills much better than having to do hours of breathing treatments and CPT every day!! Some of them are expensive, but I think that not going to the doctors all the time and having co-pays or co-insurance to pay, kind of (not all the way) makes the costs even. You're just paying more now for meds instead of going to your CF doc and doing IV treatments all the time. I have had only 2 appointments with my CF doc since the transplants and it was just so he could check on me.
My disclaimer: This is not how every single person reacts to transplants. Some people will have way more complications than I have had as is the case with Pepe and Trisha.
Transplantmommy
New member
Yup! Once you have a transplant, you are on anti-rejection meds for the rest of your life! There is only one case that I have read about where a girl has not taken anti-rejection meds for 7 years (after a liver transplant I believe) because somehow, she took on the donors immune system. Doctors and scientists are baffled by this.
Right after the transplant, I was on Prograf, Valcyte, Cellcept, Magnesium, VFend, AmphoB (w/ nebulizer), Prednisone and maybe a couple more. I was also put on two types of insulin because I have medication induced Diabetes (most CFers get the CFRD anyway....I just hadn't yet). I was put on all of these after the transplants. I was taking about 50 pills a day at that time (at different times in the day). Now that I am a year and a half post transplant, I take about 25-30 pills a day (which includes my enzymes and vitamins). I am no longer on the Valcyte, Cellcept, Magnesium, or VFend (although the VFend was replaced with the Posaconazole which is the expensive one and it's liquid....yuck).
To fill people in, here is my list of medications that I take every day.
Creon 20: 4 w/meals, 2w/snacks
Multivitamin: 1/day
Prograf 1mg: 3mg in AM and 3mg in PM (this will change as the levels of the Prograf change in your bloodwork).
Prednisone 5mg: 1/day (used to be 40mg right after Tx, but they wean you down). The dosage goes back up if you go into rejection. There are also some transplant centers trying Prednisone free treatment....mine is not one of them.
Folic Acid 1mg: 1/day
Nexium 40mg: 1/day
Bactrim 400/80: 1 every M,W,F (this also used to be higher)
Vitamin D 50,000U: 1 every M,Th
Lactobacillus: 1 cap 3x daily (this is because of the colon issues that I had and since my colon is now gone, we have to keep the small intestine healthy)
Oscal 500: 3/day
Posaconazole 200mg oral suspension: 1 tsp 3x day
Lantus (insulin): 18U in the morning
Novolog (insulin): sliding scale w/meals
I have to say that with all of these medications, I really don't mind. I find taking all of these pills much better than having to do hours of breathing treatments and CPT every day!! Some of them are expensive, but I think that not going to the doctors all the time and having co-pays or co-insurance to pay, kind of (not all the way) makes the costs even. You're just paying more now for meds instead of going to your CF doc and doing IV treatments all the time. I have had only 2 appointments with my CF doc since the transplants and it was just so he could check on me.
My disclaimer: This is not how every single person reacts to transplants. Some people will have way more complications than I have had as is the case with Pepe and Trisha.
Right after the transplant, I was on Prograf, Valcyte, Cellcept, Magnesium, VFend, AmphoB (w/ nebulizer), Prednisone and maybe a couple more. I was also put on two types of insulin because I have medication induced Diabetes (most CFers get the CFRD anyway....I just hadn't yet). I was put on all of these after the transplants. I was taking about 50 pills a day at that time (at different times in the day). Now that I am a year and a half post transplant, I take about 25-30 pills a day (which includes my enzymes and vitamins). I am no longer on the Valcyte, Cellcept, Magnesium, or VFend (although the VFend was replaced with the Posaconazole which is the expensive one and it's liquid....yuck).
To fill people in, here is my list of medications that I take every day.
Creon 20: 4 w/meals, 2w/snacks
Multivitamin: 1/day
Prograf 1mg: 3mg in AM and 3mg in PM (this will change as the levels of the Prograf change in your bloodwork).
Prednisone 5mg: 1/day (used to be 40mg right after Tx, but they wean you down). The dosage goes back up if you go into rejection. There are also some transplant centers trying Prednisone free treatment....mine is not one of them.
Folic Acid 1mg: 1/day
Nexium 40mg: 1/day
Bactrim 400/80: 1 every M,W,F (this also used to be higher)
Vitamin D 50,000U: 1 every M,Th
Lactobacillus: 1 cap 3x daily (this is because of the colon issues that I had and since my colon is now gone, we have to keep the small intestine healthy)
Oscal 500: 3/day
Posaconazole 200mg oral suspension: 1 tsp 3x day
Lantus (insulin): 18U in the morning
Novolog (insulin): sliding scale w/meals
I have to say that with all of these medications, I really don't mind. I find taking all of these pills much better than having to do hours of breathing treatments and CPT every day!! Some of them are expensive, but I think that not going to the doctors all the time and having co-pays or co-insurance to pay, kind of (not all the way) makes the costs even. You're just paying more now for meds instead of going to your CF doc and doing IV treatments all the time. I have had only 2 appointments with my CF doc since the transplants and it was just so he could check on me.
My disclaimer: This is not how every single person reacts to transplants. Some people will have way more complications than I have had as is the case with Pepe and Trisha.
Transplantmommy
New member
Yup! Once you have a transplant, you are on anti-rejection meds for the rest of your life! There is only one case that I have read about where a girl has not taken anti-rejection meds for 7 years (after a liver transplant I believe) because somehow, she took on the donors immune system. Doctors and scientists are baffled by this.
Right after the transplant, I was on Prograf, Valcyte, Cellcept, Magnesium, VFend, AmphoB (w/ nebulizer), Prednisone and maybe a couple more. I was also put on two types of insulin because I have medication induced Diabetes (most CFers get the CFRD anyway....I just hadn't yet). I was put on all of these after the transplants. I was taking about 50 pills a day at that time (at different times in the day). Now that I am a year and a half post transplant, I take about 25-30 pills a day (which includes my enzymes and vitamins). I am no longer on the Valcyte, Cellcept, Magnesium, or VFend (although the VFend was replaced with the Posaconazole which is the expensive one and it's liquid....yuck).
To fill people in, here is my list of medications that I take every day.
Creon 20: 4 w/meals, 2w/snacks
Multivitamin: 1/day
Prograf 1mg: 3mg in AM and 3mg in PM (this will change as the levels of the Prograf change in your bloodwork).
Prednisone 5mg: 1/day (used to be 40mg right after Tx, but they wean you down). The dosage goes back up if you go into rejection. There are also some transplant centers trying Prednisone free treatment....mine is not one of them.
Folic Acid 1mg: 1/day
Nexium 40mg: 1/day
Bactrim 400/80: 1 every M,W,F (this also used to be higher)
Vitamin D 50,000U: 1 every M,Th
Lactobacillus: 1 cap 3x daily (this is because of the colon issues that I had and since my colon is now gone, we have to keep the small intestine healthy)
Oscal 500: 3/day
Posaconazole 200mg oral suspension: 1 tsp 3x day
Lantus (insulin): 18U in the morning
Novolog (insulin): sliding scale w/meals
I have to say that with all of these medications, I really don't mind. I find taking all of these pills much better than having to do hours of breathing treatments and CPT every day!! Some of them are expensive, but I think that not going to the doctors all the time and having co-pays or co-insurance to pay, kind of (not all the way) makes the costs even. You're just paying more now for meds instead of going to your CF doc and doing IV treatments all the time. I have had only 2 appointments with my CF doc since the transplants and it was just so he could check on me.
My disclaimer: This is not how every single person reacts to transplants. Some people will have way more complications than I have had as is the case with Pepe and Trisha.
Right after the transplant, I was on Prograf, Valcyte, Cellcept, Magnesium, VFend, AmphoB (w/ nebulizer), Prednisone and maybe a couple more. I was also put on two types of insulin because I have medication induced Diabetes (most CFers get the CFRD anyway....I just hadn't yet). I was put on all of these after the transplants. I was taking about 50 pills a day at that time (at different times in the day). Now that I am a year and a half post transplant, I take about 25-30 pills a day (which includes my enzymes and vitamins). I am no longer on the Valcyte, Cellcept, Magnesium, or VFend (although the VFend was replaced with the Posaconazole which is the expensive one and it's liquid....yuck).
To fill people in, here is my list of medications that I take every day.
Creon 20: 4 w/meals, 2w/snacks
Multivitamin: 1/day
Prograf 1mg: 3mg in AM and 3mg in PM (this will change as the levels of the Prograf change in your bloodwork).
Prednisone 5mg: 1/day (used to be 40mg right after Tx, but they wean you down). The dosage goes back up if you go into rejection. There are also some transplant centers trying Prednisone free treatment....mine is not one of them.
Folic Acid 1mg: 1/day
Nexium 40mg: 1/day
Bactrim 400/80: 1 every M,W,F (this also used to be higher)
Vitamin D 50,000U: 1 every M,Th
Lactobacillus: 1 cap 3x daily (this is because of the colon issues that I had and since my colon is now gone, we have to keep the small intestine healthy)
Oscal 500: 3/day
Posaconazole 200mg oral suspension: 1 tsp 3x day
Lantus (insulin): 18U in the morning
Novolog (insulin): sliding scale w/meals
I have to say that with all of these medications, I really don't mind. I find taking all of these pills much better than having to do hours of breathing treatments and CPT every day!! Some of them are expensive, but I think that not going to the doctors all the time and having co-pays or co-insurance to pay, kind of (not all the way) makes the costs even. You're just paying more now for meds instead of going to your CF doc and doing IV treatments all the time. I have had only 2 appointments with my CF doc since the transplants and it was just so he could check on me.
My disclaimer: This is not how every single person reacts to transplants. Some people will have way more complications than I have had as is the case with Pepe and Trisha.
Transplantmommy
New member
Yup! Once you have a transplant, you are on anti-rejection meds for the rest of your life! There is only one case that I have read about where a girl has not taken anti-rejection meds for 7 years (after a liver transplant I believe) because somehow, she took on the donors immune system. Doctors and scientists are baffled by this.
Right after the transplant, I was on Prograf, Valcyte, Cellcept, Magnesium, VFend, AmphoB (w/ nebulizer), Prednisone and maybe a couple more. I was also put on two types of insulin because I have medication induced Diabetes (most CFers get the CFRD anyway....I just hadn't yet). I was put on all of these after the transplants. I was taking about 50 pills a day at that time (at different times in the day). Now that I am a year and a half post transplant, I take about 25-30 pills a day (which includes my enzymes and vitamins). I am no longer on the Valcyte, Cellcept, Magnesium, or VFend (although the VFend was replaced with the Posaconazole which is the expensive one and it's liquid....yuck).
To fill people in, here is my list of medications that I take every day.
Creon 20: 4 w/meals, 2w/snacks
Multivitamin: 1/day
Prograf 1mg: 3mg in AM and 3mg in PM (this will change as the levels of the Prograf change in your bloodwork).
Prednisone 5mg: 1/day (used to be 40mg right after Tx, but they wean you down). The dosage goes back up if you go into rejection. There are also some transplant centers trying Prednisone free treatment....mine is not one of them.
Folic Acid 1mg: 1/day
Nexium 40mg: 1/day
Bactrim 400/80: 1 every M,W,F (this also used to be higher)
Vitamin D 50,000U: 1 every M,Th
Lactobacillus: 1 cap 3x daily (this is because of the colon issues that I had and since my colon is now gone, we have to keep the small intestine healthy)
Oscal 500: 3/day
Posaconazole 200mg oral suspension: 1 tsp 3x day
Lantus (insulin): 18U in the morning
Novolog (insulin): sliding scale w/meals
I have to say that with all of these medications, I really don't mind. I find taking all of these pills much better than having to do hours of breathing treatments and CPT every day!! Some of them are expensive, but I think that not going to the doctors all the time and having co-pays or co-insurance to pay, kind of (not all the way) makes the costs even. You're just paying more now for meds instead of going to your CF doc and doing IV treatments all the time. I have had only 2 appointments with my CF doc since the transplants and it was just so he could check on me.
My disclaimer: This is not how every single person reacts to transplants. Some people will have way more complications than I have had as is the case with Pepe and Trisha.
Right after the transplant, I was on Prograf, Valcyte, Cellcept, Magnesium, VFend, AmphoB (w/ nebulizer), Prednisone and maybe a couple more. I was also put on two types of insulin because I have medication induced Diabetes (most CFers get the CFRD anyway....I just hadn't yet). I was put on all of these after the transplants. I was taking about 50 pills a day at that time (at different times in the day). Now that I am a year and a half post transplant, I take about 25-30 pills a day (which includes my enzymes and vitamins). I am no longer on the Valcyte, Cellcept, Magnesium, or VFend (although the VFend was replaced with the Posaconazole which is the expensive one and it's liquid....yuck).
To fill people in, here is my list of medications that I take every day.
Creon 20: 4 w/meals, 2w/snacks
Multivitamin: 1/day
Prograf 1mg: 3mg in AM and 3mg in PM (this will change as the levels of the Prograf change in your bloodwork).
Prednisone 5mg: 1/day (used to be 40mg right after Tx, but they wean you down). The dosage goes back up if you go into rejection. There are also some transplant centers trying Prednisone free treatment....mine is not one of them.
Folic Acid 1mg: 1/day
Nexium 40mg: 1/day
Bactrim 400/80: 1 every M,W,F (this also used to be higher)
Vitamin D 50,000U: 1 every M,Th
Lactobacillus: 1 cap 3x daily (this is because of the colon issues that I had and since my colon is now gone, we have to keep the small intestine healthy)
Oscal 500: 3/day
Posaconazole 200mg oral suspension: 1 tsp 3x day
Lantus (insulin): 18U in the morning
Novolog (insulin): sliding scale w/meals
I have to say that with all of these medications, I really don't mind. I find taking all of these pills much better than having to do hours of breathing treatments and CPT every day!! Some of them are expensive, but I think that not going to the doctors all the time and having co-pays or co-insurance to pay, kind of (not all the way) makes the costs even. You're just paying more now for meds instead of going to your CF doc and doing IV treatments all the time. I have had only 2 appointments with my CF doc since the transplants and it was just so he could check on me.
My disclaimer: This is not how every single person reacts to transplants. Some people will have way more complications than I have had as is the case with Pepe and Trisha.
Transplantmommy
New member
Yup! Once you have a transplant, you are on anti-rejection meds for the rest of your life! There is only one case that I have read about where a girl has not taken anti-rejection meds for 7 years (after a liver transplant I believe) because somehow, she took on the donors immune system. Doctors and scientists are baffled by this.
<br />
<br />Right after the transplant, I was on Prograf, Valcyte, Cellcept, Magnesium, VFend, AmphoB (w/ nebulizer), Prednisone and maybe a couple more. I was also put on two types of insulin because I have medication induced Diabetes (most CFers get the CFRD anyway....I just hadn't yet). I was put on all of these after the transplants. I was taking about 50 pills a day at that time (at different times in the day). Now that I am a year and a half post transplant, I take about 25-30 pills a day (which includes my enzymes and vitamins). I am no longer on the Valcyte, Cellcept, Magnesium, or VFend (although the VFend was replaced with the Posaconazole which is the expensive one and it's liquid....yuck).
<br />
<br />To fill people in, here is my list of medications that I take every day.
<br />
<br />Creon 20: 4 w/meals, 2w/snacks
<br />
<br />Multivitamin: 1/day
<br />
<br />Prograf 1mg: 3mg in AM and 3mg in PM (this will change as the levels of the Prograf change in your bloodwork).
<br />
<br />Prednisone 5mg: 1/day (used to be 40mg right after Tx, but they wean you down). The dosage goes back up if you go into rejection. There are also some transplant centers trying Prednisone free treatment....mine is not one of them.
<br />
<br />Folic Acid 1mg: 1/day
<br />
<br />Nexium 40mg: 1/day
<br />
<br />Bactrim 400/80: 1 every M,W,F (this also used to be higher)
<br />
<br />Vitamin D 50,000U: 1 every M,Th
<br />
<br />Lactobacillus: 1 cap 3x daily (this is because of the colon issues that I had and since my colon is now gone, we have to keep the small intestine healthy)
<br />
<br />Oscal 500: 3/day
<br />
<br />Posaconazole 200mg oral suspension: 1 tsp 3x day
<br />
<br />Lantus (insulin): 18U in the morning
<br />
<br />Novolog (insulin): sliding scale w/meals
<br />
<br />I have to say that with all of these medications, I really don't mind. I find taking all of these pills much better than having to do hours of breathing treatments and CPT every day!! Some of them are expensive, but I think that not going to the doctors all the time and having co-pays or co-insurance to pay, kind of (not all the way) makes the costs even. You're just paying more now for meds instead of going to your CF doc and doing IV treatments all the time. I have had only 2 appointments with my CF doc since the transplants and it was just so he could check on me.
<br />
<br />My disclaimer: This is not how every single person reacts to transplants. Some people will have way more complications than I have had as is the case with Pepe and Trisha.
<br />
<br />
<br />
<br />Right after the transplant, I was on Prograf, Valcyte, Cellcept, Magnesium, VFend, AmphoB (w/ nebulizer), Prednisone and maybe a couple more. I was also put on two types of insulin because I have medication induced Diabetes (most CFers get the CFRD anyway....I just hadn't yet). I was put on all of these after the transplants. I was taking about 50 pills a day at that time (at different times in the day). Now that I am a year and a half post transplant, I take about 25-30 pills a day (which includes my enzymes and vitamins). I am no longer on the Valcyte, Cellcept, Magnesium, or VFend (although the VFend was replaced with the Posaconazole which is the expensive one and it's liquid....yuck).
<br />
<br />To fill people in, here is my list of medications that I take every day.
<br />
<br />Creon 20: 4 w/meals, 2w/snacks
<br />
<br />Multivitamin: 1/day
<br />
<br />Prograf 1mg: 3mg in AM and 3mg in PM (this will change as the levels of the Prograf change in your bloodwork).
<br />
<br />Prednisone 5mg: 1/day (used to be 40mg right after Tx, but they wean you down). The dosage goes back up if you go into rejection. There are also some transplant centers trying Prednisone free treatment....mine is not one of them.
<br />
<br />Folic Acid 1mg: 1/day
<br />
<br />Nexium 40mg: 1/day
<br />
<br />Bactrim 400/80: 1 every M,W,F (this also used to be higher)
<br />
<br />Vitamin D 50,000U: 1 every M,Th
<br />
<br />Lactobacillus: 1 cap 3x daily (this is because of the colon issues that I had and since my colon is now gone, we have to keep the small intestine healthy)
<br />
<br />Oscal 500: 3/day
<br />
<br />Posaconazole 200mg oral suspension: 1 tsp 3x day
<br />
<br />Lantus (insulin): 18U in the morning
<br />
<br />Novolog (insulin): sliding scale w/meals
<br />
<br />I have to say that with all of these medications, I really don't mind. I find taking all of these pills much better than having to do hours of breathing treatments and CPT every day!! Some of them are expensive, but I think that not going to the doctors all the time and having co-pays or co-insurance to pay, kind of (not all the way) makes the costs even. You're just paying more now for meds instead of going to your CF doc and doing IV treatments all the time. I have had only 2 appointments with my CF doc since the transplants and it was just so he could check on me.
<br />
<br />My disclaimer: This is not how every single person reacts to transplants. Some people will have way more complications than I have had as is the case with Pepe and Trisha.
<br />
<br />
coltsfan715
New member
I second what Transplant mommy said.
In the first year post transplant I took the following:
Anti Rejection:
Prednisone
Cellcept
Prograf
Other:
Sporanox - antifungal
Valcyte - antiviral
Magnesium Oxide - supplement (b/c of Prograf)
Prevacid - reflux
Levaquin - thyroid
Cardizem - blood pressure (b/c of Prograf)
Mycelex - antifungal
Allegra - allergies
CF - CFRD:
Ultrase MT20
Novolog - insulin
I took most of the meds pre transplant - allegra was changed from Allegra D (I took before transplant) because you can't take anything with the Decongestant like Psuedoephedrine or something.
I was taken off Sporanox and Valcyte after my annual and was just placed back on Valcyte because I had an active CMV infection they detected in my last bronch but otherwise I would not have to take it either.
The others I am pretty certain that I will take forever or at least longer term but the rejection meds are definitely an all the time thing.
That being said different organ transplants have different protocols. Meaning I have to take 3 antirejection meds all the time BUT I know a liver transplant patient that was taking cellcept, prednisone and prograf that now only takes prograf. So I guess it depends on the type of transplant you have and the center and such.
Love Linds
In the first year post transplant I took the following:
Anti Rejection:
Prednisone
Cellcept
Prograf
Other:
Sporanox - antifungal
Valcyte - antiviral
Magnesium Oxide - supplement (b/c of Prograf)
Prevacid - reflux
Levaquin - thyroid
Cardizem - blood pressure (b/c of Prograf)
Mycelex - antifungal
Allegra - allergies
CF - CFRD:
Ultrase MT20
Novolog - insulin
I took most of the meds pre transplant - allegra was changed from Allegra D (I took before transplant) because you can't take anything with the Decongestant like Psuedoephedrine or something.
I was taken off Sporanox and Valcyte after my annual and was just placed back on Valcyte because I had an active CMV infection they detected in my last bronch but otherwise I would not have to take it either.
The others I am pretty certain that I will take forever or at least longer term but the rejection meds are definitely an all the time thing.
That being said different organ transplants have different protocols. Meaning I have to take 3 antirejection meds all the time BUT I know a liver transplant patient that was taking cellcept, prednisone and prograf that now only takes prograf. So I guess it depends on the type of transplant you have and the center and such.
Love Linds
coltsfan715
New member
I second what Transplant mommy said.
In the first year post transplant I took the following:
Anti Rejection:
Prednisone
Cellcept
Prograf
Other:
Sporanox - antifungal
Valcyte - antiviral
Magnesium Oxide - supplement (b/c of Prograf)
Prevacid - reflux
Levaquin - thyroid
Cardizem - blood pressure (b/c of Prograf)
Mycelex - antifungal
Allegra - allergies
CF - CFRD:
Ultrase MT20
Novolog - insulin
I took most of the meds pre transplant - allegra was changed from Allegra D (I took before transplant) because you can't take anything with the Decongestant like Psuedoephedrine or something.
I was taken off Sporanox and Valcyte after my annual and was just placed back on Valcyte because I had an active CMV infection they detected in my last bronch but otherwise I would not have to take it either.
The others I am pretty certain that I will take forever or at least longer term but the rejection meds are definitely an all the time thing.
That being said different organ transplants have different protocols. Meaning I have to take 3 antirejection meds all the time BUT I know a liver transplant patient that was taking cellcept, prednisone and prograf that now only takes prograf. So I guess it depends on the type of transplant you have and the center and such.
Love Linds
In the first year post transplant I took the following:
Anti Rejection:
Prednisone
Cellcept
Prograf
Other:
Sporanox - antifungal
Valcyte - antiviral
Magnesium Oxide - supplement (b/c of Prograf)
Prevacid - reflux
Levaquin - thyroid
Cardizem - blood pressure (b/c of Prograf)
Mycelex - antifungal
Allegra - allergies
CF - CFRD:
Ultrase MT20
Novolog - insulin
I took most of the meds pre transplant - allegra was changed from Allegra D (I took before transplant) because you can't take anything with the Decongestant like Psuedoephedrine or something.
I was taken off Sporanox and Valcyte after my annual and was just placed back on Valcyte because I had an active CMV infection they detected in my last bronch but otherwise I would not have to take it either.
The others I am pretty certain that I will take forever or at least longer term but the rejection meds are definitely an all the time thing.
That being said different organ transplants have different protocols. Meaning I have to take 3 antirejection meds all the time BUT I know a liver transplant patient that was taking cellcept, prednisone and prograf that now only takes prograf. So I guess it depends on the type of transplant you have and the center and such.
Love Linds
coltsfan715
New member
I second what Transplant mommy said.
In the first year post transplant I took the following:
Anti Rejection:
Prednisone
Cellcept
Prograf
Other:
Sporanox - antifungal
Valcyte - antiviral
Magnesium Oxide - supplement (b/c of Prograf)
Prevacid - reflux
Levaquin - thyroid
Cardizem - blood pressure (b/c of Prograf)
Mycelex - antifungal
Allegra - allergies
CF - CFRD:
Ultrase MT20
Novolog - insulin
I took most of the meds pre transplant - allegra was changed from Allegra D (I took before transplant) because you can't take anything with the Decongestant like Psuedoephedrine or something.
I was taken off Sporanox and Valcyte after my annual and was just placed back on Valcyte because I had an active CMV infection they detected in my last bronch but otherwise I would not have to take it either.
The others I am pretty certain that I will take forever or at least longer term but the rejection meds are definitely an all the time thing.
That being said different organ transplants have different protocols. Meaning I have to take 3 antirejection meds all the time BUT I know a liver transplant patient that was taking cellcept, prednisone and prograf that now only takes prograf. So I guess it depends on the type of transplant you have and the center and such.
Love Linds
In the first year post transplant I took the following:
Anti Rejection:
Prednisone
Cellcept
Prograf
Other:
Sporanox - antifungal
Valcyte - antiviral
Magnesium Oxide - supplement (b/c of Prograf)
Prevacid - reflux
Levaquin - thyroid
Cardizem - blood pressure (b/c of Prograf)
Mycelex - antifungal
Allegra - allergies
CF - CFRD:
Ultrase MT20
Novolog - insulin
I took most of the meds pre transplant - allegra was changed from Allegra D (I took before transplant) because you can't take anything with the Decongestant like Psuedoephedrine or something.
I was taken off Sporanox and Valcyte after my annual and was just placed back on Valcyte because I had an active CMV infection they detected in my last bronch but otherwise I would not have to take it either.
The others I am pretty certain that I will take forever or at least longer term but the rejection meds are definitely an all the time thing.
That being said different organ transplants have different protocols. Meaning I have to take 3 antirejection meds all the time BUT I know a liver transplant patient that was taking cellcept, prednisone and prograf that now only takes prograf. So I guess it depends on the type of transplant you have and the center and such.
Love Linds
coltsfan715
New member
I second what Transplant mommy said.
In the first year post transplant I took the following:
Anti Rejection:
Prednisone
Cellcept
Prograf
Other:
Sporanox - antifungal
Valcyte - antiviral
Magnesium Oxide - supplement (b/c of Prograf)
Prevacid - reflux
Levaquin - thyroid
Cardizem - blood pressure (b/c of Prograf)
Mycelex - antifungal
Allegra - allergies
CF - CFRD:
Ultrase MT20
Novolog - insulin
I took most of the meds pre transplant - allegra was changed from Allegra D (I took before transplant) because you can't take anything with the Decongestant like Psuedoephedrine or something.
I was taken off Sporanox and Valcyte after my annual and was just placed back on Valcyte because I had an active CMV infection they detected in my last bronch but otherwise I would not have to take it either.
The others I am pretty certain that I will take forever or at least longer term but the rejection meds are definitely an all the time thing.
That being said different organ transplants have different protocols. Meaning I have to take 3 antirejection meds all the time BUT I know a liver transplant patient that was taking cellcept, prednisone and prograf that now only takes prograf. So I guess it depends on the type of transplant you have and the center and such.
Love Linds
In the first year post transplant I took the following:
Anti Rejection:
Prednisone
Cellcept
Prograf
Other:
Sporanox - antifungal
Valcyte - antiviral
Magnesium Oxide - supplement (b/c of Prograf)
Prevacid - reflux
Levaquin - thyroid
Cardizem - blood pressure (b/c of Prograf)
Mycelex - antifungal
Allegra - allergies
CF - CFRD:
Ultrase MT20
Novolog - insulin
I took most of the meds pre transplant - allegra was changed from Allegra D (I took before transplant) because you can't take anything with the Decongestant like Psuedoephedrine or something.
I was taken off Sporanox and Valcyte after my annual and was just placed back on Valcyte because I had an active CMV infection they detected in my last bronch but otherwise I would not have to take it either.
The others I am pretty certain that I will take forever or at least longer term but the rejection meds are definitely an all the time thing.
That being said different organ transplants have different protocols. Meaning I have to take 3 antirejection meds all the time BUT I know a liver transplant patient that was taking cellcept, prednisone and prograf that now only takes prograf. So I guess it depends on the type of transplant you have and the center and such.
Love Linds
coltsfan715
New member
I second what Transplant mommy said.
<br />
<br />In the first year post transplant I took the following:
<br />
<br />Anti Rejection:
<br />Prednisone
<br />Cellcept
<br />Prograf
<br />
<br />Other:
<br />Sporanox - antifungal
<br />Valcyte - antiviral
<br />Magnesium Oxide - supplement (b/c of Prograf)
<br />Prevacid - reflux
<br />Levaquin - thyroid
<br />Cardizem - blood pressure (b/c of Prograf)
<br />Mycelex - antifungal
<br />Allegra - allergies
<br />
<br />CF - CFRD:
<br />Ultrase MT20
<br />Novolog - insulin
<br />
<br />
<br />I took most of the meds pre transplant - allegra was changed from Allegra D (I took before transplant) because you can't take anything with the Decongestant like Psuedoephedrine or something.
<br />
<br />I was taken off Sporanox and Valcyte after my annual and was just placed back on Valcyte because I had an active CMV infection they detected in my last bronch but otherwise I would not have to take it either.
<br />
<br />The others I am pretty certain that I will take forever or at least longer term but the rejection meds are definitely an all the time thing.
<br />
<br />That being said different organ transplants have different protocols. Meaning I have to take 3 antirejection meds all the time BUT I know a liver transplant patient that was taking cellcept, prednisone and prograf that now only takes prograf. So I guess it depends on the type of transplant you have and the center and such.
<br />
<br />
<br />Love Linds
<br />
<br />In the first year post transplant I took the following:
<br />
<br />Anti Rejection:
<br />Prednisone
<br />Cellcept
<br />Prograf
<br />
<br />Other:
<br />Sporanox - antifungal
<br />Valcyte - antiviral
<br />Magnesium Oxide - supplement (b/c of Prograf)
<br />Prevacid - reflux
<br />Levaquin - thyroid
<br />Cardizem - blood pressure (b/c of Prograf)
<br />Mycelex - antifungal
<br />Allegra - allergies
<br />
<br />CF - CFRD:
<br />Ultrase MT20
<br />Novolog - insulin
<br />
<br />
<br />I took most of the meds pre transplant - allegra was changed from Allegra D (I took before transplant) because you can't take anything with the Decongestant like Psuedoephedrine or something.
<br />
<br />I was taken off Sporanox and Valcyte after my annual and was just placed back on Valcyte because I had an active CMV infection they detected in my last bronch but otherwise I would not have to take it either.
<br />
<br />The others I am pretty certain that I will take forever or at least longer term but the rejection meds are definitely an all the time thing.
<br />
<br />That being said different organ transplants have different protocols. Meaning I have to take 3 antirejection meds all the time BUT I know a liver transplant patient that was taking cellcept, prednisone and prograf that now only takes prograf. So I guess it depends on the type of transplant you have and the center and such.
<br />
<br />
<br />Love Linds