The last month has been pure hell. It's a fight every single day to get my daughter, Cassidy, to eat. She's eleven months old and she gets 4-5 bottles a day, plus stage 2 baby food. She doesn't want to eat anything. Not the baby food, not her bottles. She'll eat cheerios without a fit but that's it. She screams and cries through all her bottles and meals. I feed her every three hours or so throughout the day. If I wait until she indicates she's hungry she'll go all day only drinking six ounces or so.
Six weeks ago or so Cassidy developed bronchitis. Her appetite before that was great - she was drinking 30 ounces or more a day plus eating two to three jars of baby food and finger foods. The bronchitis of course affected her appetite and she didn't want to drink her bottles anymore. A week into the bronchitis she was diagnosed with CF and started all the meds (she gets xopinex twice a day, pulmicort twice a day, pulmozyme once a day, tanafed twice a day, nasonex twice a day, creon 5 microspheres one to two pills with each feeding, vitamax vitamin drops .5 ml twice a day). She's been over the bronchitis for a while now and is otherwise healthy (had a bit of a cold she just kicked last week). But still she won't eat. And it seems to be getting worse. I am seriously at my wits end here. I'm miserable, my husband's miserable and the baby is miserable whenever it's meal time. She fusses and cries throughout the meal.
Has anyone else had any trouble like this? Could it be related to the CF? I just don't know. We took her to her pediatrician and she was no help at all. This is a huge issue for our family and we seriously need help. I just don't know how much longer we can go on like this. Something has to change.
I just started Cassie on Zantac yesterday hoping maybe it was reflux bothering her. Her pulmonoligist said we should see results today but so far no improvement at all. Any ideas, similar experiences and such would be really, really appreciated.
Thanks.
Six weeks ago or so Cassidy developed bronchitis. Her appetite before that was great - she was drinking 30 ounces or more a day plus eating two to three jars of baby food and finger foods. The bronchitis of course affected her appetite and she didn't want to drink her bottles anymore. A week into the bronchitis she was diagnosed with CF and started all the meds (she gets xopinex twice a day, pulmicort twice a day, pulmozyme once a day, tanafed twice a day, nasonex twice a day, creon 5 microspheres one to two pills with each feeding, vitamax vitamin drops .5 ml twice a day). She's been over the bronchitis for a while now and is otherwise healthy (had a bit of a cold she just kicked last week). But still she won't eat. And it seems to be getting worse. I am seriously at my wits end here. I'm miserable, my husband's miserable and the baby is miserable whenever it's meal time. She fusses and cries throughout the meal.
Has anyone else had any trouble like this? Could it be related to the CF? I just don't know. We took her to her pediatrician and she was no help at all. This is a huge issue for our family and we seriously need help. I just don't know how much longer we can go on like this. Something has to change.
I just started Cassie on Zantac yesterday hoping maybe it was reflux bothering her. Her pulmonoligist said we should see results today but so far no improvement at all. Any ideas, similar experiences and such would be really, really appreciated.
Thanks.