trying to learn more...

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dawnandchris9702

New member
My nephew will be one year old in march, he was recently diagnosed with cf.. he lives in Missouri, and I'm in Utah....I really have no idea what cf is and what we should expect for his future, if anyone could clue me in..that would be great

Thanks!!
 
D

dawnandchris9702

New member
My nephew will be one year old in march, he was recently diagnosed with cf.. he lives in Missouri, and I'm in Utah....I really have no idea what cf is and what we should expect for his future, if anyone could clue me in..that would be great

Thanks!!
 
D

dawnandchris9702

New member
My nephew will be one year old in march, he was recently diagnosed with cf.. he lives in Missouri, and I'm in Utah....I really have no idea what cf is and what we should expect for his future, if anyone could clue me in..that would be great

Thanks!!
 
J

JazzysMom

New member
There is so much to CF to learn & quite frankly that would be over whelming for you. The basics are that most CFers have digestive & respiratory issues that require medications of different forms to keep things at bay. In addition to the meds there are exercises & therapy that is done to help keep the lungs clear of the thick mucuous that CFers get. The malabsorbtion & loung infections are the biggest problems in early years. CFRD (cystic fibrosis related diabetes) and a few other things dont usually start until later in years. Besides reading here may I suggest you review the frequently asked question section & maybe stop at the library for some of the recommended books. I have enclosed both links for them. If you already know some info, but have questions that is where we would come in the easiest I think.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/faq.cfm
">http://www.cysticfibrosis.com/faq.cfm
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/books.cfm">http://www.cysticfibrosis.com/books.cfm</a>
 
J

JazzysMom

New member
There is so much to CF to learn & quite frankly that would be over whelming for you. The basics are that most CFers have digestive & respiratory issues that require medications of different forms to keep things at bay. In addition to the meds there are exercises & therapy that is done to help keep the lungs clear of the thick mucuous that CFers get. The malabsorbtion & loung infections are the biggest problems in early years. CFRD (cystic fibrosis related diabetes) and a few other things dont usually start until later in years. Besides reading here may I suggest you review the frequently asked question section & maybe stop at the library for some of the recommended books. I have enclosed both links for them. If you already know some info, but have questions that is where we would come in the easiest I think.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/faq.cfm
">http://www.cysticfibrosis.com/faq.cfm
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/books.cfm">http://www.cysticfibrosis.com/books.cfm</a>
 
J

JazzysMom

New member
There is so much to CF to learn & quite frankly that would be over whelming for you. The basics are that most CFers have digestive & respiratory issues that require medications of different forms to keep things at bay. In addition to the meds there are exercises & therapy that is done to help keep the lungs clear of the thick mucuous that CFers get. The malabsorbtion & loung infections are the biggest problems in early years. CFRD (cystic fibrosis related diabetes) and a few other things dont usually start until later in years. Besides reading here may I suggest you review the frequently asked question section & maybe stop at the library for some of the recommended books. I have enclosed both links for them. If you already know some info, but have questions that is where we would come in the easiest I think.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/faq.cfm
">http://www.cysticfibrosis.com/faq.cfm
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/books.cfm">http://www.cysticfibrosis.com/books.cfm</a>
 
D

dawnandchris9702

New member
Thank you ...I will definatly visit the sites you recommended. So far he seemed healthy, the only concern was his lack of wieght gain. He went in for lots of test concluding he has cf. My sister-in law(its her child) I think is just in denial and they are taking him in for another round of tests hoping the results are different.
Thanks again!
 
D

dawnandchris9702

New member
Thank you ...I will definatly visit the sites you recommended. So far he seemed healthy, the only concern was his lack of wieght gain. He went in for lots of test concluding he has cf. My sister-in law(its her child) I think is just in denial and they are taking him in for another round of tests hoping the results are different.
Thanks again!
 
D

dawnandchris9702

New member
Thank you ...I will definatly visit the sites you recommended. So far he seemed healthy, the only concern was his lack of wieght gain. He went in for lots of test concluding he has cf. My sister-in law(its her child) I think is just in denial and they are taking him in for another round of tests hoping the results are different.
Thanks again!
 
T

tammykrumrey

Guest
Where in Missouri? We live in Missouri, the St. Louis area.
 
T

tammykrumrey

Guest
Where in Missouri? We live in Missouri, the St. Louis area.
 
T

tammykrumrey

Guest
Where in Missouri? We live in Missouri, the St. Louis area.
 
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