Trying to tell my daughter

A

anonymous

New member
Hello, My name is Angie mom of two cfers
My grl now 11 is going through a tough time i see a change in her atitude
a typ of lonelyness she has a few friends however being number 4 in a family of 8 children
her friends lend not much to her perhaps its the teenage thing but we just had a new girlfriend of my oldest son come to my home and this grls best friend has CF i found out when the child was already in my home my naomi was so happy to be able to talk to some one she finally had some thing incommin with and that scared me the simple fact that i have no idia ofthis grls medical history what she cultured ect. and if she has something that could get my kids sick or if they can get her sick how do i tell my grl that its not all that safe to be with other CF children in a nice way or am.i just to NUTS



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A

anonymous

New member
Angie,
You are NOT nuts. The docs have to err on the side of caution and so they are very careful to avoid cross-contamination when it comes to their patients. HOWEVER, I think your daughter is just as likley to pick up a bacteria from another source (air, soil, a hot tub, a basement, a non- CFer, ect...) as from a CFer. Some of us will always grow out certain bacteria like pseudomonous and some of us never do. There is nothing you can do to protect her from culturing new bacteria, shot of putting her in a bubble. I've had a few other good friends with CF and as long as we avoided eachother when we were sick, things went fine.

That said, it's totally normal to have anxiety over things like this.

I think it is very important for her to have a sense of belonging and it is always helpful to talk to folks who are in the same boat, especially if they are a little older. I hope she comes to this forum so we can meet her.
Debbie
23 w/ CF
 
N

NoDayButToday

New member
Choosing whether or not to be in the presence of other CFers is a choice every CFer and their family has to make. My mom and I choose not to live our lives shunning or pushing other people away because they may culture something I don't. I have to say, talking with CFers is great- no one can quite relate to you like a CFer can. GOod luck in what you decide
 
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