tummy aches

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anonymous

New member
Hi everyone

Any advice on the cause of bad tummy aches? I'm waiting for our CF nurse to call back, but we have recently increased our son's calorie/fat intake (sometimes increasing the enzyme dosage with this). He does seem to be going to the restroom more, without any problem. He complains frequently that his stomach hurts. He'll even double over and start crying. I'll ask if he needs to go to the bathroom - - sometimes he does, sometimes he doesn't. The other night, he was complaining of this and ended up throwing up. Any ideas?? I'll keep you posted on what our nurse says. I'm wondering how common this is, though.

Thanks for any input!

Carey
 
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anonymous

New member
I know one time someone mentioned this on another site and there was something funky going on with the enzymes. They thought they'd gotten spoiled. Another time someone realized their regular enzymes had been replaced with generics at the pharmacy.
 
A

anonymous

New member
That's really weird cause that happened to me twice exactly a month apart but the nurses and the doctors couldn't tell me what was up...the pain felt like heart burn...then I puked all day
 
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JazzysMom

New member
In the hospital I had severe abdominmal pain & hugged the trash can vomiting......it ended up being severe constipation. I didnt know it because I was going to the bathroom just not enough evidently. They had done xrays of my belly & the doctor told me I was filled to capacity. I told her that wasnt anything new......people always tell me that I am full of sh--! Sorry---LOL!
 
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julie

New member
Carey, just a personal recommendation of what works for Mark... He's always had digestive problems, always had to eat a LOT (A LOT!!!!!!!!!!!!) to maintain weight. He discovered when he was younger that varying his meals helped. What I mean by this is every other meal he will have solid food, then the next meal he will eat something liquid, seems to help with the digestion. He doesn't get too "stuffed, stopped up, backed up....". He'll have a shake in the morning for breakfast (for a child maybe carnation liquid breakfast, McDonalds type milkshake using the carnation breakfast, McDonalds type milkshake using any sort of scandishake calroie booster, Boost or Ensure Plus protein shake), then the next meal 2 hours later will be something solid (eggs, boiled egg, leftovers from previous night's dinner, ham, hot oatmeal) then next meal he will have something liquid.

This didn't come to him/us via any recommendation from doctors, nurses or dietician. He just discovered it is what has worked for him and he is able to eat more (as he's gotten older) and actually put on weight instead of just maintain. Maybe worth a try?
 
J

julie

New member
Carey, just a personal recommendation of what works for Mark... He's always had digestive problems, always had to eat a LOT (A LOT!!!!!!!!!!!!) to maintain weight. He discovered when he was younger that varying his meals helped. What I mean by this is every other meal he will have solid food, then the next meal he will eat something liquid, seems to help with the digestion. He doesn't get too "stuffed, stopped up, backed up....". He'll have a shake in the morning for breakfast (for a child maybe carnation liquid breakfast, McDonalds type milkshake using the carnation breakfast, McDonalds type milkshake using any sort of scandishake calroie booster, Boost or Ensure Plus protein shake), then the next meal 2 hours later will be something solid (eggs, boiled egg, leftovers from previous night's dinner, ham, hot oatmeal) then next meal he will have something liquid.

This didn't come to him/us via any recommendation from doctors, nurses or dietician. He just discovered it is what has worked for him and he is able to eat more (as he's gotten older) and actually put on weight instead of just maintain. Maybe worth a try?
 
A

anonymous

New member
When DS was about 6 months old he was pooping regularly, but he was also spitting up. Had a regular clinic appoinment and the doctor wanted to do an xray to check his lungs 'cuz of a bout of bronchitis. He noticed something in the xrays and had a series done -- lower abdomen. Turned out DS was really really constipated. Happens with cfers -- clogged up with poo, but still going. So he prescribed milk of mag -- 1 tsp twice a day until DS got stuff cleared up, moved out. Said that in some of his older patients, they just get a "feeling" and start taking milk of mag or use other options. Was really embarrassing to have the nurse call and say that DS was full of poo (constipated), but we didn't know 'cuz he was still being a little poo machine.
 
A

anonymous

New member
When DS was about 6 months old he was pooping regularly, but he was also spitting up. Had a regular clinic appoinment and the doctor wanted to do an xray to check his lungs 'cuz of a bout of bronchitis. He noticed something in the xrays and had a series done -- lower abdomen. Turned out DS was really really constipated. Happens with cfers -- clogged up with poo, but still going. So he prescribed milk of mag -- 1 tsp twice a day until DS got stuff cleared up, moved out. Said that in some of his older patients, they just get a "feeling" and start taking milk of mag or use other options. Was really embarrassing to have the nurse call and say that DS was full of poo (constipated), but we didn't know 'cuz he was still being a little poo machine.
 
A

anonymous

New member
Wow, thanks for all the good words of wisdom, folks. Julie, your post makes total sense to me. I'm going to try it. My son happens to be more a fan of liquids than solids anyway. Maybe I could give him a solid breakfast, then his Boost Plus drinks in between for snacks. I'm going to try this and see what happens - I'll keep you posted. And Julie, I'm convinced you should write a book. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Every post I write, you have something so helpful.... thanks, as always.

Carey
 
A

anonymous

New member
Wow, thanks for all the good words of wisdom, folks. Julie, your post makes total sense to me. I'm going to try it. My son happens to be more a fan of liquids than solids anyway. Maybe I could give him a solid breakfast, then his Boost Plus drinks in between for snacks. I'm going to try this and see what happens - I'll keep you posted. And Julie, I'm convinced you should write a book. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Every post I write, you have something so helpful.... thanks, as always.

Carey
 
A

anonymous

New member
I used to have very very bad stomach aches as well...mine weren't a result of enzymes though...I went on Prilosec and within days they went away...haven't had them since. Still certain foods do hurt my tummy, but not like it used to be. I used to have to stay in bed the pain was so bad at times. I have had some issues though with enzymes too...when I was on MT20's I had more stomach aches...I switched to a lower strength and increased my dosage and that went away.
Just my experiences...good luck!
<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
A

anonymous

New member
I used to have very very bad stomach aches as well...mine weren't a result of enzymes though...I went on Prilosec and within days they went away...haven't had them since. Still certain foods do hurt my tummy, but not like it used to be. I used to have to stay in bed the pain was so bad at times. I have had some issues though with enzymes too...when I was on MT20's I had more stomach aches...I switched to a lower strength and increased my dosage and that went away.
Just my experiences...good luck!
<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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