Sorry- I'm not sure where else to ask. I am currently 5.5 months pregnant with my daughter, who may have CF. My OB-GYN told me that I will be able to get another ultrasound at 28 weeks to ensure that the bowels look clear (to be aware of potential probs at delivery). I didn't think to ask if I would be getting any after that. The ultrasound dr. seemed completely unconcerned and didn't even seem to think the 28 week was necessary, but I'm not even really sure he knew my name, let alone my situation. After all that long-winded-ness, here is my question: At what point can I get an ultrasound showing clear bowels and not worry that it will develop between that time and delivery. for example, if I had one at 39 weeks, I'm pretty sure a problem would not develop in one week. I'm not saying I need one at 39 weeks, but you know what I mean? I'll ask my dr., too, but I can't seem to wait three weeks to talk about this! Thanks so much for your insight...you guys are the best!
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ultrasounds/bowels
- Thread starter anonymous
- Start date
Sorry- I'm not sure where else to ask. I am currently 5.5 months pregnant with my daughter, who may have CF. My OB-GYN told me that I will be able to get another ultrasound at 28 weeks to ensure that the bowels look clear (to be aware of potential probs at delivery). I didn't think to ask if I would be getting any after that. The ultrasound dr. seemed completely unconcerned and didn't even seem to think the 28 week was necessary, but I'm not even really sure he knew my name, let alone my situation. After all that long-winded-ness, here is my question: At what point can I get an ultrasound showing clear bowels and not worry that it will develop between that time and delivery. for example, if I had one at 39 weeks, I'm pretty sure a problem would not develop in one week. I'm not saying I need one at 39 weeks, but you know what I mean? I'll ask my dr., too, but I can't seem to wait three weeks to talk about this! Thanks so much for your insight...you guys are the best!
I had routine ultrasounds throughout my pregnancy for our now 4 year old son with cf. When I was 7 months pregant is when they found the blocked (which ended up being a burst) bowel. Are you and your husband both carriers? If so after your 28 week ultrasound I would suggest another one just in case. We found out my son had CF before he was born. Right after the ultrasound I had an amnio. This made it possible to get everything scheduled for his delivery which we had to go to a hospital 2 hours from our home and I was required to have him c-section because of the bowel problem. If we wouldn't of known any of this our hospital wouldn't of been prepared for him. Good Luck with everything!
Angie- fourkidsmom not logged in
Step mom to Brittany 14 no cf
Mom to Tyler 12 no cf, cf carrier
Mom to Brady 4 with cf
Mom to Taylor 3 no cf, but chromosome 9q 21.2 q 22.1 deletion
Angie- fourkidsmom not logged in
Step mom to Brittany 14 no cf
Mom to Tyler 12 no cf, cf carrier
Mom to Brady 4 with cf
Mom to Taylor 3 no cf, but chromosome 9q 21.2 q 22.1 deletion
I had routine ultrasounds throughout my pregnancy for our now 4 year old son with cf. When I was 7 months pregant is when they found the blocked (which ended up being a burst) bowel. Are you and your husband both carriers? If so after your 28 week ultrasound I would suggest another one just in case. We found out my son had CF before he was born. Right after the ultrasound I had an amnio. This made it possible to get everything scheduled for his delivery which we had to go to a hospital 2 hours from our home and I was required to have him c-section because of the bowel problem. If we wouldn't of known any of this our hospital wouldn't of been prepared for him. Good Luck with everything!
Angie- fourkidsmom not logged in
Step mom to Brittany 14 no cf
Mom to Tyler 12 no cf, cf carrier
Mom to Brady 4 with cf
Mom to Taylor 3 no cf, but chromosome 9q 21.2 q 22.1 deletion
Angie- fourkidsmom not logged in
Step mom to Brittany 14 no cf
Mom to Tyler 12 no cf, cf carrier
Mom to Brady 4 with cf
Mom to Taylor 3 no cf, but chromosome 9q 21.2 q 22.1 deletion
ashton2005
New member
I began getting ultrasounds every 2-3 weeks after we found out that my husband and i were carriers. It was somewhere around 28-30 weeks that we say the echogenic bowel, which at birth we found out that it wasent formed where the blockage was located almost like it hd burst and not reconnected like the maternal fetal medicine doctors told me it would if it had happened. I delivered at 35 weeks due to my water breaking. But definetaly ask about this with your Ob so that you can make sure everything is in line at the hospitl in case you need the NICU or any speial care at the delivery.. Good luck
christi
Ashton 3 1/2 mo w/ cf
Abbi 5 yo without cf
christi
Ashton 3 1/2 mo w/ cf
Abbi 5 yo without cf
ashton2005
New member
I began getting ultrasounds every 2-3 weeks after we found out that my husband and i were carriers. It was somewhere around 28-30 weeks that we say the echogenic bowel, which at birth we found out that it wasent formed where the blockage was located almost like it hd burst and not reconnected like the maternal fetal medicine doctors told me it would if it had happened. I delivered at 35 weeks due to my water breaking. But definetaly ask about this with your Ob so that you can make sure everything is in line at the hospitl in case you need the NICU or any speial care at the delivery.. Good luck
christi
Ashton 3 1/2 mo w/ cf
Abbi 5 yo without cf
christi
Ashton 3 1/2 mo w/ cf
Abbi 5 yo without cf
Hi,
I think that statistics are that 5% to 10% of babies with CF will suffer from a blockage due to meconium ileus. However, I think those stats are WRONG. I think it's more like 25% to %30 thats just my opinion from talking with people on this forum.
My son was diagnosed with CF after an amnio at 16 weeks. At the time of the amnio they did L2 u/s which showed an "echogenic bowel".
At 20 weeks I had another u/s that showed an "echogenic bowel"
At 31 weeks I had a L2 u/s at the perinatologist office which showed a dilated bowel 1cm
At around 35 weeks the L2 u/s showed dilation of 1.7 cm
At 37 weeks L2 u/s showed 2.6 cm dilation
My baby was also very large he was 10 lbs at 37 weeks.
They would not approve an early induction nor did they think it was necessary to do a c/section.
At 39 weeks his bowel ruptured, there was ALOT of fluid, I think because of his size, but don't really know why.
This fluid put a lot of pressure on his heart causing him to go into distress.
He stopped moving and I went to the hospital due to decreased fetal movement at 9:30 pm.
They hooked me up to the fetal monitor and his heart rate was 198 bpm and did not fluctuate.
They were not equiped with a NICU so we had to wait for a team from the children's hospital to get to us before he could be delivered.
He was born at 1:49 am not moving, scored 0 on his apgar.
They resusitated him for several minutes, and stabalized him.
He weiged 11 lbs 2 ozs at birth.
He spent 3 weeks in the NICU and was diagnosed with severe spastic quadraplegia cerebral palsy due to the lack of oxygen.
I am not telling you this to scare you, just to make you aware that a lot of doctors don't know what they are doing, this condition is not very common. I knew our baby should have been delivered early and via c/section, but they treated me like an overreacting mother who didn't know anything.
If your baby starts to show echogenic bowel or dilation of the bowel make them listen to your concerns or find another doctor, talk to a CF clinic, anything. And make sure your baby is born in a hospital with a NICU.
Jen
I think that statistics are that 5% to 10% of babies with CF will suffer from a blockage due to meconium ileus. However, I think those stats are WRONG. I think it's more like 25% to %30 thats just my opinion from talking with people on this forum.
My son was diagnosed with CF after an amnio at 16 weeks. At the time of the amnio they did L2 u/s which showed an "echogenic bowel".
At 20 weeks I had another u/s that showed an "echogenic bowel"
At 31 weeks I had a L2 u/s at the perinatologist office which showed a dilated bowel 1cm
At around 35 weeks the L2 u/s showed dilation of 1.7 cm
At 37 weeks L2 u/s showed 2.6 cm dilation
My baby was also very large he was 10 lbs at 37 weeks.
They would not approve an early induction nor did they think it was necessary to do a c/section.
At 39 weeks his bowel ruptured, there was ALOT of fluid, I think because of his size, but don't really know why.
This fluid put a lot of pressure on his heart causing him to go into distress.
He stopped moving and I went to the hospital due to decreased fetal movement at 9:30 pm.
They hooked me up to the fetal monitor and his heart rate was 198 bpm and did not fluctuate.
They were not equiped with a NICU so we had to wait for a team from the children's hospital to get to us before he could be delivered.
He was born at 1:49 am not moving, scored 0 on his apgar.
They resusitated him for several minutes, and stabalized him.
He weiged 11 lbs 2 ozs at birth.
He spent 3 weeks in the NICU and was diagnosed with severe spastic quadraplegia cerebral palsy due to the lack of oxygen.
I am not telling you this to scare you, just to make you aware that a lot of doctors don't know what they are doing, this condition is not very common. I knew our baby should have been delivered early and via c/section, but they treated me like an overreacting mother who didn't know anything.
If your baby starts to show echogenic bowel or dilation of the bowel make them listen to your concerns or find another doctor, talk to a CF clinic, anything. And make sure your baby is born in a hospital with a NICU.
Jen
Hi,
I think that statistics are that 5% to 10% of babies with CF will suffer from a blockage due to meconium ileus. However, I think those stats are WRONG. I think it's more like 25% to %30 thats just my opinion from talking with people on this forum.
My son was diagnosed with CF after an amnio at 16 weeks. At the time of the amnio they did L2 u/s which showed an "echogenic bowel".
At 20 weeks I had another u/s that showed an "echogenic bowel"
At 31 weeks I had a L2 u/s at the perinatologist office which showed a dilated bowel 1cm
At around 35 weeks the L2 u/s showed dilation of 1.7 cm
At 37 weeks L2 u/s showed 2.6 cm dilation
My baby was also very large he was 10 lbs at 37 weeks.
They would not approve an early induction nor did they think it was necessary to do a c/section.
At 39 weeks his bowel ruptured, there was ALOT of fluid, I think because of his size, but don't really know why.
This fluid put a lot of pressure on his heart causing him to go into distress.
He stopped moving and I went to the hospital due to decreased fetal movement at 9:30 pm.
They hooked me up to the fetal monitor and his heart rate was 198 bpm and did not fluctuate.
They were not equiped with a NICU so we had to wait for a team from the children's hospital to get to us before he could be delivered.
He was born at 1:49 am not moving, scored 0 on his apgar.
They resusitated him for several minutes, and stabalized him.
He weiged 11 lbs 2 ozs at birth.
He spent 3 weeks in the NICU and was diagnosed with severe spastic quadraplegia cerebral palsy due to the lack of oxygen.
I am not telling you this to scare you, just to make you aware that a lot of doctors don't know what they are doing, this condition is not very common. I knew our baby should have been delivered early and via c/section, but they treated me like an overreacting mother who didn't know anything.
If your baby starts to show echogenic bowel or dilation of the bowel make them listen to your concerns or find another doctor, talk to a CF clinic, anything. And make sure your baby is born in a hospital with a NICU.
Jen
I think that statistics are that 5% to 10% of babies with CF will suffer from a blockage due to meconium ileus. However, I think those stats are WRONG. I think it's more like 25% to %30 thats just my opinion from talking with people on this forum.
My son was diagnosed with CF after an amnio at 16 weeks. At the time of the amnio they did L2 u/s which showed an "echogenic bowel".
At 20 weeks I had another u/s that showed an "echogenic bowel"
At 31 weeks I had a L2 u/s at the perinatologist office which showed a dilated bowel 1cm
At around 35 weeks the L2 u/s showed dilation of 1.7 cm
At 37 weeks L2 u/s showed 2.6 cm dilation
My baby was also very large he was 10 lbs at 37 weeks.
They would not approve an early induction nor did they think it was necessary to do a c/section.
At 39 weeks his bowel ruptured, there was ALOT of fluid, I think because of his size, but don't really know why.
This fluid put a lot of pressure on his heart causing him to go into distress.
He stopped moving and I went to the hospital due to decreased fetal movement at 9:30 pm.
They hooked me up to the fetal monitor and his heart rate was 198 bpm and did not fluctuate.
They were not equiped with a NICU so we had to wait for a team from the children's hospital to get to us before he could be delivered.
He was born at 1:49 am not moving, scored 0 on his apgar.
They resusitated him for several minutes, and stabalized him.
He weiged 11 lbs 2 ozs at birth.
He spent 3 weeks in the NICU and was diagnosed with severe spastic quadraplegia cerebral palsy due to the lack of oxygen.
I am not telling you this to scare you, just to make you aware that a lot of doctors don't know what they are doing, this condition is not very common. I knew our baby should have been delivered early and via c/section, but they treated me like an overreacting mother who didn't know anything.
If your baby starts to show echogenic bowel or dilation of the bowel make them listen to your concerns or find another doctor, talk to a CF clinic, anything. And make sure your baby is born in a hospital with a NICU.
Jen