Hi all. First of all thank you to all of you for your prayers and e mails of support and encouragement. It has been a rough time for me. After being advised to medically abort at 21 weeks, I decided to keep my babies I considered a gift from God and put them and myself in God's hands. I was able to hold out till 26 weeks, when I could not breathe anymore because of an ongoing infection and the fact the twins were taking protein and calories from me. On January 7, 2004 I gave birth to Paul Anthony and Sarah Dorothy each weighing just over 1 lb. They performed a c section and I made it through that ok. It was 13 days after the birth I crashed and went into resp. failure. I don't even remember my CO2 was over 90% and I had to be intubated. I was on a respirator for close to 2 weeks, and they had to trach me to give my lungs time to recover from this infection my body could not kick. I am now out of ICU I am making great progress, quicker then the drs ever expected. But then again they doubted the power of a mother's love. I kept listened to the Celine Dion song "Love can move Mountains" when I was in hospital trying to get through each week to give my babies the best odds for survival. Right now they are still in ICU and I get to see them everyday. They are my miracles. Right now the issues with them are to get them nutrition and get their lungs strong enough to get of vent. and of course keep them infection free. We are not out of the woods but they seem to have a fighting spirit. My biggest wish is that my children can come home and we can be a family. I also wish they could grow up in a world without CF. This whole experience made me want to fight harder to beat this horrible disease. Kathi
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
update on CF woman with twins
- Thread starter anonymous
- Start date
I WAS REALLY TOUCHED BY YOUR STORY AND VERY HAPPY OF THE FACT THAT YOU ACTUALLY GOT TO HAVE THE CHANCE TO BE A MOTHER MY PRAYERS ARE WITH YOU AND YOUR CHILDREN EVERYDAY. IM ACUALLY A MOTHER OF A BEAUTIFUL LITTLE GIRL WHO HAS CF.I WISH YIOU THE BEST AND PRAY THAT YOU GET TO BRING YOUR CHILDREN HOME.SO THAT YOU MAY EXPERIANCE A LONG LIFE OF MOTHERHOOD GOD BLESS AND TAKE CARE OF THEM LITTLE BABIES.AND ALWAYS REMEMBER GODS DECSIONS ARE FOR A REASON K.C.