Things are still the same really.. but i'm home again now. My doctor had a few tests back today. The bloodtests, that showed EBV for the first time. Needs to be below 2 like it has been till now but was 9 now.. So i have to go back every 2 weeks now to let that get checked. I didn't have EBV before my transplant so we have to see what this will do.
Yesterday, my last day of tests they did a bronchoscopie.. Everything looked ok, that's what the doctor said who had done it (i don't know him). So i was happy, he said you couldn't even see the lines where they stitched it, if you didn't know it was there, he said. It was a little sore after but that isn't unusual because of the biopties they did.
Now today my doc called with the first results of the bronch like he said he would.. And guess what.. Only 1 of the 5 samples contained lung tissue! The others were with tissue from outside my lung... So they punctured it 4 times.. They didn't see it in the x-ray they took after the procedure.. It's probably cause by the fact that the lungs i got are a little weak.. (that's probably why my pft's didn't go up anymore too, usually just below 50%). Luckely the lung didn't collapse, but i just have to take it easy now and see i don't get short of breath or something like that. It's a little bubbly sometimes, i can feel it move.. But it's ok, so i hope it heals soon. The one bioptie that had worked showed that all was ok, my doc prefered to have more so it would be more reliable.. But i guess we have to do with what we got now. At least no rejection in that sample.
xxx, Marjolein
Yesterday, my last day of tests they did a bronchoscopie.. Everything looked ok, that's what the doctor said who had done it (i don't know him). So i was happy, he said you couldn't even see the lines where they stitched it, if you didn't know it was there, he said. It was a little sore after but that isn't unusual because of the biopties they did.
Now today my doc called with the first results of the bronch like he said he would.. And guess what.. Only 1 of the 5 samples contained lung tissue! The others were with tissue from outside my lung... So they punctured it 4 times.. They didn't see it in the x-ray they took after the procedure.. It's probably cause by the fact that the lungs i got are a little weak.. (that's probably why my pft's didn't go up anymore too, usually just below 50%). Luckely the lung didn't collapse, but i just have to take it easy now and see i don't get short of breath or something like that. It's a little bubbly sometimes, i can feel it move.. But it's ok, so i hope it heals soon. The one bioptie that had worked showed that all was ok, my doc prefered to have more so it would be more reliable.. But i guess we have to do with what we got now. At least no rejection in that sample.
xxx, Marjolein