Update on me

Marjolein · Sep 4, 2007

Well, i did know that i was a lot more tired then i was. First i thought i just did too much and had to take it easy for a few days. But after a few quiet days i still felt the same, or even worse really. So it was going through my mind that something was up. Had a cold so thought that might have been it. But never really thought of mono as i just had it a few months ago.

Luckily no other symptoms like a higher temp or something. So we'll see what happens over the coming weeks.

Thank you all very much for the replies. I'm so happy that i 'know' all of you!

Marjolein · Sep 4, 2007

Well, i did know that i was a lot more tired then i was. First i thought i just did too much and had to take it easy for a few days. But after a few quiet days i still felt the same, or even worse really. So it was going through my mind that something was up. Had a cold so thought that might have been it. But never really thought of mono as i just had it a few months ago.

Luckily no other symptoms like a higher temp or something. So we'll see what happens over the coming weeks.

Thank you all very much for the replies. I'm so happy that i 'know' all of you!

Marjolein · Sep 4, 2007

Well, i did know that i was a lot more tired then i was. First i thought i just did too much and had to take it easy for a few days. But after a few quiet days i still felt the same, or even worse really. So it was going through my mind that something was up. Had a cold so thought that might have been it. But never really thought of mono as i just had it a few months ago.

Luckily no other symptoms like a higher temp or something. So we'll see what happens over the coming weeks.

Thank you all very much for the replies. I'm so happy that i 'know' all of you!

Marjolein · Sep 4, 2007

Well, i did know that i was a lot more tired then i was. First i thought i just did too much and had to take it easy for a few days. But after a few quiet days i still felt the same, or even worse really. So it was going through my mind that something was up. Had a cold so thought that might have been it. But never really thought of mono as i just had it a few months ago.

Luckily no other symptoms like a higher temp or something. So we'll see what happens over the coming weeks.

Thank you all very much for the replies. I'm so happy that i 'know' all of you!

Marjolein · Sep 4, 2007

Well, i did know that i was a lot more tired then i was. First i thought i just did too much and had to take it easy for a few days. But after a few quiet days i still felt the same, or even worse really. So it was going through my mind that something was up. Had a cold so thought that might have been it. But never really thought of mono as i just had it a few months ago.

Luckily no other symptoms like a higher temp or something. So we'll see what happens over the coming weeks.

Thank you all very much for the replies. I'm so happy that i 'know' all of you!

Marjolein · Sep 8, 2007

Hi all

just wanted to say i have been feeling a lot better mentally again and i'm very happy with that. I don't know what it was exactly.. i think all things from the past year and more, that it all came together.

I have been to the doctor for my back again. Got the results from the scan and they were good, nothing to see. Though he did find it a bit strange that the MRI did show inflammation of the disc. But i said it already feels much better and the MRI was in july and it was already better than, then it was in april when i couldn't even move a lot of the time.
The disc still looks strange though, that's the disc between L5 and S1 and L5 is still strange too as it is twisted a little. I had to take x-rays of my back again, one where i was bending forward and one where i was bending backwards. I went back again after the x-rays and he said it didn't look like it was moving when i bent or do something so that's good. But he is still not really happy with how it stands so he is going to talk with his supervisor on monday and he will call me back.

I took my new puffer for the first time on wednesday, the Spiriva. And i blew a record (1.58) 2 hours after that. So i was really happy. But at night i was short of breath and i blew 1.39 again.. Still good for me, but a lot lower. While the Spiriva should work for 24 hours at least..
So i took it again the next morning and my pft's were 1.39 after that, so ok. But at night (thursday) i felt short of breath again and my pft's were 1.21! Far too low i thought, i was so happpy i hadn't seen that in a few months! But here it was again.

So i decided to take the Serevent again on friday. As i can take that in the evening too. And the nights before i really felt like i needed it. It's strange. I didn't feel that with my old lungs. I was sooo used to it, and now i know the difference. Though a puffer didn't do much for me anyway with my CF lungs.

I went to see the nurse practitioner yesterday as i was at the hospital and otherwise i would have called to tell about my pft's. Even though in the morning my pft's were much better again... 1.43..
So he said i had to do pft's there and they would do a culture cause i am coughing up too, even though it's a little at the time and clear. It feels mucousy and last culture it said Pseudo so we want to know what it is now. My mom was commenting on how much i cough too.
My pft's yesterday afternoon were the highest they have ever been in the hospital! 1.45.... How strange is that!... But ofcourse it was good news.
1.30 (45%) 2 weeks ago and 1.45 (50%) yesterday..

See what it is in 6 weeks when i have to go back <img src="i/expressions/face-icon-small-smile.gif" border="0">

I will hear the results from the culture somewhere next week. He asked me if i got anything for the pseudo and i said i don't (i only get profilactic doses of Zithromax and Co-trimoxazol), so who knows i might get something for that. Maybe it will help my sinusses too so the post nasal drip will stop.

xxx, Marjolein

Marjolein · Sep 8, 2007

Hi all

just wanted to say i have been feeling a lot better mentally again and i'm very happy with that. I don't know what it was exactly.. i think all things from the past year and more, that it all came together.

I have been to the doctor for my back again. Got the results from the scan and they were good, nothing to see. Though he did find it a bit strange that the MRI did show inflammation of the disc. But i said it already feels much better and the MRI was in july and it was already better than, then it was in april when i couldn't even move a lot of the time.
The disc still looks strange though, that's the disc between L5 and S1 and L5 is still strange too as it is twisted a little. I had to take x-rays of my back again, one where i was bending forward and one where i was bending backwards. I went back again after the x-rays and he said it didn't look like it was moving when i bent or do something so that's good. But he is still not really happy with how it stands so he is going to talk with his supervisor on monday and he will call me back.

I took my new puffer for the first time on wednesday, the Spiriva. And i blew a record (1.58) 2 hours after that. So i was really happy. But at night i was short of breath and i blew 1.39 again.. Still good for me, but a lot lower. While the Spiriva should work for 24 hours at least..
So i took it again the next morning and my pft's were 1.39 after that, so ok. But at night (thursday) i felt short of breath again and my pft's were 1.21! Far too low i thought, i was so happpy i hadn't seen that in a few months! But here it was again.

So i decided to take the Serevent again on friday. As i can take that in the evening too. And the nights before i really felt like i needed it. It's strange. I didn't feel that with my old lungs. I was sooo used to it, and now i know the difference. Though a puffer didn't do much for me anyway with my CF lungs.

I went to see the nurse practitioner yesterday as i was at the hospital and otherwise i would have called to tell about my pft's. Even though in the morning my pft's were much better again... 1.43..
So he said i had to do pft's there and they would do a culture cause i am coughing up too, even though it's a little at the time and clear. It feels mucousy and last culture it said Pseudo so we want to know what it is now. My mom was commenting on how much i cough too.
My pft's yesterday afternoon were the highest they have ever been in the hospital! 1.45.... How strange is that!... But ofcourse it was good news.
1.30 (45%) 2 weeks ago and 1.45 (50%) yesterday..

See what it is in 6 weeks when i have to go back <img src="i/expressions/face-icon-small-smile.gif" border="0">

I will hear the results from the culture somewhere next week. He asked me if i got anything for the pseudo and i said i don't (i only get profilactic doses of Zithromax and Co-trimoxazol), so who knows i might get something for that. Maybe it will help my sinusses too so the post nasal drip will stop.

xxx, Marjolein

Marjolein · Sep 8, 2007

Hi all

just wanted to say i have been feeling a lot better mentally again and i'm very happy with that. I don't know what it was exactly.. i think all things from the past year and more, that it all came together.

I have been to the doctor for my back again. Got the results from the scan and they were good, nothing to see. Though he did find it a bit strange that the MRI did show inflammation of the disc. But i said it already feels much better and the MRI was in july and it was already better than, then it was in april when i couldn't even move a lot of the time.
The disc still looks strange though, that's the disc between L5 and S1 and L5 is still strange too as it is twisted a little. I had to take x-rays of my back again, one where i was bending forward and one where i was bending backwards. I went back again after the x-rays and he said it didn't look like it was moving when i bent or do something so that's good. But he is still not really happy with how it stands so he is going to talk with his supervisor on monday and he will call me back.

I took my new puffer for the first time on wednesday, the Spiriva. And i blew a record (1.58) 2 hours after that. So i was really happy. But at night i was short of breath and i blew 1.39 again.. Still good for me, but a lot lower. While the Spiriva should work for 24 hours at least..
So i took it again the next morning and my pft's were 1.39 after that, so ok. But at night (thursday) i felt short of breath again and my pft's were 1.21! Far too low i thought, i was so happpy i hadn't seen that in a few months! But here it was again.

So i decided to take the Serevent again on friday. As i can take that in the evening too. And the nights before i really felt like i needed it. It's strange. I didn't feel that with my old lungs. I was sooo used to it, and now i know the difference. Though a puffer didn't do much for me anyway with my CF lungs.

I went to see the nurse practitioner yesterday as i was at the hospital and otherwise i would have called to tell about my pft's. Even though in the morning my pft's were much better again... 1.43..
So he said i had to do pft's there and they would do a culture cause i am coughing up too, even though it's a little at the time and clear. It feels mucousy and last culture it said Pseudo so we want to know what it is now. My mom was commenting on how much i cough too.
My pft's yesterday afternoon were the highest they have ever been in the hospital! 1.45.... How strange is that!... But ofcourse it was good news.
1.30 (45%) 2 weeks ago and 1.45 (50%) yesterday..

See what it is in 6 weeks when i have to go back <img src="i/expressions/face-icon-small-smile.gif" border="0">

I will hear the results from the culture somewhere next week. He asked me if i got anything for the pseudo and i said i don't (i only get profilactic doses of Zithromax and Co-trimoxazol), so who knows i might get something for that. Maybe it will help my sinusses too so the post nasal drip will stop.

xxx, Marjolein

Marjolein · Sep 8, 2007

Hi all

just wanted to say i have been feeling a lot better mentally again and i'm very happy with that. I don't know what it was exactly.. i think all things from the past year and more, that it all came together.

I have been to the doctor for my back again. Got the results from the scan and they were good, nothing to see. Though he did find it a bit strange that the MRI did show inflammation of the disc. But i said it already feels much better and the MRI was in july and it was already better than, then it was in april when i couldn't even move a lot of the time.
The disc still looks strange though, that's the disc between L5 and S1 and L5 is still strange too as it is twisted a little. I had to take x-rays of my back again, one where i was bending forward and one where i was bending backwards. I went back again after the x-rays and he said it didn't look like it was moving when i bent or do something so that's good. But he is still not really happy with how it stands so he is going to talk with his supervisor on monday and he will call me back.

I took my new puffer for the first time on wednesday, the Spiriva. And i blew a record (1.58) 2 hours after that. So i was really happy. But at night i was short of breath and i blew 1.39 again.. Still good for me, but a lot lower. While the Spiriva should work for 24 hours at least..
So i took it again the next morning and my pft's were 1.39 after that, so ok. But at night (thursday) i felt short of breath again and my pft's were 1.21! Far too low i thought, i was so happpy i hadn't seen that in a few months! But here it was again.

So i decided to take the Serevent again on friday. As i can take that in the evening too. And the nights before i really felt like i needed it. It's strange. I didn't feel that with my old lungs. I was sooo used to it, and now i know the difference. Though a puffer didn't do much for me anyway with my CF lungs.

I went to see the nurse practitioner yesterday as i was at the hospital and otherwise i would have called to tell about my pft's. Even though in the morning my pft's were much better again... 1.43..
So he said i had to do pft's there and they would do a culture cause i am coughing up too, even though it's a little at the time and clear. It feels mucousy and last culture it said Pseudo so we want to know what it is now. My mom was commenting on how much i cough too.
My pft's yesterday afternoon were the highest they have ever been in the hospital! 1.45.... How strange is that!... But ofcourse it was good news.
1.30 (45%) 2 weeks ago and 1.45 (50%) yesterday..

See what it is in 6 weeks when i have to go back <img src="i/expressions/face-icon-small-smile.gif" border="0">

I will hear the results from the culture somewhere next week. He asked me if i got anything for the pseudo and i said i don't (i only get profilactic doses of Zithromax and Co-trimoxazol), so who knows i might get something for that. Maybe it will help my sinusses too so the post nasal drip will stop.

xxx, Marjolein

Marjolein · Sep 8, 2007

Hi all

just wanted to say i have been feeling a lot better mentally again and i'm very happy with that. I don't know what it was exactly.. i think all things from the past year and more, that it all came together.

I have been to the doctor for my back again. Got the results from the scan and they were good, nothing to see. Though he did find it a bit strange that the MRI did show inflammation of the disc. But i said it already feels much better and the MRI was in july and it was already better than, then it was in april when i couldn't even move a lot of the time.
The disc still looks strange though, that's the disc between L5 and S1 and L5 is still strange too as it is twisted a little. I had to take x-rays of my back again, one where i was bending forward and one where i was bending backwards. I went back again after the x-rays and he said it didn't look like it was moving when i bent or do something so that's good. But he is still not really happy with how it stands so he is going to talk with his supervisor on monday and he will call me back.

I took my new puffer for the first time on wednesday, the Spiriva. And i blew a record (1.58) 2 hours after that. So i was really happy. But at night i was short of breath and i blew 1.39 again.. Still good for me, but a lot lower. While the Spiriva should work for 24 hours at least..
So i took it again the next morning and my pft's were 1.39 after that, so ok. But at night (thursday) i felt short of breath again and my pft's were 1.21! Far too low i thought, i was so happpy i hadn't seen that in a few months! But here it was again.

So i decided to take the Serevent again on friday. As i can take that in the evening too. And the nights before i really felt like i needed it. It's strange. I didn't feel that with my old lungs. I was sooo used to it, and now i know the difference. Though a puffer didn't do much for me anyway with my CF lungs.

I went to see the nurse practitioner yesterday as i was at the hospital and otherwise i would have called to tell about my pft's. Even though in the morning my pft's were much better again... 1.43..
So he said i had to do pft's there and they would do a culture cause i am coughing up too, even though it's a little at the time and clear. It feels mucousy and last culture it said Pseudo so we want to know what it is now. My mom was commenting on how much i cough too.
My pft's yesterday afternoon were the highest they have ever been in the hospital! 1.45.... How strange is that!... But ofcourse it was good news.
1.30 (45%) 2 weeks ago and 1.45 (50%) yesterday..

See what it is in 6 weeks when i have to go back <img src="i/expressions/face-icon-small-smile.gif" border="0">

I will hear the results from the culture somewhere next week. He asked me if i got anything for the pseudo and i said i don't (i only get profilactic doses of Zithromax and Co-trimoxazol), so who knows i might get something for that. Maybe it will help my sinusses too so the post nasal drip will stop.

xxx, Marjolein

AnD · Sep 8, 2007

Wow, sounds like you have been busy sorting stuff out! I hope that they get your nose fixed when/if they start you on meds for whatever you culture. Post nasal drip is so aggravating! I'm glad your back is better <img src="i/expressions/face-icon-small-smile.gif" border="0">, and will be praying for your checkup in 6 weeks!

AnD · Sep 8, 2007

Wow, sounds like you have been busy sorting stuff out! I hope that they get your nose fixed when/if they start you on meds for whatever you culture. Post nasal drip is so aggravating! I'm glad your back is better <img src="i/expressions/face-icon-small-smile.gif" border="0">, and will be praying for your checkup in 6 weeks!

AnD · Sep 8, 2007

Wow, sounds like you have been busy sorting stuff out! I hope that they get your nose fixed when/if they start you on meds for whatever you culture. Post nasal drip is so aggravating! I'm glad your back is better <img src="i/expressions/face-icon-small-smile.gif" border="0">, and will be praying for your checkup in 6 weeks!

AnD · Sep 8, 2007

Wow, sounds like you have been busy sorting stuff out! I hope that they get your nose fixed when/if they start you on meds for whatever you culture. Post nasal drip is so aggravating! I'm glad your back is better <img src="i/expressions/face-icon-small-smile.gif" border="0">, and will be praying for your checkup in 6 weeks!

AnD · Sep 8, 2007

Wow, sounds like you have been busy sorting stuff out! I hope that they get your nose fixed when/if they start you on meds for whatever you culture. Post nasal drip is so aggravating! I'm glad your back is better <img src="i/expressions/face-icon-small-smile.gif" border="0">, and will be praying for your checkup in 6 weeks!

EnergyGal · Sep 8, 2007