thelizardqueen
New member
Hey Guys, long time no chat!
Before you wonder, yes I'm still in hospital, but I'm aloud passes to "escape" the hospital. Following is an update on whats been going on:
Turns out that I don't have an active infection, but rather I have plugs. The plugs are causing my airways to tighten, etc, and my doc has told me due to this my lungs have over expanded. They've got me on IV Tobra and Cipro, and more then likely I'm in for 2-3 weeks. My doc is looking into home IVs for me, but there's a waiting list, so more then likely by the time its available, I'll be out of hospital already. The Cipro they've given me is pre-mixed with Dextrose, so my sugars have been super high since I've gone in, and its been such a battle to keep them down (I'm still working on it). I had to have 5 seperate IVs because my viens kept blowing daily - so I would get my three rounds of Cipro done, along with 2 rounds of Tobra (all in one day), and my viens would blow. After having 5 seperate IVs, they finally put in a PICC line. This was a first for me. They had to do two attempts on it, because the first time they tried, they couldn't thread the tubing through, but the 2nd time it went in. They put it too far in, and the tube kept pushing up against my heart, so they had to retract it a bit. Needless to say I have a nice sized purple and black bruise at the PICC line site.
I've pretty much my room all to myself. I shared with a guy for the first night, then he left, and then I didn't get a roommate until monday night. He's gone now too, so I again have the room all to myself with is super nice. Cory can stay as late as he wants. The foods horrible, which I'm sure you all know. The stupid dummy's there put me on a really redtricted diet for the first 3.5 days (2 carbs per meal), but they've finally fixed it so that I have a high cal diet and double portions, but Cory's still bringing me takeout.
The nurses and doctors are all so amazed at how clear my lungs are. They say it sounds like I don't have CF, but I keep telling them that its plugs that are causing my airways to decrease, hence why my PFTs were so low. Every morning since I went on the IVs my O2 has been 100%, up from my usual 97%. I've never seen it so high for so long. Its nice.
I've got day passes now, so that pretty much means that I only have to be in hospital for treatment times and physio. My schedule is Cipro at 8am, 4pm and midnight, followed by Tobra at 6am and 6pm. So I'm pretty much free and clear for most of the day and night. Todays my first pass, so I'm at home right now with Cory till about midnight, then I'm going back, he'll hang out with me for a bit and then go home.
Wow, so much to talk about, but I can't even think of it all. This is just the basics of stuff. I'll try to update a bit more, depending on how often I can make it home.
Gosh I miss all you guys. It hasn't even been a week, but it feels like forever though.
I'm starting to feel better though. The pain in my lungs is gone, my chest isn't so tight anymore, and I'm coughing up some of the plugs, so I'm getting there. The only thing thats dragging me down is the high blood sugars from the Cipro, but I'm working on it.
Anyways, like I've said this is a basic update, I'm in hospital for most likely the next week and a bit more, but will try to update as much as possible.
How's everyone doing?
Before you wonder, yes I'm still in hospital, but I'm aloud passes to "escape" the hospital. Following is an update on whats been going on:
Turns out that I don't have an active infection, but rather I have plugs. The plugs are causing my airways to tighten, etc, and my doc has told me due to this my lungs have over expanded. They've got me on IV Tobra and Cipro, and more then likely I'm in for 2-3 weeks. My doc is looking into home IVs for me, but there's a waiting list, so more then likely by the time its available, I'll be out of hospital already. The Cipro they've given me is pre-mixed with Dextrose, so my sugars have been super high since I've gone in, and its been such a battle to keep them down (I'm still working on it). I had to have 5 seperate IVs because my viens kept blowing daily - so I would get my three rounds of Cipro done, along with 2 rounds of Tobra (all in one day), and my viens would blow. After having 5 seperate IVs, they finally put in a PICC line. This was a first for me. They had to do two attempts on it, because the first time they tried, they couldn't thread the tubing through, but the 2nd time it went in. They put it too far in, and the tube kept pushing up against my heart, so they had to retract it a bit. Needless to say I have a nice sized purple and black bruise at the PICC line site.
I've pretty much my room all to myself. I shared with a guy for the first night, then he left, and then I didn't get a roommate until monday night. He's gone now too, so I again have the room all to myself with is super nice. Cory can stay as late as he wants. The foods horrible, which I'm sure you all know. The stupid dummy's there put me on a really redtricted diet for the first 3.5 days (2 carbs per meal), but they've finally fixed it so that I have a high cal diet and double portions, but Cory's still bringing me takeout.
The nurses and doctors are all so amazed at how clear my lungs are. They say it sounds like I don't have CF, but I keep telling them that its plugs that are causing my airways to decrease, hence why my PFTs were so low. Every morning since I went on the IVs my O2 has been 100%, up from my usual 97%. I've never seen it so high for so long. Its nice.
I've got day passes now, so that pretty much means that I only have to be in hospital for treatment times and physio. My schedule is Cipro at 8am, 4pm and midnight, followed by Tobra at 6am and 6pm. So I'm pretty much free and clear for most of the day and night. Todays my first pass, so I'm at home right now with Cory till about midnight, then I'm going back, he'll hang out with me for a bit and then go home.
Wow, so much to talk about, but I can't even think of it all. This is just the basics of stuff. I'll try to update a bit more, depending on how often I can make it home.
Gosh I miss all you guys. It hasn't even been a week, but it feels like forever though.
I'm starting to feel better though. The pain in my lungs is gone, my chest isn't so tight anymore, and I'm coughing up some of the plugs, so I'm getting there. The only thing thats dragging me down is the high blood sugars from the Cipro, but I'm working on it.
Anyways, like I've said this is a basic update, I'm in hospital for most likely the next week and a bit more, but will try to update as much as possible.
How's everyone doing?