Wow it has been a busy month so far. My son has been on the Denufosol Trial, he just entered the 2nd 6th month so we know for sure he is on the study drug now and not the placebo. Also, Nemours asked my family to be in a tv news story about the new drug and new treatments so we just filmed that and watched it on tv last night. Also, Nemours asked me to be the parent advocate for the center here so once a month I get to sit in a lunch with the Dr & Nurses and they go over what they are planning and they get my 2 cents worth. Very cool stuff over all, but very busy. I will try to keep everyone informed if there is any change with my son while on the drug. His PFTs were 95 - 100% this past checkup !!!!!
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Very Busy Month
- Thread starter SEANP
- Start date
Wow it has been a busy month so far. My son has been on the Denufosol Trial, he just entered the 2nd 6th month so we know for sure he is on the study drug now and not the placebo. Also, Nemours asked my family to be in a tv news story about the new drug and new treatments so we just filmed that and watched it on tv last night. Also, Nemours asked me to be the parent advocate for the center here so once a month I get to sit in a lunch with the Dr & Nurses and they go over what they are planning and they get my 2 cents worth. Very cool stuff over all, but very busy. I will try to keep everyone informed if there is any change with my son while on the drug. His PFTs were 95 - 100% this past checkup !!!!!
Wow it has been a busy month so far. My son has been on the Denufosol Trial, he just entered the 2nd 6th month so we know for sure he is on the study drug now and not the placebo. Also, Nemours asked my family to be in a tv news story about the new drug and new treatments so we just filmed that and watched it on tv last night. Also, Nemours asked me to be the parent advocate for the center here so once a month I get to sit in a lunch with the Dr & Nurses and they go over what they are planning and they get my 2 cents worth. Very cool stuff over all, but very busy. I will try to keep everyone informed if there is any change with my son while on the drug. His PFTs were 95 - 100% this past checkup !!!!!
Wow it has been a busy month so far. My son has been on the Denufosol Trial, he just entered the 2nd 6th month so we know for sure he is on the study drug now and not the placebo. Also, Nemours asked my family to be in a tv news story about the new drug and new treatments so we just filmed that and watched it on tv last night. Also, Nemours asked me to be the parent advocate for the center here so once a month I get to sit in a lunch with the Dr & Nurses and they go over what they are planning and they get my 2 cents worth. Very cool stuff over all, but very busy. I will try to keep everyone informed if there is any change with my son while on the drug. His PFTs were 95 - 100% this past checkup !!!!!
Wow it has been a busy month so far. My son has been on the Denufosol Trial, he just entered the 2nd 6th month so we know for sure he is on the study drug now and not the placebo. Also, Nemours asked my family to be in a tv news story about the new drug and new treatments so we just filmed that and watched it on tv last night. Also, Nemours asked me to be the parent advocate for the center here so once a month I get to sit in a lunch with the Dr & Nurses and they go over what they are planning and they get my 2 cents worth. Very cool stuff over all, but very busy. I will try to keep everyone informed if there is any change with my son while on the drug. His PFTs were 95 - 100% this past checkup !!!!!
Wow! And I though I was busy!
Thank you. THe things you are doing help all of us. I truly beleive that improving hte quality of one clinic, as you are hleping to do as the parent advocate raises the bar for all accredited clinics. And your tv appearances...WOW!
Yay for the great PFT's!
Thank you. THe things you are doing help all of us. I truly beleive that improving hte quality of one clinic, as you are hleping to do as the parent advocate raises the bar for all accredited clinics. And your tv appearances...WOW!
Yay for the great PFT's!
Wow! And I though I was busy!
Thank you. THe things you are doing help all of us. I truly beleive that improving hte quality of one clinic, as you are hleping to do as the parent advocate raises the bar for all accredited clinics. And your tv appearances...WOW!
Yay for the great PFT's!
Thank you. THe things you are doing help all of us. I truly beleive that improving hte quality of one clinic, as you are hleping to do as the parent advocate raises the bar for all accredited clinics. And your tv appearances...WOW!
Yay for the great PFT's!
Wow! And I though I was busy!
Thank you. THe things you are doing help all of us. I truly beleive that improving hte quality of one clinic, as you are hleping to do as the parent advocate raises the bar for all accredited clinics. And your tv appearances...WOW!
Yay for the great PFT's!
Thank you. THe things you are doing help all of us. I truly beleive that improving hte quality of one clinic, as you are hleping to do as the parent advocate raises the bar for all accredited clinics. And your tv appearances...WOW!
Yay for the great PFT's!
Wow! And I though I was busy!
Thank you. THe things you are doing help all of us. I truly beleive that improving hte quality of one clinic, as you are hleping to do as the parent advocate raises the bar for all accredited clinics. And your tv appearances...WOW!
Yay for the great PFT's!
Thank you. THe things you are doing help all of us. I truly beleive that improving hte quality of one clinic, as you are hleping to do as the parent advocate raises the bar for all accredited clinics. And your tv appearances...WOW!
Yay for the great PFT's!
Wow! And I though I was busy!
Thank you. THe things you are doing help all of us. I truly beleive that improving hte quality of one clinic, as you are hleping to do as the parent advocate raises the bar for all accredited clinics. And your tv appearances...WOW!
Yay for the great PFT's!
Thank you. THe things you are doing help all of us. I truly beleive that improving hte quality of one clinic, as you are hleping to do as the parent advocate raises the bar for all accredited clinics. And your tv appearances...WOW!
Yay for the great PFT's!