VERY IMPORTANT~ CAN YOU PLEASE HELP

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Asexyblond23

New member
I really need to get some advice from you all I need help. A good friend of mine is 20 with CF. She lives in louisville, we have been friends our whole lifes. She has been bleeding out excecssivly from her lungs this past week. She lost almost 5oz one day and then just 90cc today. She has been in the hosptial and they have been doing everything they can but they think she may have some kind of bronical atery bleeding. Has anyone ever had such trouble with bleeding so much before. Her family is trying to find info from anyone who has ever had something like this, any info would help us at this point. The doctors are doing all they can but I think maybe hearing someones story if they have experieced would really help the family right now. She is so scared and has so much anexity she wont even sleep she is afraid she wont wake up. Thank you so much to you all if you are able to help me, I know I can always turn to you all.
 
A

Asexyblond23

New member
I really need to get some advice from you all I need help. A good friend of mine is 20 with CF. She lives in louisville, we have been friends our whole lifes. She has been bleeding out excecssivly from her lungs this past week. She lost almost 5oz one day and then just 90cc today. She has been in the hosptial and they have been doing everything they can but they think she may have some kind of bronical atery bleeding. Has anyone ever had such trouble with bleeding so much before. Her family is trying to find info from anyone who has ever had something like this, any info would help us at this point. The doctors are doing all they can but I think maybe hearing someones story if they have experieced would really help the family right now. She is so scared and has so much anexity she wont even sleep she is afraid she wont wake up. Thank you so much to you all if you are able to help me, I know I can always turn to you all.
 
A

Asexyblond23

New member
I really need to get some advice from you all I need help. A good friend of mine is 20 with CF. She lives in louisville, we have been friends our whole lifes. She has been bleeding out excecssivly from her lungs this past week. She lost almost 5oz one day and then just 90cc today. She has been in the hosptial and they have been doing everything they can but they think she may have some kind of bronical atery bleeding. Has anyone ever had such trouble with bleeding so much before. Her family is trying to find info from anyone who has ever had something like this, any info would help us at this point. The doctors are doing all they can but I think maybe hearing someones story if they have experieced would really help the family right now. She is so scared and has so much anexity she wont even sleep she is afraid she wont wake up. Thank you so much to you all if you are able to help me, I know I can always turn to you all.
 
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Diane

New member
Alisha,
I had a very similar experience. Sounds like she may need an embolization. I can certainly understand her anxiety and fears. You can give her family my email ............ jinxnick@aol.com
.......... I will help them any way i can. I'll also pray that your friend gets some relief from this.
 
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Diane

New member
Alisha,
I had a very similar experience. Sounds like she may need an embolization. I can certainly understand her anxiety and fears. You can give her family my email ............ jinxnick@aol.com
.......... I will help them any way i can. I'll also pray that your friend gets some relief from this.
 
D

Diane

New member
Alisha,
I had a very similar experience. Sounds like she may need an embolization. I can certainly understand her anxiety and fears. You can give her family my email ............ jinxnick@aol.com
.......... I will help them any way i can. I'll also pray that your friend gets some relief from this.
 
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Hermit

New member
Hi Alisha,

That's SO scary, and I know EXACTLY how you all are feeling. She sounds like she needs to go to a hospital where they do angioplastic embolizations. I've had one before because of massive bleeding, and that fixed me right up. They might give her a course of antibiotics afterwards as well because bleeding can worsen infection. Just tell her to stay as relaxed as she can, and not to panic...it's pretty common, unfortunately, for CFers to cough up blood. A REALLY great person to PM about this would be Hairgirl. SHe's the pro on hemoptysis (that's what it's called).

Best of luck, and pm me if you need more info!
Chris
 
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Hermit

New member
Hi Alisha,

That's SO scary, and I know EXACTLY how you all are feeling. She sounds like she needs to go to a hospital where they do angioplastic embolizations. I've had one before because of massive bleeding, and that fixed me right up. They might give her a course of antibiotics afterwards as well because bleeding can worsen infection. Just tell her to stay as relaxed as she can, and not to panic...it's pretty common, unfortunately, for CFers to cough up blood. A REALLY great person to PM about this would be Hairgirl. SHe's the pro on hemoptysis (that's what it's called).

Best of luck, and pm me if you need more info!
Chris
 
H

Hermit

New member
Hi Alisha,

That's SO scary, and I know EXACTLY how you all are feeling. She sounds like she needs to go to a hospital where they do angioplastic embolizations. I've had one before because of massive bleeding, and that fixed me right up. They might give her a course of antibiotics afterwards as well because bleeding can worsen infection. Just tell her to stay as relaxed as she can, and not to panic...it's pretty common, unfortunately, for CFers to cough up blood. A REALLY great person to PM about this would be Hairgirl. SHe's the pro on hemoptysis (that's what it's called).

Best of luck, and pm me if you need more info!
Chris
 
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Kelli

New member
Hi,
I'm so sorry you are so scared for your friend right now. I'm glad you care for her. I bleed often, never a LOT of blood, but I bleed almost on a daily basis. I'm not sure if I have any 'advice' on medical treatment for bleeding but please feel free to e-mail me directly. At least your friend will know she is not alone and sometimes that is what you need when nothing else is comforting you.
My e-mail address is.....
kelli_bowles@hotmail.com (just put BLEEDING in the subject line so I don't delete it)
Good luck!
~Kelli
29 f w/CF
 
K

Kelli

New member
Hi,
I'm so sorry you are so scared for your friend right now. I'm glad you care for her. I bleed often, never a LOT of blood, but I bleed almost on a daily basis. I'm not sure if I have any 'advice' on medical treatment for bleeding but please feel free to e-mail me directly. At least your friend will know she is not alone and sometimes that is what you need when nothing else is comforting you.
My e-mail address is.....
kelli_bowles@hotmail.com (just put BLEEDING in the subject line so I don't delete it)
Good luck!
~Kelli
29 f w/CF
 
K

Kelli

New member
Hi,
I'm so sorry you are so scared for your friend right now. I'm glad you care for her. I bleed often, never a LOT of blood, but I bleed almost on a daily basis. I'm not sure if I have any 'advice' on medical treatment for bleeding but please feel free to e-mail me directly. At least your friend will know she is not alone and sometimes that is what you need when nothing else is comforting you.
My e-mail address is.....
kelli_bowles@hotmail.com (just put BLEEDING in the subject line so I don't delete it)
Good luck!
~Kelli
29 f w/CF
 
A

Asexyblond23

New member
Thank you all so much, I really appricate it. I am so glad that I have you all. I feel so blessed to have found all of you and always have you all for support. If its ok I will pass your name and email on to her mom if you left it. She may contact you back and will let you know that she got your name from alisha. Thank you!
 
A

Asexyblond23

New member
Thank you all so much, I really appricate it. I am so glad that I have you all. I feel so blessed to have found all of you and always have you all for support. If its ok I will pass your name and email on to her mom if you left it. She may contact you back and will let you know that she got your name from alisha. Thank you!
 
A

Asexyblond23

New member
Thank you all so much, I really appricate it. I am so glad that I have you all. I feel so blessed to have found all of you and always have you all for support. If its ok I will pass your name and email on to her mom if you left it. She may contact you back and will let you know that she got your name from alisha. Thank you!
 
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Kelli

New member
You can pass my name and address on. I think it's important to have someone who understands what a CF'er is going thru. And I'm no pro, but I've been thru a few things.
<img src="i/expressions/face-icon-small-smile.gif" border="0">
Kelli
29 f w.CF
 
K

Kelli

New member
You can pass my name and address on. I think it's important to have someone who understands what a CF'er is going thru. And I'm no pro, but I've been thru a few things.
<img src="i/expressions/face-icon-small-smile.gif" border="0">
Kelli
29 f w.CF
 
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