Vest question/help

A

amityvsvenom

New member
Skye is not newly diagnosed but I was not sure where to post this question. I am trying to get a vest for my daughter, she is 18 months old and I know a lot of families who have received a vest younger than 18 months. The clinic in Nebraska said she could get one fitted but sadly we are living in RI and seeing the boston clinic right now. They said they don't normally start vests until age 5 and I just won't accept that. Right now we are using an electric percussor and her CPT barely gets done because she moves around way too much and cries the entire time no matter what I try. We have been donig CPT since she was born so this isn't something new to her, she just does not like it. I have done my research and a child can get a vest when his/her chest is at least 16" around. Skyes is 21" so she is good to go. I am looking for help to try and get this new doctor to prescribe her a vest.
It would help if families that have a child, young and small or that have a child that got the vest at a young age could reply so I can print them out and bring to the next CF appointment on the 7th. (yes, I fight my butt off at these appointments)

If you want to email me separately that is fine also, kayla.harvey12@yahoo.com
I could use all the help I can get. Her lungs aren't all that great and I am just trying to keep her going the best I can.
 
A

amityvsvenom

New member
Skye is not newly diagnosed but I was not sure where to post this question. I am trying to get a vest for my daughter, she is 18 months old and I know a lot of families who have received a vest younger than 18 months. The clinic in Nebraska said she could get one fitted but sadly we are living in RI and seeing the boston clinic right now. They said they don't normally start vests until age 5 and I just won't accept that. Right now we are using an electric percussor and her CPT barely gets done because she moves around way too much and cries the entire time no matter what I try. We have been donig CPT since she was born so this isn't something new to her, she just does not like it. I have done my research and a child can get a vest when his/her chest is at least 16" around. Skyes is 21" so she is good to go. I am looking for help to try and get this new doctor to prescribe her a vest.
It would help if families that have a child, young and small or that have a child that got the vest at a young age could reply so I can print them out and bring to the next CF appointment on the 7th. (yes, I fight my butt off at these appointments)

If you want to email me separately that is fine also, kayla.harvey12@yahoo.com
I could use all the help I can get. Her lungs aren't all that great and I am just trying to keep her going the best I can.
 
A

amityvsvenom

New member
Skye is not newly diagnosed but I was not sure where to post this question. I am trying to get a vest for my daughter, she is 18 months old and I know a lot of families who have received a vest younger than 18 months. The clinic in Nebraska said she could get one fitted but sadly we are living in RI and seeing the boston clinic right now. They said they don't normally start vests until age 5 and I just won't accept that. Right now we are using an electric percussor and her CPT barely gets done because she moves around way too much and cries the entire time no matter what I try. We have been donig CPT since she was born so this isn't something new to her, she just does not like it. I have done my research and a child can get a vest when his/her chest is at least 16" around. Skyes is 21" so she is good to go. I am looking for help to try and get this new doctor to prescribe her a vest.
It would help if families that have a child, young and small or that have a child that got the vest at a young age could reply so I can print them out and bring to the next CF appointment on the 7th. (yes, I fight my butt off at these appointments)

If you want to email me separately that is fine also, kayla.harvey12@yahoo.com
I could use all the help I can get. Her lungs aren't all that great and I am just trying to keep her going the best I can.
 
A

amityvsvenom

New member
Skye is not newly diagnosed but I was not sure where to post this question. I am trying to get a vest for my daughter, she is 18 months old and I know a lot of families who have received a vest younger than 18 months. The clinic in Nebraska said she could get one fitted but sadly we are living in RI and seeing the boston clinic right now. They said they don't normally start vests until age 5 and I just won't accept that. Right now we are using an electric percussor and her CPT barely gets done because she moves around way too much and cries the entire time no matter what I try. We have been donig CPT since she was born so this isn't something new to her, she just does not like it. I have done my research and a child can get a vest when his/her chest is at least 16" around. Skyes is 21" so she is good to go. I am looking for help to try and get this new doctor to prescribe her a vest.
It would help if families that have a child, young and small or that have a child that got the vest at a young age could reply so I can print them out and bring to the next CF appointment on the 7th. (yes, I fight my butt off at these appointments)

If you want to email me separately that is fine also, kayla.harvey12@yahoo.com
I could use all the help I can get. Her lungs aren't all that great and I am just trying to keep her going the best I can.
 
A

amityvsvenom

New member
Skye is not newly diagnosed but I was not sure where to post this question. I am trying to get a vest for my daughter, she is 18 months old and I know a lot of families who have received a vest younger than 18 months. The clinic in Nebraska said she could get one fitted but sadly we are living in RI and seeing the boston clinic right now. They said they don't normally start vests until age 5 and I just won't accept that. Right now we are using an electric percussor and her CPT barely gets done because she moves around way too much and cries the entire time no matter what I try. We have been donig CPT since she was born so this isn't something new to her, she just does not like it. I have done my research and a child can get a vest when his/her chest is at least 16" around. Skyes is 21" so she is good to go. I am looking for help to try and get this new doctor to prescribe her a vest.
<br />It would help if families that have a child, young and small or that have a child that got the vest at a young age could reply so I can print them out and bring to the next CF appointment on the 7th. (yes, I fight my butt off at these appointments)
<br />
<br />If you want to email me separately that is fine also, kayla.harvey12@yahoo.com
<br />I could use all the help I can get. Her lungs aren't all that great and I am just trying to keep her going the best I can.
 
W

websterhome

New member
I just emailed you a very informative email about our good experience getting our 18 month old daughter a vest last month. She is doing great with it. Your are doing the right thing fighting for it! Let me know if you don't get the email. Hope this helps! Keep up the strong work!!
 
W

websterhome

New member
I just emailed you a very informative email about our good experience getting our 18 month old daughter a vest last month. She is doing great with it. Your are doing the right thing fighting for it! Let me know if you don't get the email. Hope this helps! Keep up the strong work!!
 
W

websterhome

New member
I just emailed you a very informative email about our good experience getting our 18 month old daughter a vest last month. She is doing great with it. Your are doing the right thing fighting for it! Let me know if you don't get the email. Hope this helps! Keep up the strong work!!
 
W

websterhome

New member
I just emailed you a very informative email about our good experience getting our 18 month old daughter a vest last month. She is doing great with it. Your are doing the right thing fighting for it! Let me know if you don't get the email. Hope this helps! Keep up the strong work!!
 
W

websterhome

New member
I just emailed you a very informative email about our good experience getting our 18 month old daughter a vest last month. She is doing great with it. Your are doing the right thing fighting for it! Let me know if you don't get the email. Hope this helps! Keep up the strong work!!
 
M

Mommafirst

Guest
At 14 months, my daughter was hospitalized for her first CF exacerbation and IVs. While there, we met a respiratory therapist that offerred us a chance to try out the vest. Like Skye, Alyssa HATED CPT. It was a difficult and frustrating part of our eevery day. But in the hospital, she took to the vest within one or two sessions. After we were discharged, I asked our CF doctor if we could order a vest. His first resonse was that she is too little, but I told him we had already done it in the hospital and that she met the minimum requirements. He said that we could try to get it, why not?

She wasn't hospitalized again for over a year and a half. The doctor felt that the consistent airway clearance could have been a good reason we were able to hold it off like that.
 
M

Mommafirst

Guest
At 14 months, my daughter was hospitalized for her first CF exacerbation and IVs. While there, we met a respiratory therapist that offerred us a chance to try out the vest. Like Skye, Alyssa HATED CPT. It was a difficult and frustrating part of our eevery day. But in the hospital, she took to the vest within one or two sessions. After we were discharged, I asked our CF doctor if we could order a vest. His first resonse was that she is too little, but I told him we had already done it in the hospital and that she met the minimum requirements. He said that we could try to get it, why not?

She wasn't hospitalized again for over a year and a half. The doctor felt that the consistent airway clearance could have been a good reason we were able to hold it off like that.
 
M

Mommafirst

Guest
At 14 months, my daughter was hospitalized for her first CF exacerbation and IVs. While there, we met a respiratory therapist that offerred us a chance to try out the vest. Like Skye, Alyssa HATED CPT. It was a difficult and frustrating part of our eevery day. But in the hospital, she took to the vest within one or two sessions. After we were discharged, I asked our CF doctor if we could order a vest. His first resonse was that she is too little, but I told him we had already done it in the hospital and that she met the minimum requirements. He said that we could try to get it, why not?

She wasn't hospitalized again for over a year and a half. The doctor felt that the consistent airway clearance could have been a good reason we were able to hold it off like that.
 
M

Mommafirst

Guest
At 14 months, my daughter was hospitalized for her first CF exacerbation and IVs. While there, we met a respiratory therapist that offerred us a chance to try out the vest. Like Skye, Alyssa HATED CPT. It was a difficult and frustrating part of our eevery day. But in the hospital, she took to the vest within one or two sessions. After we were discharged, I asked our CF doctor if we could order a vest. His first resonse was that she is too little, but I told him we had already done it in the hospital and that she met the minimum requirements. He said that we could try to get it, why not?

She wasn't hospitalized again for over a year and a half. The doctor felt that the consistent airway clearance could have been a good reason we were able to hold it off like that.
 
M

Mommafirst

Guest
At 14 months, my daughter was hospitalized for her first CF exacerbation and IVs. While there, we met a respiratory therapist that offerred us a chance to try out the vest. Like Skye, Alyssa HATED CPT. It was a difficult and frustrating part of our eevery day. But in the hospital, she took to the vest within one or two sessions. After we were discharged, I asked our CF doctor if we could order a vest. His first resonse was that she is too little, but I told him we had already done it in the hospital and that she met the minimum requirements. He said that we could try to get it, why not?
<br />
<br />She wasn't hospitalized again for over a year and a half. The doctor felt that the consistent airway clearance could have been a good reason we were able to hold it off like that.
 
M

mjsmama

New member
Our son just got his vest at 27 months. We also had the same problem of inconsistent PT - it was becoming a battle. We love it! It took him about a week to be comfortable with it but now it's just no big deal! <img src="i/expressions/face-icon-small-smile.gif" border="0"> We were able to do a 30 day trial before we decided to keep it and we're still waiting to see what the insurance will cover. Good Luck!
 
M

mjsmama

New member
Our son just got his vest at 27 months. We also had the same problem of inconsistent PT - it was becoming a battle. We love it! It took him about a week to be comfortable with it but now it's just no big deal! <img src="i/expressions/face-icon-small-smile.gif" border="0"> We were able to do a 30 day trial before we decided to keep it and we're still waiting to see what the insurance will cover. Good Luck!
 
M

mjsmama

New member
Our son just got his vest at 27 months. We also had the same problem of inconsistent PT - it was becoming a battle. We love it! It took him about a week to be comfortable with it but now it's just no big deal! <img src="i/expressions/face-icon-small-smile.gif" border="0"> We were able to do a 30 day trial before we decided to keep it and we're still waiting to see what the insurance will cover. Good Luck!
 
M

mjsmama

New member
Our son just got his vest at 27 months. We also had the same problem of inconsistent PT - it was becoming a battle. We love it! It took him about a week to be comfortable with it but now it's just no big deal! <img src="i/expressions/face-icon-small-smile.gif" border="0"> We were able to do a 30 day trial before we decided to keep it and we're still waiting to see what the insurance will cover. Good Luck!
 
M

mjsmama

New member
Our son just got his vest at 27 months. We also had the same problem of inconsistent PT - it was becoming a battle. We love it! It took him about a week to be comfortable with it but now it's just no big deal! <img src="i/expressions/face-icon-small-smile.gif" border="0"> We were able to do a 30 day trial before we decided to keep it and we're still waiting to see what the insurance will cover. Good Luck!
 
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