Visit summary letter from Cf specialist to referring Dr

[Beccamom]

<P>A friend of mine is a Pediatric Nurse Practicioner in a pediatrician practice and she recently gave me great advice I wanted to share.  She suggested that I ask my pediatician for a copy of the letters that he receives from each specialist my DD goes to.  It is amazing how much concise information that the specialist sends to the referring doctor.  I don't think that the CF specialist tried to hide anything from me, but he clearly states her current diagnosis, medications, short term plan for exacerbations, short term plan for further testing, long term plan for treatment, and long term plan for testing.  Maybe I am still so overwhelmed at these appointments that I don't "hear" all that is said, or maybe after the doctor goes to dictate his notes he summarizes it better.  Maybe he just doesn't state the long term plan so I am not alarmed, but this summary is so beneficial for me.  The summary also shows how much of my parent report was received and respected.  I hope that helps others trying to do the best for their children.  </P>
<P> </P>
<P>Through this letter I learned today that my DDs diagnosis is "mucus clearing disorder of unkown etiology".  </P>

 

[Beccamom]

<P>A friend of mine is a Pediatric Nurse Practicioner in a pediatrician practice and she recently gave me great advice I wanted to share. She suggested that I ask my pediatician for a copy of the letters that he receives from each specialist my DD goes to. It is amazing how much concise information that the specialist sends to the referring doctor. I don't think that the CF specialist tried to hide anything from me, but he clearly states her current diagnosis, medications, short term plan for exacerbations, short term plan for further testing, long term plan for treatment, and long term plan for testing. Maybe I am still so overwhelmed at these appointments that I don't "hear" all that is said, or maybe after the doctor goes to dictate his notes he summarizes it better. Maybe he just doesn't state the long term plan so I am not alarmed, but this summary is so beneficial for me. The summary also shows how much of my parent report was received and respected. I hope that helps others trying to do the best for their children. </P>
<P></P>
<P>Through this letter I learned today that my DDs diagnosis is "mucus clearing disorder of unkown etiology". </P>

 

[Beccamom]

<P><BR>A friend of mine is a Pediatric Nurse Practicioner in a pediatrician practice and she recently gave me great advice I wanted to share. She suggested that I ask my pediatician for a copy of the letters that he receives from each specialist my DD goes to. It is amazing how much concise information that the specialist sends to the referring doctor. I don't think that the CF specialist tried to hide anything from me, but he clearly states her current diagnosis, medications, short term plan for exacerbations, short term plan for further testing, long term plan for treatment, and long term plan for testing. Maybe I am still so overwhelmed at these appointments that I don't "hear" all that is said, or maybe after the doctor goes to dictate his notes he summarizes it better. Maybe he just doesn't state the long term plan so I am not alarmed, but this summary is so beneficial for me. The summary also shows how much of my parent report was received and respected. I hope that helps others trying to do the best for their children. </P>
<P></P>
<P>Through this letter I learned today that my DDs diagnosis is "mucus clearing disorder of unkown etiology". </P>

 

[Ratatosk]

So would her diagnosis be Mcdoue? <img src="i/expressions/face-icon-small-smile.gif" border="0">

I usually request the doctor's notes as well as culture reports after each visit. Culture results to see what's growing as the nurse always says "normal" only to find out he's growing something. Also to keep track of growth -- I'm usually standing in the hallway holding shoes and jackets and don't have the opportunity to write it dow and with DS' history of failure to thrive and digestive issues, I like to keep a record to refer back too. Sometimes I don't hear everything either, so it's nice to be able to read the info without the distraction of DS bouncing off the exam room walls, etc.

 

[Ratatosk]

So would her diagnosis be Mcdoue? <img src="i/expressions/face-icon-small-smile.gif" border="0">

I usually request the doctor's notes as well as culture reports after each visit. Culture results to see what's growing as the nurse always says "normal" only to find out he's growing something. Also to keep track of growth -- I'm usually standing in the hallway holding shoes and jackets and don't have the opportunity to write it dow and with DS' history of failure to thrive and digestive issues, I like to keep a record to refer back too. Sometimes I don't hear everything either, so it's nice to be able to read the info without the distraction of DS bouncing off the exam room walls, etc.

 

[Ratatosk]

So would her diagnosis be Mcdoue? <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />I usually request the doctor's notes as well as culture reports after each visit. Culture results to see what's growing as the nurse always says "normal" only to find out he's growing something. Also to keep track of growth -- I'm usually standing in the hallway holding shoes and jackets and don't have the opportunity to write it dow and with DS' history of failure to thrive and digestive issues, I like to keep a record to refer back too. Sometimes I don't hear everything either, so it's nice to be able to read the info without the distraction of DS bouncing off the exam room walls, etc.