Visitation

[00martin]

Wow so here it goes.. the last year has been a trial of ups and downs for my Family. Our 7year old cfr has not been allowed in our house due to his 1 year old Step-Brother having cf. This week was a year that we have been dealing with this and praying that one day we could live together as a normal family. . . Today our world has came crashing down as a third party got to decide the future of our visitation. It was decided at this time our 7 year old is not allowed in our home neither with or without Step-Brother present. We are completely devestated and have no clue what a future together as a family holds. This year has been the toughest of our life and thinking this lifestyle is NOW our lifestyle indefinately in order to be together is hard to fathom. Please keep our Family and I in your prayers that we make the right decision as to what to do with our family. We really do not have many options but its all in Gods hands. I am broken crushed and completely overwhelmed.

 

[Jellybaby]

Why are they not aloud together? I know someone with two sons that have cf also and they all live together. Sure they have picked up each other bugs but they now live with the same bugs and are well managed living together

 

[Printer]

Now tell us "the rest of the story".

Bill

 

[00martin]

The court seen that since it was my decision to put my seven-year-old son in a position where there were possible risks by being infected by one-year-old toddler that they would not allow it. Even with a doctors deposition from my stepson's doctor and my son's doctor which both visit the same clinic. The depo stated specifically that the environment could be cleaned and manageable and it should not be a problem as long as we follow protocol.

 

[00martin]

Bill, The truth is when me and my ex separated we were so mutual with visitation it was overlooked on the divorce separation agreement and I had no visitation rights to my children... That was all fine and good since we had agreed to a visitation schedule... All that changed when I met and married my wife whom has a child with CF... After that it was left up to a judge to decide how my visitation would be finalized... Thanks for asking and have a Merry Christmas and God Bless...

 

[Gammaw]

Take it on appeal. Visitation with your child is a right not lightly to be dismissed. Does the toddler have a deadly form of b cepacia? What are their differences, medically speaking? Are the parents of TWO CFers supposed to separate and keep them apart or lose one of their children? This sounds a little nuts frankly. What does your attorney say?

 

[Printer]

The Cystic Fibrosis Foundation has a Legal Department. If you call them, they will help you with this problem.

Good luck and Merry Christmas
Bill

 

[00martin]

Gammaw,
I am the Father of the 7 year old and I married this July and now have a 1 year old Step-Son with CF. My Ex-wife does not want me to have visitation with my 7 year old Son where I currently reside with my wife and step-children. The court made it's ruling and has said my 7 year old is not to come into my house with or with out my 1 year old step-son with CF present. Both of our CF children go to the same clinic and are Delta F508. My step-son has never cultured anything major such has PA, B-cep, etc... We did have our Doctor do a deposition that stated how the children could be together and the protocols to follow. However, that did not help or case...

 

[00martin]

Bill, Thank you Sir and I will be in touch with that department to see if anything can be done...

 

[Gammaw]

I'm really sorry to hear you're going thru this. Did the court at least give you visitation outside the home? It will be interesting to hear if the CFF legal department has seen similar cases and how they've been resolved. Let us know how you're doing with this.

 

[00martin]

Gammaw, Yes I have been getting my son the past 11 months; however, he is not allowed to stay with me. He stays with his grandmother and my daughter stays with me. So we are able to spend time together until bedtime, but it's not the "Family time" that we all deserve. We was hoping court would have changed that, but it did not... Thanks for inquiring and have a Merry and blessed Christmas... God Bless!