Vitamin D Deficiency

J

jena

New member
My son was diagnosed 4 years ago (he's 7 now). He's got "classic" CF with pancreatic insufficiency and he's been on the CF vitamin supplements since he was diagnosed. For the past year he's been on Softsource CF (the soft gels). I liked those because he can swallow them and he doesn't have to endure the yucky taste of the other supplements. Anyway, a couple of months ago they did his annual bloodwork and showed low levels of vitamin D. They doubled his dose, but his vitamin D levels are still low.
Just wondering how many of you struggle with your Vitamin D level? I feel like he gets plenty between his diet and the supplements. He goes outside and gets sunlight. I am wondering if he just needs a different supplement.

The nutritionist is going to be calling me today with their recommendation. I was just curious if you guys had any insight!

Thanks!
Jena
 
J

jena

New member
My son was diagnosed 4 years ago (he's 7 now). He's got "classic" CF with pancreatic insufficiency and he's been on the CF vitamin supplements since he was diagnosed. For the past year he's been on Softsource CF (the soft gels). I liked those because he can swallow them and he doesn't have to endure the yucky taste of the other supplements. Anyway, a couple of months ago they did his annual bloodwork and showed low levels of vitamin D. They doubled his dose, but his vitamin D levels are still low.
Just wondering how many of you struggle with your Vitamin D level? I feel like he gets plenty between his diet and the supplements. He goes outside and gets sunlight. I am wondering if he just needs a different supplement.

The nutritionist is going to be calling me today with their recommendation. I was just curious if you guys had any insight!

Thanks!
Jena
 
J

jena

New member
My son was diagnosed 4 years ago (he's 7 now). He's got "classic" CF with pancreatic insufficiency and he's been on the CF vitamin supplements since he was diagnosed. For the past year he's been on Softsource CF (the soft gels). I liked those because he can swallow them and he doesn't have to endure the yucky taste of the other supplements. Anyway, a couple of months ago they did his annual bloodwork and showed low levels of vitamin D. They doubled his dose, but his vitamin D levels are still low.
Just wondering how many of you struggle with your Vitamin D level? I feel like he gets plenty between his diet and the supplements. He goes outside and gets sunlight. I am wondering if he just needs a different supplement.

The nutritionist is going to be calling me today with their recommendation. I was just curious if you guys had any insight!

Thanks!
Jena
 
J

jena

New member
My son was diagnosed 4 years ago (he's 7 now). He's got "classic" CF with pancreatic insufficiency and he's been on the CF vitamin supplements since he was diagnosed. For the past year he's been on Softsource CF (the soft gels). I liked those because he can swallow them and he doesn't have to endure the yucky taste of the other supplements. Anyway, a couple of months ago they did his annual bloodwork and showed low levels of vitamin D. They doubled his dose, but his vitamin D levels are still low.
Just wondering how many of you struggle with your Vitamin D level? I feel like he gets plenty between his diet and the supplements. He goes outside and gets sunlight. I am wondering if he just needs a different supplement.

The nutritionist is going to be calling me today with their recommendation. I was just curious if you guys had any insight!

Thanks!
Jena
 
J

jena

New member
My son was diagnosed 4 years ago (he's 7 now). He's got "classic" CF with pancreatic insufficiency and he's been on the CF vitamin supplements since he was diagnosed. For the past year he's been on Softsource CF (the soft gels). I liked those because he can swallow them and he doesn't have to endure the yucky taste of the other supplements. Anyway, a couple of months ago they did his annual bloodwork and showed low levels of vitamin D. They doubled his dose, but his vitamin D levels are still low.
Just wondering how many of you struggle with your Vitamin D level? I feel like he gets plenty between his diet and the supplements. He goes outside and gets sunlight. I am wondering if he just needs a different supplement.

The nutritionist is going to be calling me today with their recommendation. I was just curious if you guys had any insight!

Thanks!
Jena
 
T

thefrogprincess

New member
I have always had issues with D. I kept upping the amoung I take until I finally got into the normal range. In addition to what I get in my multi-vitamin I take 800 IU twice a day. 400 of that is in my calcium suppliment, and the other 400 is its own pill. So all together I take around 2000 IU of D everyday. You need to make sure he is getting calcium too because vitamin D helps calcium absorbtion and if he is low one he's low on the other. There are a million foods you can get now that have etra calcium and or D in them, orange juice, cheese, even spaghettios! So I would start looking for things like that to suppliment his diet. Also whole vit. D milk is good for calories, calcium, and D. Also, make sure he takes his vitamins with food and enzymes to help them absorb.
 
T

thefrogprincess

New member
I have always had issues with D. I kept upping the amoung I take until I finally got into the normal range. In addition to what I get in my multi-vitamin I take 800 IU twice a day. 400 of that is in my calcium suppliment, and the other 400 is its own pill. So all together I take around 2000 IU of D everyday. You need to make sure he is getting calcium too because vitamin D helps calcium absorbtion and if he is low one he's low on the other. There are a million foods you can get now that have etra calcium and or D in them, orange juice, cheese, even spaghettios! So I would start looking for things like that to suppliment his diet. Also whole vit. D milk is good for calories, calcium, and D. Also, make sure he takes his vitamins with food and enzymes to help them absorb.
 
T

thefrogprincess

New member
I have always had issues with D. I kept upping the amoung I take until I finally got into the normal range. In addition to what I get in my multi-vitamin I take 800 IU twice a day. 400 of that is in my calcium suppliment, and the other 400 is its own pill. So all together I take around 2000 IU of D everyday. You need to make sure he is getting calcium too because vitamin D helps calcium absorbtion and if he is low one he's low on the other. There are a million foods you can get now that have etra calcium and or D in them, orange juice, cheese, even spaghettios! So I would start looking for things like that to suppliment his diet. Also whole vit. D milk is good for calories, calcium, and D. Also, make sure he takes his vitamins with food and enzymes to help them absorb.
 
T

thefrogprincess

New member
I have always had issues with D. I kept upping the amoung I take until I finally got into the normal range. In addition to what I get in my multi-vitamin I take 800 IU twice a day. 400 of that is in my calcium suppliment, and the other 400 is its own pill. So all together I take around 2000 IU of D everyday. You need to make sure he is getting calcium too because vitamin D helps calcium absorbtion and if he is low one he's low on the other. There are a million foods you can get now that have etra calcium and or D in them, orange juice, cheese, even spaghettios! So I would start looking for things like that to suppliment his diet. Also whole vit. D milk is good for calories, calcium, and D. Also, make sure he takes his vitamins with food and enzymes to help them absorb.
 
T

thefrogprincess

New member
I have always had issues with D. I kept upping the amoung I take until I finally got into the normal range. In addition to what I get in my multi-vitamin I take 800 IU twice a day. 400 of that is in my calcium suppliment, and the other 400 is its own pill. So all together I take around 2000 IU of D everyday. You need to make sure he is getting calcium too because vitamin D helps calcium absorbtion and if he is low one he's low on the other. There are a million foods you can get now that have etra calcium and or D in them, orange juice, cheese, even spaghettios! So I would start looking for things like that to suppliment his diet. Also whole vit. D milk is good for calories, calcium, and D. Also, make sure he takes his vitamins with food and enzymes to help them absorb.
 
F

folione

New member
My 4 year old with CF has trouble with vitamin levels sometimes but we figure it's the least of our worries. We give him extra vitamins and let him get some un-screened sun exposure but the ups/downs have not seemed to be a cause of problems so we (& his Cf doctor) tend not to fret about it.
 
F

folione

New member
My 4 year old with CF has trouble with vitamin levels sometimes but we figure it's the least of our worries. We give him extra vitamins and let him get some un-screened sun exposure but the ups/downs have not seemed to be a cause of problems so we (& his Cf doctor) tend not to fret about it.
 
F

folione

New member
My 4 year old with CF has trouble with vitamin levels sometimes but we figure it's the least of our worries. We give him extra vitamins and let him get some un-screened sun exposure but the ups/downs have not seemed to be a cause of problems so we (& his Cf doctor) tend not to fret about it.
 
F

folione

New member
My 4 year old with CF has trouble with vitamin levels sometimes but we figure it's the least of our worries. We give him extra vitamins and let him get some un-screened sun exposure but the ups/downs have not seemed to be a cause of problems so we (& his Cf doctor) tend not to fret about it.
 
F

folione

New member
My 4 year old with CF has trouble with vitamin levels sometimes but we figure it's the least of our worries. We give him extra vitamins and let him get some un-screened sun exposure but the ups/downs have not seemed to be a cause of problems so we (& his Cf doctor) tend not to fret about it.
 
M

mum2kj

New member
my daughter's vitamin D in winter plummets real low and also as her liver gets worse her vitamin levels will get worse also. Kj's paediatric doc has her on 50,000IU once a month. she has to take her capsule with cheese or milk and creons so that it helps to be absorbed. Her endocrinologist said that if it doesn't work that they will put her on a different vitamin D that is absorbed in a different way to how her current vitamin D capsule is absorbed (through the liver). I think she said they would try caltrate.

her last blood test showed a slight increase in vitamin D so we are sticking to the 50,000IU a month atm.
our local chemist makes her vitamin D capsule especially for her.

here is a link on facts of vitamin D deficiency (symptoms) and what foods can help it.

"The major biologic function of vitamin D is to maintain normal blood levels of calcium and phosphorus [3-4]. By promoting calcium absorption, vitamin D helps to form and maintain strong bones. Vitamin D also works in concert with a number of other vitamins, minerals, and hormones to promote bone mineralization. Without vitamin D, bones can become thin, brittle, or misshapen. Vitamin D sufficiency prevents rickets in children and osteomalacia in adults, two forms of skeletal diseases that weaken bones [5-6].

Research also suggests that vitamin D may help maintain a healthy immune system and help regulate cell growth and differentiation, the process that determines what a cell is to become "

<a target=_blank class=ftalternatingbarlinklarge href="http://ods.od.nih.gov/factsheets/vitamind.asp
">http://ods.od.nih.gov/factsheets/vitamind.asp
</a>

My daughter has mild hyperparathyroidism as a result of extremely low vitamin D.
 
M

mum2kj

New member
my daughter's vitamin D in winter plummets real low and also as her liver gets worse her vitamin levels will get worse also. Kj's paediatric doc has her on 50,000IU once a month. she has to take her capsule with cheese or milk and creons so that it helps to be absorbed. Her endocrinologist said that if it doesn't work that they will put her on a different vitamin D that is absorbed in a different way to how her current vitamin D capsule is absorbed (through the liver). I think she said they would try caltrate.

her last blood test showed a slight increase in vitamin D so we are sticking to the 50,000IU a month atm.
our local chemist makes her vitamin D capsule especially for her.

here is a link on facts of vitamin D deficiency (symptoms) and what foods can help it.

"The major biologic function of vitamin D is to maintain normal blood levels of calcium and phosphorus [3-4]. By promoting calcium absorption, vitamin D helps to form and maintain strong bones. Vitamin D also works in concert with a number of other vitamins, minerals, and hormones to promote bone mineralization. Without vitamin D, bones can become thin, brittle, or misshapen. Vitamin D sufficiency prevents rickets in children and osteomalacia in adults, two forms of skeletal diseases that weaken bones [5-6].

Research also suggests that vitamin D may help maintain a healthy immune system and help regulate cell growth and differentiation, the process that determines what a cell is to become "

<a target=_blank class=ftalternatingbarlinklarge href="http://ods.od.nih.gov/factsheets/vitamind.asp
">http://ods.od.nih.gov/factsheets/vitamind.asp
</a>

My daughter has mild hyperparathyroidism as a result of extremely low vitamin D.
 
M

mum2kj

New member
my daughter's vitamin D in winter plummets real low and also as her liver gets worse her vitamin levels will get worse also. Kj's paediatric doc has her on 50,000IU once a month. she has to take her capsule with cheese or milk and creons so that it helps to be absorbed. Her endocrinologist said that if it doesn't work that they will put her on a different vitamin D that is absorbed in a different way to how her current vitamin D capsule is absorbed (through the liver). I think she said they would try caltrate.

her last blood test showed a slight increase in vitamin D so we are sticking to the 50,000IU a month atm.
our local chemist makes her vitamin D capsule especially for her.

here is a link on facts of vitamin D deficiency (symptoms) and what foods can help it.

"The major biologic function of vitamin D is to maintain normal blood levels of calcium and phosphorus [3-4]. By promoting calcium absorption, vitamin D helps to form and maintain strong bones. Vitamin D also works in concert with a number of other vitamins, minerals, and hormones to promote bone mineralization. Without vitamin D, bones can become thin, brittle, or misshapen. Vitamin D sufficiency prevents rickets in children and osteomalacia in adults, two forms of skeletal diseases that weaken bones [5-6].

Research also suggests that vitamin D may help maintain a healthy immune system and help regulate cell growth and differentiation, the process that determines what a cell is to become "

<a target=_blank class=ftalternatingbarlinklarge href="http://ods.od.nih.gov/factsheets/vitamind.asp
">http://ods.od.nih.gov/factsheets/vitamind.asp
</a>

My daughter has mild hyperparathyroidism as a result of extremely low vitamin D.
 
M

mum2kj

New member
my daughter's vitamin D in winter plummets real low and also as her liver gets worse her vitamin levels will get worse also. Kj's paediatric doc has her on 50,000IU once a month. she has to take her capsule with cheese or milk and creons so that it helps to be absorbed. Her endocrinologist said that if it doesn't work that they will put her on a different vitamin D that is absorbed in a different way to how her current vitamin D capsule is absorbed (through the liver). I think she said they would try caltrate.

her last blood test showed a slight increase in vitamin D so we are sticking to the 50,000IU a month atm.
our local chemist makes her vitamin D capsule especially for her.

here is a link on facts of vitamin D deficiency (symptoms) and what foods can help it.

"The major biologic function of vitamin D is to maintain normal blood levels of calcium and phosphorus [3-4]. By promoting calcium absorption, vitamin D helps to form and maintain strong bones. Vitamin D also works in concert with a number of other vitamins, minerals, and hormones to promote bone mineralization. Without vitamin D, bones can become thin, brittle, or misshapen. Vitamin D sufficiency prevents rickets in children and osteomalacia in adults, two forms of skeletal diseases that weaken bones [5-6].

Research also suggests that vitamin D may help maintain a healthy immune system and help regulate cell growth and differentiation, the process that determines what a cell is to become "

<a target=_blank class=ftalternatingbarlinklarge href="http://ods.od.nih.gov/factsheets/vitamind.asp
">http://ods.od.nih.gov/factsheets/vitamind.asp
</a>

My daughter has mild hyperparathyroidism as a result of extremely low vitamin D.
 
M

mum2kj

New member
my daughter's vitamin D in winter plummets real low and also as her liver gets worse her vitamin levels will get worse also. Kj's paediatric doc has her on 50,000IU once a month. she has to take her capsule with cheese or milk and creons so that it helps to be absorbed. Her endocrinologist said that if it doesn't work that they will put her on a different vitamin D that is absorbed in a different way to how her current vitamin D capsule is absorbed (through the liver). I think she said they would try caltrate.

her last blood test showed a slight increase in vitamin D so we are sticking to the 50,000IU a month atm.
our local chemist makes her vitamin D capsule especially for her.

here is a link on facts of vitamin D deficiency (symptoms) and what foods can help it.

"The major biologic function of vitamin D is to maintain normal blood levels of calcium and phosphorus [3-4]. By promoting calcium absorption, vitamin D helps to form and maintain strong bones. Vitamin D also works in concert with a number of other vitamins, minerals, and hormones to promote bone mineralization. Without vitamin D, bones can become thin, brittle, or misshapen. Vitamin D sufficiency prevents rickets in children and osteomalacia in adults, two forms of skeletal diseases that weaken bones [5-6].

Research also suggests that vitamin D may help maintain a healthy immune system and help regulate cell growth and differentiation, the process that determines what a cell is to become "

<a target=_blank class=ftalternatingbarlinklarge href="http://ods.od.nih.gov/factsheets/vitamind.asp
">http://ods.od.nih.gov/factsheets/vitamind.asp
</a>

My daughter has mild hyperparathyroidism as a result of extremely low vitamin D.
 
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