waiting for genetic test results

[larasmommy]

Hi Everyone, My name is Marie and I live in New Jersey. I have a 5 year old daughter who is being tested for CF (quest diagnostics). Lara has been sick alot, she has had pnuemmonia twice, mucus plugs, chronic wheezing since she was born , and was diagnosed with asthma at 1 1/2 years . This past March she was having a really bad episode, so I took her to the ER and she was admitted; Lara was not responding to any of the meds and got progressivly worse. They called a Childrens Hospital and and a pulminary team was sent to transport her there. She was in ICU for 2 days , and they finally stabilized her,that is where I met her new Dr. Dr. Wazka sent her for a sweat, and the 1st time she didnt sweat enough, the re-test came back 46mmol, so she is being geno tested for CF. I am worried sick and have trouble sleeping, and cry alot and spend hours on the cpu looked for any info I can find about this illness. If anyone has any advice for me I would surely appreciate it. ( sorry about the rambling)

 

[larasmommy]

Hi Everyone, My name is Marie and I live in New Jersey. I have a 5 year old daughter who is being tested for CF (quest diagnostics). Lara has been sick alot, she has had pnuemmonia twice, mucus plugs, chronic wheezing since she was born , and was diagnosed with asthma at 1 1/2 years . This past March she was having a really bad episode, so I took her to the ER and she was admitted; Lara was not responding to any of the meds and got progressivly worse. They called a Childrens Hospital and and a pulminary team was sent to transport her there. She was in ICU for 2 days , and they finally stabilized her,that is where I met her new Dr. Dr. Wazka sent her for a sweat, and the 1st time she didnt sweat enough, the re-test came back 46mmol, so she is being geno tested for CF. I am worried sick and have trouble sleeping, and cry alot and spend hours on the cpu looked for any info I can find about this illness. If anyone has any advice for me I would surely appreciate it. ( sorry about the rambling)

 

[larasmommy]

Hi Everyone, My name is Marie and I live in New Jersey. I have a 5 year old daughter who is being tested for CF (quest diagnostics). Lara has been sick alot, she has had pnuemmonia twice, mucus plugs, chronic wheezing since she was born , and was diagnosed with asthma at 1 1/2 years . This past March she was having a really bad episode, so I took her to the ER and she was admitted; Lara was not responding to any of the meds and got progressivly worse. They called a Childrens Hospital and and a pulminary team was sent to transport her there. She was in ICU for 2 days , and they finally stabilized her,that is where I met her new Dr. Dr. Wazka sent her for a sweat, and the 1st time she didnt sweat enough, the re-test came back 46mmol, so she is being geno tested for CF. I am worried sick and have trouble sleeping, and cry alot and spend hours on the cpu looked for any info I can find about this illness. If anyone has any advice for me I would surely appreciate it. ( sorry about the rambling)

 

[larasmommy]

Hi Everyone, My name is Marie and I live in New Jersey. I have a 5 year old daughter who is being tested for CF (quest diagnostics). Lara has been sick alot, she has had pnuemmonia twice, mucus plugs, chronic wheezing since she was born , and was diagnosed with asthma at 1 1/2 years . This past March she was having a really bad episode, so I took her to the ER and she was admitted; Lara was not responding to any of the meds and got progressivly worse. They called a Childrens Hospital and and a pulminary team was sent to transport her there. She was in ICU for 2 days , and they finally stabilized her,that is where I met her new Dr. Dr. Wazka sent her for a sweat, and the 1st time she didnt sweat enough, the re-test came back 46mmol, so she is being geno tested for CF. I am worried sick and have trouble sleeping, and cry alot and spend hours on the cpu looked for any info I can find about this illness. If anyone has any advice for me I would surely appreciate it. ( sorry about the rambling)

 

[larasmommy]

Hi Everyone, My name is Marie and I live in New Jersey. I have a 5 year old daughter who is being tested for CF (quest diagnostics). Lara has been sick alot, she has had pnuemmonia twice, mucus plugs, chronic wheezing since she was born , and was diagnosed with asthma at 1 1/2 years . This past March she was having a really bad episode, so I took her to the ER and she was admitted; Lara was not responding to any of the meds and got progressivly worse. They called a Childrens Hospital and and a pulminary team was sent to transport her there. She was in ICU for 2 days , and they finally stabilized her,that is where I met her new Dr. Dr. Wazka sent her for a sweat, and the 1st time she didnt sweat enough, the re-test came back 46mmol, so she is being geno tested for CF. I am worried sick and have trouble sleeping, and cry alot and spend hours on the cpu looked for any info I can find about this illness. If anyone has any advice for me I would surely appreciate it. ( sorry about the rambling)

 

[larasmommy]

Hi Everyone, My name is Marie and I live in New Jersey. I have a 5 year old daughter who is being tested for CF (quest diagnostics). Lara has been sick alot, she has had pnuemmonia twice, mucus plugs, chronic wheezing since she was born , and was diagnosed with asthma at 1 1/2 years . This past March she was having a really bad episode, so I took her to the ER and she was admitted; Lara was not responding to any of the meds and got progressivly worse. They called a Childrens Hospital and and a pulminary team was sent to transport her there. She was in ICU for 2 days , and they finally stabilized her,that is where I met her new Dr. Dr. Wazka sent her for a sweat, and the 1st time she didnt sweat enough, the re-test came back 46mmol, so she is being geno tested for CF. I am worried sick and have trouble sleeping, and cry alot and spend hours on the cpu looked for any info I can find about this illness. If anyone has any advice for me I would surely appreciate it. ( sorry about the rambling)

 

[mom2lillian]

Lara,

It surely sounds like you have had a very rough time with everything these past years. I know how hard it can be emotionally to not know what it wrong and when it is with your hcild that is always a million times worse. I am glad it sounds like you have gotten in touch with some good doctors this is key.

I am positive that if Lara gets her diagnosis things will start to look up for you. While cystic fibrosis is definately a terrible diagnosis for you child the not knowing is infinately worse. If she is diagnosed with CF they will know how to start treating her and her health should imrpove immensely and you will finally know what you are dealing with.

Dont let yourself get overburdened by reading, if it is too much for you at this point then take a step back. Also keep in mind there is alot of out of date information out there on CF so try not to read anything older than the past 3-5 years.

take care

 

[mom2lillian]

Lara,

It surely sounds like you have had a very rough time with everything these past years. I know how hard it can be emotionally to not know what it wrong and when it is with your hcild that is always a million times worse. I am glad it sounds like you have gotten in touch with some good doctors this is key.

I am positive that if Lara gets her diagnosis things will start to look up for you. While cystic fibrosis is definately a terrible diagnosis for you child the not knowing is infinately worse. If she is diagnosed with CF they will know how to start treating her and her health should imrpove immensely and you will finally know what you are dealing with.

Dont let yourself get overburdened by reading, if it is too much for you at this point then take a step back. Also keep in mind there is alot of out of date information out there on CF so try not to read anything older than the past 3-5 years.

take care

 

[mom2lillian]

Lara,

It surely sounds like you have had a very rough time with everything these past years. I know how hard it can be emotionally to not know what it wrong and when it is with your hcild that is always a million times worse. I am glad it sounds like you have gotten in touch with some good doctors this is key.

I am positive that if Lara gets her diagnosis things will start to look up for you. While cystic fibrosis is definately a terrible diagnosis for you child the not knowing is infinately worse. If she is diagnosed with CF they will know how to start treating her and her health should imrpove immensely and you will finally know what you are dealing with.

Dont let yourself get overburdened by reading, if it is too much for you at this point then take a step back. Also keep in mind there is alot of out of date information out there on CF so try not to read anything older than the past 3-5 years.

take care

 

[mom2lillian]

Lara,

It surely sounds like you have had a very rough time with everything these past years. I know how hard it can be emotionally to not know what it wrong and when it is with your hcild that is always a million times worse. I am glad it sounds like you have gotten in touch with some good doctors this is key.

I am positive that if Lara gets her diagnosis things will start to look up for you. While cystic fibrosis is definately a terrible diagnosis for you child the not knowing is infinately worse. If she is diagnosed with CF they will know how to start treating her and her health should imrpove immensely and you will finally know what you are dealing with.

Dont let yourself get overburdened by reading, if it is too much for you at this point then take a step back. Also keep in mind there is alot of out of date information out there on CF so try not to read anything older than the past 3-5 years.

take care

 

[mom2lillian]

Lara,

It surely sounds like you have had a very rough time with everything these past years. I know how hard it can be emotionally to not know what it wrong and when it is with your hcild that is always a million times worse. I am glad it sounds like you have gotten in touch with some good doctors this is key.

I am positive that if Lara gets her diagnosis things will start to look up for you. While cystic fibrosis is definately a terrible diagnosis for you child the not knowing is infinately worse. If she is diagnosed with CF they will know how to start treating her and her health should imrpove immensely and you will finally know what you are dealing with.

Dont let yourself get overburdened by reading, if it is too much for you at this point then take a step back. Also keep in mind there is alot of out of date information out there on CF so try not to read anything older than the past 3-5 years.

take care

 

[mom2lillian]

Lara,

It surely sounds like you have had a very rough time with everything these past years. I know how hard it can be emotionally to not know what it wrong and when it is with your hcild that is always a million times worse. I am glad it sounds like you have gotten in touch with some good doctors this is key.

I am positive that if Lara gets her diagnosis things will start to look up for you. While cystic fibrosis is definately a terrible diagnosis for you child the not knowing is infinately worse. If she is diagnosed with CF they will know how to start treating her and her health should imrpove immensely and you will finally know what you are dealing with.

Dont let yourself get overburdened by reading, if it is too much for you at this point then take a step back. Also keep in mind there is alot of out of date information out there on CF so try not to read anything older than the past 3-5 years.

take care

 

[lizzy]

Hi Marie, Like Nicole said cystic fibrosis, is a horriable disease. I truly believe that not knowing is worse. My daughter spent her first 11 months very sick. We were always at the doctors, or in the hospital. Once she was dx and got proper medication she was a changed person. I know its hard, and nothing I say can make you feel better. Theres lots of folks here who can help you through this process if she does have CF. Take care.

 

[lizzy]

Hi Marie, Like Nicole said cystic fibrosis, is a horriable disease. I truly believe that not knowing is worse. My daughter spent her first 11 months very sick. We were always at the doctors, or in the hospital. Once she was dx and got proper medication she was a changed person. I know its hard, and nothing I say can make you feel better. Theres lots of folks here who can help you through this process if she does have CF. Take care.

 

[lizzy]

Hi Marie, Like Nicole said cystic fibrosis, is a horriable disease. I truly believe that not knowing is worse. My daughter spent her first 11 months very sick. We were always at the doctors, or in the hospital. Once she was dx and got proper medication she was a changed person. I know its hard, and nothing I say can make you feel better. Theres lots of folks here who can help you through this process if she does have CF. Take care.

 

[lizzy]

Hi Marie, Like Nicole said cystic fibrosis, is a horriable disease. I truly believe that not knowing is worse. My daughter spent her first 11 months very sick. We were always at the doctors, or in the hospital. Once she was dx and got proper medication she was a changed person. I know its hard, and nothing I say can make you feel better. Theres lots of folks here who can help you through this process if she does have CF. Take care.

 

[lizzy]

Hi Marie, Like Nicole said cystic fibrosis, is a horriable disease. I truly believe that not knowing is worse. My daughter spent her first 11 months very sick. We were always at the doctors, or in the hospital. Once she was dx and got proper medication she was a changed person. I know its hard, and nothing I say can make you feel better. Theres lots of folks here who can help you through this process if she does have CF. Take care.

 

[lizzy]

Hi Marie, Like Nicole said cystic fibrosis, is a horriable disease. I truly believe that not knowing is worse. My daughter spent her first 11 months very sick. We were always at the doctors, or in the hospital. Once she was dx and got proper medication she was a changed person. I know its hard, and nothing I say can make you feel better. Theres lots of folks here who can help you through this process if she does have CF. Take care.

 

[Alyssa]

I don't have anything different to say than the other two people posted -- I feel the same way... I ditto everything they said.

 

[Alyssa]

I don't have anything different to say than the other two people posted -- I feel the same way... I ditto everything they said.