We are suffering from a perfect storm of health problems

rmotion · Oct 11, 2011

CF and Nutrition

We are suffering from a perfect storm of health problems

1.
Metabolic syndrome - Long term blood
sugars, not controlled properly in the body, taxes the system to where most Cf's
adults get clinical CFRD. This can be avoided, irrespective of what clinical
outlines say. If we don't tax our systems we can do better. Learn about blood
sugar and how we are so affected by it.

2.
Nutrient Mal-absorbtion - We cant absorb
the right amount of nutrients especially fats. This is such a catch 22 that it
is so imperitive to get our stomachs straightend out so we get nutrients we
need to live. For me it was finding out that I have a gluten intolerance once I
was gluten free my health did a 120, notice it was not a 180 - the other 60
degrees is the right carbs and healthy foods. Still work in progress for the
rest

3.
Inflammation of cells and lungs - We cant
help it our immune systems just don't shut off, it causes long term damage. I
remember once asking what CRP is on my labs. I was quickly answered that in CF
it is always high no need to worry about it. I accepted and moved on. Well what
it is besides just an indicator of heart disease but an indicator of unbridled
inflammation in our bodies namely our lungs. Its like we have a non stop
splinter and our lungs are always inflamed. I bet if we got this under control
we would have a 25% bump in PFT's if we got rid of the pseudomonas we would get
another 25% bump.

4.
Congestion caused by defect in respiratory
transport channels - Ah yes the underlying disease mechanism that causes
this all. Isnt it interesting that we are here at all. So something must be
working to get this far. Isnt it true that babies with Cf lungs are clear and
not affected for a few years. Is there something we are missing what really
makes us sick and how can we address this. If we are wrong from the beginning what
hope so us 41 year olds have.

We have to outline our objectives. Do we want to just gain weight
or gain health.

We have to look at everything we know and reverse it, the
answer is not as it seems. In the inventors world we call it "reverse
assumption", question everything from the opposite angle.

Ie: It is prescribed that eat lots of calories, fat sugar
and what not, irrespective of where nutritionally they come from. The goal is to gain weight, so we hit a
number to make our CF clinic look good, not control disease process. Traditional
medicine just looks at the symptom not the body's healing processes. Lets look
at this what would be better an almond butter smoothie sweetened with honey or
a milky way and pizza? Hard boiled eggs, olive oil squash or a tv dinner. NO
question right.

I saw a commercial for KFC the other day. One time I might
of thought what they were showing might be appetizing but now that fried
chicken, fries and a roll looks revolting, all this
processed dead food that is actually anti nutrient value your body has to work
harder to digest and process this junk. It might be 1500 calories but is just
horrible for those that want better health. Nutrients are just a transfer of
energy the more intact they are the easier it is to get utilized by the
body. So what your saying is become a
low calorie vegetarian far from it. We need a hunter gatherer diet, gluten
free, inflammation controlled diet, raw and some vegetarian but meats and
protein too. Fruits and veggies no sugar or processed crap.

Look at the example of Steve Jobs, whose recent death just
highlights the extreme, of it doesn't matter how much money you have or who you
know you cant out run poor nutrition which leads to cancer. Cancer is just the
body's last ditch effort to save itself, so is celiac. In both cases it is a
nutritional chaos and the body is practicing self protection. Dr Mercola -
Steve Jobs 

<a href="http://articles.mercola.com/sites/articles/archive/2011/10/09/dr-nicholas-gonzalez-on-steve-jobs.aspx?e_cid=20111009_SNL_Art_1">http://articles.mercola.com/sites/articles/archive/2011/10/09/dr-nicholas-gonzalez-on-steve-jobs.aspx?e_cid=20111009_SNL_Art_1</a>

<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com<img src="i/expressions/face-icon-small-blush.gif" border="0">ffice<img src="i/expressions/face-icon-small-blush.gif" border="0">ffice" /><o<img src="i/expressions/face-icon-small-tongue.gif" border="0">> </o<img src="i/expressions/face-icon-small-tongue.gif" border="0">>

Look at this article <a href="http://www.greenmedinfo.com/">www.greenmedinfo.com</a>
"The Dark Side of Wheat"

With CF there is no short cut to health, we have to take a
hard look at what we have in stock what is working and where we can optimize
our health. We have to work harder and smarter. We have to do what our CF docs
say and we have to do what the most aggressive Natural Doc and nutritionists do
and say. We don't have the celebrities or big wigs with CF, CF keeps most of us
harranged and just fighting most of the time it is tough to make it in a non CF
world, the CFF does nothing in this area so we are on our owns. Question if it
can be better we have to do something different something more.

Recently I just did a tune up and I made an unofficial tally
of who is doing what in terms of what needs to be done in terms of good health.

1.
Patients in the hospital order Coke, pizza, jello in large quantities, bad

2.
Nurses run on Diet cokes and Starbucks

3.
Doctors are often times overweight and just as unhealthy
as anyone else.

Recently an associate of mine who works in a cancer hospital
just went to a funeral service for a cancer doctor who just died of cancer.
Really, when are we going to give nutrition a go as the first stop for long
term health. It's just crazy.

We gain weight with a g-tube but the problem is that low
value calories and sugar are just stored in adipose fat (usually around the
middle) so we gain weight but most of it is in our bellies. I switched from
high glycemic carbs to those from squash or sweet potatos and initially lost a little
weight but what I did not realize is that I gained it in muscle without even
trying. My diabelly tire slimmed down, interesting. Now each day I have new
awareness of what to eat and what I can bolus in my g-tube. Yesterday I had
such an inspiration/ concoction that I burned out my blender. Today I am off to
buy a commercial blender to really get at it. I also use a slow juicer that slowly
juices the fruits and veggies to extract more nutrients without destroying
them. <a href="http://www.hurom.com/">www.hurom.com</a>

Too much sugar taxes the body and over long term is
detrimental to our health and ability to stay well. I often wonder if I know
what I know now and did not have CF what could I accomplish. Would I be as
motivated and determined. Don't know many healthy people are not, they are lazy
or tired or don't care about their health because they don't have to do
anything for it they just take it for granted. Well baby walk a breathless mile in my shoes and you will gain some
perspective! <o<img src="i/expressions/face-icon-small-tongue.gif" border="0">></o<img src="i/expressions/face-icon-small-tongue.gif" border="0">>

Sugar fuels our cells but also pseudomonas cells. An excess
of sugar allows these pathogens to grow uninhibited.

Sugar is too easy to get
and not necessary for mass consumption.

It is ridiculously hard to avoid Dr. Pepper and sugar in my
tea. But I look at it as not what I am giving up but what I am gaining. I am
gaining better health. Now I am 41 I just wish I put this together at 21 or 12!

If you subscribe to the belief that as man evolved he had to
hunt and gather his food, only when he started to farm did his diet get worse.
In the case of sugar it was a rare commodity and not readily available. Lets
say you eat an apple and it has 1or 2 tsp of sugar, natural fructose with all the
companion nutrients, fiber etc that slow the digestion of the sugar versus high
fructose corn sugar that is basically a chemical that is rapidly absorbed your
body has difficulty utilizing it so it creates a cascade of negative events. One
it is stored as adipose fat, two causes inflammation three it fuels pathogens.
You'd have to eat 10-15 apples to get the sugar equivalent of 1 soda. Sugar in
sodas is too easy thus we have so many problems in regular people we have an
overweight epidemic and diabetes > IN Cf we just get the diabetes and inflammation
and congestion. It's a lose lose for us.

I can tell a CF'er a mile away, besides the cough, our sound
of voice and thin arms and hunched back what is especially clear, self included,
when I look in the mirror there is a fallow palor in our faces, a lackI just
saw a picture of a young guy with CF who's parent are of some decent financial
means and pull with the CF community but his color is off I want to email him
and say that even though you are tall and growing your getting too much sugar! . One thing I do notice is that as a group Cf's
tend to look younger than most of the same age, is this due to lack of growth
or something else. There is a big movement that practices caloric restriction
they say it is beneficial and reduces metabolic stress. Well I don't think CF's
should restrict our calories but we might be practicing this by default. Not sure just a
thought. It is the same look one can attribute to a long term smoker, their
bodies are so deplete of nutrients it shows in their faces and hair, voice etc.


<o<img src="i/expressions/face-icon-small-tongue.gif" border="0">> </o<img src="i/expressions/face-icon-small-tongue.gif" border="0">>

Bottom line we need to be uber healthy with CF a larger
tougher order to fill in what is an overwhelming disease. But working smarter
and different will make you feel better leading to be able to do more.

rmotion · Oct 11, 2011

CF and Nutrition

We are suffering from a perfect storm of health problems

1.
Metabolic syndrome - Long term blood
sugars, not controlled properly in the body, taxes the system to where most Cf's
adults get clinical CFRD. This can be avoided, irrespective of what clinical
outlines say. If we don't tax our systems we can do better. Learn about blood
sugar and how we are so affected by it.

2.
Nutrient Mal-absorbtion - We cant absorb
the right amount of nutrients especially fats. This is such a catch 22 that it
is so imperitive to get our stomachs straightend out so we get nutrients we
need to live. For me it was finding out that I have a gluten intolerance once I
was gluten free my health did a 120, notice it was not a 180 - the other 60
degrees is the right carbs and healthy foods. Still work in progress for the
rest

3.
Inflammation of cells and lungs - We cant
help it our immune systems just don't shut off, it causes long term damage. I
remember once asking what CRP is on my labs. I was quickly answered that in CF
it is always high no need to worry about it. I accepted and moved on. Well what
it is besides just an indicator of heart disease but an indicator of unbridled
inflammation in our bodies namely our lungs. Its like we have a non stop
splinter and our lungs are always inflamed. I bet if we got this under control
we would have a 25% bump in PFT's if we got rid of the pseudomonas we would get
another 25% bump.

4.
Congestion caused by defect in respiratory
transport channels - Ah yes the underlying disease mechanism that causes
this all. Isnt it interesting that we are here at all. So something must be
working to get this far. Isnt it true that babies with Cf lungs are clear and
not affected for a few years. Is there something we are missing what really
makes us sick and how can we address this. If we are wrong from the beginning what
hope so us 41 year olds have.

We have to outline our objectives. Do we want to just gain weight
or gain health.

We have to look at everything we know and reverse it, the
answer is not as it seems. In the inventors world we call it "reverse
assumption", question everything from the opposite angle.

Ie: It is prescribed that eat lots of calories, fat sugar
and what not, irrespective of where nutritionally they come from. The goal is to gain weight, so we hit a
number to make our CF clinic look good, not control disease process. Traditional
medicine just looks at the symptom not the body's healing processes. Lets look
at this what would be better an almond butter smoothie sweetened with honey or
a milky way and pizza? Hard boiled eggs, olive oil squash or a tv dinner. NO
question right.

I saw a commercial for KFC the other day. One time I might
of thought what they were showing might be appetizing but now that fried
chicken, fries and a roll looks revolting, all this
processed dead food that is actually anti nutrient value your body has to work
harder to digest and process this junk. It might be 1500 calories but is just
horrible for those that want better health. Nutrients are just a transfer of
energy the more intact they are the easier it is to get utilized by the
body. So what your saying is become a
low calorie vegetarian far from it. We need a hunter gatherer diet, gluten
free, inflammation controlled diet, raw and some vegetarian but meats and
protein too. Fruits and veggies no sugar or processed crap.

Look at the example of Steve Jobs, whose recent death just
highlights the extreme, of it doesn't matter how much money you have or who you
know you cant out run poor nutrition which leads to cancer. Cancer is just the
body's last ditch effort to save itself, so is celiac. In both cases it is a
nutritional chaos and the body is practicing self protection. Dr Mercola -
Steve Jobs 

<a href="http://articles.mercola.com/sites/articles/archive/2011/10/09/dr-nicholas-gonzalez-on-steve-jobs.aspx?e_cid=20111009_SNL_Art_1">http://articles.mercola.com/sites/articles/archive/2011/10/09/dr-nicholas-gonzalez-on-steve-jobs.aspx?e_cid=20111009_SNL_Art_1</a>

<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com<img src="i/expressions/face-icon-small-blush.gif" border="0">ffice<img src="i/expressions/face-icon-small-blush.gif" border="0">ffice" /><o<img src="i/expressions/face-icon-small-tongue.gif" border="0">></o<img src="i/expressions/face-icon-small-tongue.gif" border="0">>

Look at this article <a href="http://www.greenmedinfo.com/">www.greenmedinfo.com</a>
"The Dark Side of Wheat"

With CF there is no short cut to health, we have to take a
hard look at what we have in stock what is working and where we can optimize
our health. We have to work harder and smarter. We have to do what our CF docs
say and we have to do what the most aggressive Natural Doc and nutritionists do
and say. We don't have the celebrities or big wigs with CF, CF keeps most of us
harranged and just fighting most of the time it is tough to make it in a non CF
world, the CFF does nothing in this area so we are on our owns. Question if it
can be better we have to do something different something more.

Recently I just did a tune up and I made an unofficial tally
of who is doing what in terms of what needs to be done in terms of good health.

1.
Patients in the hospital order Coke, pizza, jello in large quantities, bad

2.
Nurses run on Diet cokes and Starbucks

3.
Doctors are often times overweight and just as unhealthy
as anyone else.

Recently an associate of mine who works in a cancer hospital
just went to a funeral service for a cancer doctor who just died of cancer.
Really, when are we going to give nutrition a go as the first stop for long
term health. It's just crazy.

We gain weight with a g-tube but the problem is that low
value calories and sugar are just stored in adipose fat (usually around the
middle) so we gain weight but most of it is in our bellies. I switched from
high glycemic carbs to those from squash or sweet potatos and initially lost a little
weight but what I did not realize is that I gained it in muscle without even
trying. My diabelly tire slimmed down, interesting. Now each day I have new
awareness of what to eat and what I can bolus in my g-tube. Yesterday I had
such an inspiration/ concoction that I burned out my blender. Today I am off to
buy a commercial blender to really get at it. I also use a slow juicer that slowly
juices the fruits and veggies to extract more nutrients without destroying
them. <a href="http://www.hurom.com/">www.hurom.com</a>

Too much sugar taxes the body and over long term is
detrimental to our health and ability to stay well. I often wonder if I know
what I know now and did not have CF what could I accomplish. Would I be as
motivated and determined. Don't know many healthy people are not, they are lazy
or tired or don't care about their health because they don't have to do
anything for it they just take it for granted. Well baby walk a breathless mile in my shoes and you will gain some
perspective! <o<img src="i/expressions/face-icon-small-tongue.gif" border="0">></o<img src="i/expressions/face-icon-small-tongue.gif" border="0">>

Sugar fuels our cells but also pseudomonas cells. An excess
of sugar allows these pathogens to grow uninhibited.

Sugar is too easy to get
and not necessary for mass consumption.

It is ridiculously hard to avoid Dr. Pepper and sugar in my
tea. But I look at it as not what I am giving up but what I am gaining. I am
gaining better health. Now I am 41 I just wish I put this together at 21 or 12!

If you subscribe to the belief that as man evolved he had to
hunt and gather his food, only when he started to farm did his diet get worse.
In the case of sugar it was a rare commodity and not readily available. Lets
say you eat an apple and it has 1or 2 tsp of sugar, natural fructose with all the
companion nutrients, fiber etc that slow the digestion of the sugar versus high
fructose corn sugar that is basically a chemical that is rapidly absorbed your
body has difficulty utilizing it so it creates a cascade of negative events. One
it is stored as adipose fat, two causes inflammation three it fuels pathogens.
You'd have to eat 10-15 apples to get the sugar equivalent of 1 soda. Sugar in
sodas is too easy thus we have so many problems in regular people we have an
overweight epidemic and diabetes > IN Cf we just get the diabetes and inflammation
and congestion. It's a lose lose for us.

I can tell a CF'er a mile away, besides the cough, our sound
of voice and thin arms and hunched back what is especially clear, self included,
when I look in the mirror there is a fallow palor in our faces, a lackI just
saw a picture of a young guy with CF who's parent are of some decent financial
means and pull with the CF community but his color is off I want to email him
and say that even though you are tall and growing your getting too much sugar! . One thing I do notice is that as a group Cf's
tend to look younger than most of the same age, is this due to lack of growth
or something else. There is a big movement that practices caloric restriction
they say it is beneficial and reduces metabolic stress. Well I don't think CF's
should restrict our calories but we might be practicing this by default. Not sure just a
thought. It is the same look one can attribute to a long term smoker, their
bodies are so deplete of nutrients it shows in their faces and hair, voice etc.


<o<img src="i/expressions/face-icon-small-tongue.gif" border="0">></o<img src="i/expressions/face-icon-small-tongue.gif" border="0">>

Bottom line we need to be uber healthy with CF a larger
tougher order to fill in what is an overwhelming disease. But working smarter
and different will make you feel better leading to be able to do more.

rmotion · Oct 11, 2011

CF and Nutrition

We are suffering from a perfect storm of health problems

1.
Metabolic syndrome - Long term blood
sugars, not controlled properly in the body, taxes the system to where most Cf's
adults get clinical CFRD. This can be avoided, irrespective of what clinical
outlines say. If we don't tax our systems we can do better. Learn about blood
sugar and how we are so affected by it.

2.
Nutrient Mal-absorbtion - We cant absorb
the right amount of nutrients especially fats. This is such a catch 22 that it
is so imperitive to get our stomachs straightend out so we get nutrients we
need to live. For me it was finding out that I have a gluten intolerance once I
was gluten free my health did a 120, notice it was not a 180 - the other 60
degrees is the right carbs and healthy foods. Still work in progress for the
rest

3.
Inflammation of cells and lungs - We cant
help it our immune systems just don't shut off, it causes long term damage. I
remember once asking what CRP is on my labs. I was quickly answered that in CF
it is always high no need to worry about it. I accepted and moved on. Well what
it is besides just an indicator of heart disease but an indicator of unbridled
inflammation in our bodies namely our lungs. Its like we have a non stop
splinter and our lungs are always inflamed. I bet if we got this under control
we would have a 25% bump in PFT's if we got rid of the pseudomonas we would get
another 25% bump.

4.
Congestion caused by defect in respiratory
transport channels - Ah yes the underlying disease mechanism that causes
this all. Isnt it interesting that we are here at all. So something must be
working to get this far. Isnt it true that babies with Cf lungs are clear and
not affected for a few years. Is there something we are missing what really
makes us sick and how can we address this. If we are wrong from the beginning what
hope so us 41 year olds have.

We have to outline our objectives. Do we want to just gain weight
or gain health.

We have to look at everything we know and reverse it, the
answer is not as it seems. In the inventors world we call it "reverse
assumption", question everything from the opposite angle.

Ie: It is prescribed that eat lots of calories, fat sugar
and what not, irrespective of where nutritionally they come from. The goal is to gain weight, so we hit a
number to make our CF clinic look good, not control disease process. Traditional
medicine just looks at the symptom not the body's healing processes. Lets look
at this what would be better an almond butter smoothie sweetened with honey or
a milky way and pizza? Hard boiled eggs, olive oil squash or a tv dinner. NO
question right.

I saw a commercial for KFC the other day. One time I might
of thought what they were showing might be appetizing but now that fried
chicken, fries and a roll looks revolting, all this
processed dead food that is actually anti nutrient value your body has to work
harder to digest and process this junk. It might be 1500 calories but is just
horrible for those that want better health. Nutrients are just a transfer of
energy the more intact they are the easier it is to get utilized by the
body. So what your saying is become a
low calorie vegetarian far from it. We need a hunter gatherer diet, gluten
free, inflammation controlled diet, raw and some vegetarian but meats and
protein too. Fruits and veggies no sugar or processed crap.

Look at the example of Steve Jobs, whose recent death just
highlights the extreme, of it doesn't matter how much money you have or who you
know you cant out run poor nutrition which leads to cancer. Cancer is just the
body's last ditch effort to save itself, so is celiac. In both cases it is a
nutritional chaos and the body is practicing self protection. Dr Mercola -
Steve Jobs 

<a href="http://articles.mercola.com/sites/articles/archive/2011/10/09/dr-nicholas-gonzalez-on-steve-jobs.aspx?e_cid=20111009_SNL_Art_1">http://articles.mercola.com/sites/articles/archive/2011/10/09/dr-nicholas-gonzalez-on-steve-jobs.aspx?e_cid=20111009_SNL_Art_1</a>

<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com<img src="i/expressions/face-icon-small-blush.gif" border="0">ffice<img src="i/expressions/face-icon-small-blush.gif" border="0">ffice" /><o<img src="i/expressions/face-icon-small-tongue.gif" border="0">></o<img src="i/expressions/face-icon-small-tongue.gif" border="0">>

Look at this article <a href="http://www.greenmedinfo.com/">www.greenmedinfo.com</a>
"The Dark Side of Wheat"

With CF there is no short cut to health, we have to take a
hard look at what we have in stock what is working and where we can optimize
our health. We have to work harder and smarter. We have to do what our CF docs
say and we have to do what the most aggressive Natural Doc and nutritionists do
and say. We don't have the celebrities or big wigs with CF, CF keeps most of us
harranged and just fighting most of the time it is tough to make it in a non CF
world, the CFF does nothing in this area so we are on our owns. Question if it
can be better we have to do something different something more.

Recently I just did a tune up and I made an unofficial tally
of who is doing what in terms of what needs to be done in terms of good health.

1.
Patients in the hospital order Coke, pizza, jello in large quantities, bad

2.
Nurses run on Diet cokes and Starbucks

3.
Doctors are often times overweight and just as unhealthy
as anyone else.

Recently an associate of mine who works in a cancer hospital
just went to a funeral service for a cancer doctor who just died of cancer.
Really, when are we going to give nutrition a go as the first stop for long
term health. It's just crazy.

We gain weight with a g-tube but the problem is that low
value calories and sugar are just stored in adipose fat (usually around the
middle) so we gain weight but most of it is in our bellies. I switched from
high glycemic carbs to those from squash or sweet potatos and initially lost a little
weight but what I did not realize is that I gained it in muscle without even
trying. My diabelly tire slimmed down, interesting. Now each day I have new
awareness of what to eat and what I can bolus in my g-tube. Yesterday I had
such an inspiration/ concoction that I burned out my blender. Today I am off to
buy a commercial blender to really get at it. I also use a slow juicer that slowly
juices the fruits and veggies to extract more nutrients without destroying
them. <a href="http://www.hurom.com/">www.hurom.com</a>

Too much sugar taxes the body and over long term is
detrimental to our health and ability to stay well. I often wonder if I know
what I know now and did not have CF what could I accomplish. Would I be as
motivated and determined. Don't know many healthy people are not, they are lazy
or tired or don't care about their health because they don't have to do
anything for it they just take it for granted. Well baby walk a breathless mile in my shoes and you will gain some
perspective! <o<img src="i/expressions/face-icon-small-tongue.gif" border="0">></o<img src="i/expressions/face-icon-small-tongue.gif" border="0">>

Sugar fuels our cells but also pseudomonas cells. An excess
of sugar allows these pathogens to grow uninhibited.

Sugar is too easy to get
and not necessary for mass consumption.

It is ridiculously hard to avoid Dr. Pepper and sugar in my
tea. But I look at it as not what I am giving up but what I am gaining. I am
gaining better health. Now I am 41 I just wish I put this together at 21 or 12!

If you subscribe to the belief that as man evolved he had to
hunt and gather his food, only when he started to farm did his diet get worse.
In the case of sugar it was a rare commodity and not readily available. Lets
say you eat an apple and it has 1or 2 tsp of sugar, natural fructose with all the
companion nutrients, fiber etc that slow the digestion of the sugar versus high
fructose corn sugar that is basically a chemical that is rapidly absorbed your
body has difficulty utilizing it so it creates a cascade of negative events. One
it is stored as adipose fat, two causes inflammation three it fuels pathogens.
You'd have to eat 10-15 apples to get the sugar equivalent of 1 soda. Sugar in
sodas is too easy thus we have so many problems in regular people we have an
overweight epidemic and diabetes > IN Cf we just get the diabetes and inflammation
and congestion. It's a lose lose for us.

I can tell a CF'er a mile away, besides the cough, our sound
of voice and thin arms and hunched back what is especially clear, self included,
when I look in the mirror there is a fallow palor in our faces, a lackI just
saw a picture of a young guy with CF who's parent are of some decent financial
means and pull with the CF community but his color is off I want to email him
and say that even though you are tall and growing your getting too much sugar! . One thing I do notice is that as a group Cf's
tend to look younger than most of the same age, is this due to lack of growth
or something else. There is a big movement that practices caloric restriction
they say it is beneficial and reduces metabolic stress. Well I don't think CF's
should restrict our calories but we might be practicing this by default. Not sure just a
thought. It is the same look one can attribute to a long term smoker, their
bodies are so deplete of nutrients it shows in their faces and hair, voice etc.


<o<img src="i/expressions/face-icon-small-tongue.gif" border="0">></o<img src="i/expressions/face-icon-small-tongue.gif" border="0">>

Bottom line we need to be uber healthy with CF a larger
tougher order to fill in what is an overwhelming disease. But working smarter
and different will make you feel better leading to be able to do more.

We are suffering from a perfect storm of health problems

rmotion

New member

rmotion

New member

rmotion

New member