We are suffering from a perfect storm of health problems

rmotion · Oct 11, 2011

1. Metabolic syndrome - Long term blood sugars, not controlled properly in the body, taxes the system to where most Cf's adults get clinical CFRD. This can be avoided, irrespective of what clinical outlines say. If we don't tax our systems we can do better. Learn about blood sugar and how we are so affected by it.2. Nutrient Mal-absorbtion - We cant absorb the right amount of nutrients especially fats. This is such a catch 22 that it is so imperitive to get our stomachs straightend out so we get nutrients we need to live. For me it was finding out that I have a gluten intolerance once I was gluten free my health did a 120, notice it was not a 180 - the other 60 degrees is the right carbs and healthy foods. Still work in progress for the rest3. Inflammation of cells and lungs - We cant help it our immune systems just don't shut off, it causes long term damage. I remember once asking what CRP is on my labs. I was quickly answered that in CF it is always high no need to worry about it. I accepted and moved on. Well what it is besides just an indicator of heart disease but an indicator of unbridled inflammation in our bodies namely our lungs. Its like we have a non stop splinter and our lungs are always inflamed. I bet if we got this under control we would have a 25% bump in PFT's if we got rid of the pseudomonas we would get another 25% bump.4. Congestion caused by defect in respiratory transport channels - Ah yes the underlying disease mechanism that causes this all. Isnt it interesting that we are here at all. So something must be working to get this far. Isnt it true that babies with Cf lungs are clear and not affected for a few years. Is there something we are missing what really makes us sick and how can we address this. If we are wrong from the beginning what hope so us 41 year olds have.We have to outline our objectives. Do we want to just gain weight or gain health.

rmotion · Oct 11, 2011

1. Metabolic syndrome - Long term blood sugars, not controlled properly in the body, taxes the system to where most Cf's adults get clinical CFRD. This can be avoided, irrespective of what clinical outlines say. If we don't tax our systems we can do better. Learn about blood sugar and how we are so affected by it.2. Nutrient Mal-absorbtion - We cant absorb the right amount of nutrients especially fats. This is such a catch 22 that it is so imperitive to get our stomachs straightend out so we get nutrients we need to live. For me it was finding out that I have a gluten intolerance once I was gluten free my health did a 120, notice it was not a 180 - the other 60 degrees is the right carbs and healthy foods. Still work in progress for the rest3. Inflammation of cells and lungs - We cant help it our immune systems just don't shut off, it causes long term damage. I remember once asking what CRP is on my labs. I was quickly answered that in CF it is always high no need to worry about it. I accepted and moved on. Well what it is besides just an indicator of heart disease but an indicator of unbridled inflammation in our bodies namely our lungs. Its like we have a non stop splinter and our lungs are always inflamed. I bet if we got this under control we would have a 25% bump in PFT's if we got rid of the pseudomonas we would get another 25% bump.4. Congestion caused by defect in respiratory transport channels - Ah yes the underlying disease mechanism that causes this all. Isnt it interesting that we are here at all. So something must be working to get this far. Isnt it true that babies with Cf lungs are clear and not affected for a few years. Is there something we are missing what really makes us sick and how can we address this. If we are wrong from the beginning what hope so us 41 year olds have.We have to outline our objectives. Do we want to just gain weight or gain health.

rmotion · Oct 11, 2011

1. Metabolic syndrome - Long term blood sugars, not controlled properly in the body, taxes the system to where most Cf's adults get clinical CFRD. This can be avoided, irrespective of what clinical outlines say. If we don't tax our systems we can do better. Learn about blood sugar and how we are so affected by it.2. Nutrient Mal-absorbtion - We cant absorb the right amount of nutrients especially fats. This is such a catch 22 that it is so imperitive to get our stomachs straightend out so we get nutrients we need to live. For me it was finding out that I have a gluten intolerance once I was gluten free my health did a 120, notice it was not a 180 - the other 60 degrees is the right carbs and healthy foods. Still work in progress for the rest3. Inflammation of cells and lungs - We cant help it our immune systems just don't shut off, it causes long term damage. I remember once asking what CRP is on my labs. I was quickly answered that in CF it is always high no need to worry about it. I accepted and moved on. Well what it is besides just an indicator of heart disease but an indicator of unbridled inflammation in our bodies namely our lungs. Its like we have a non stop splinter and our lungs are always inflamed. I bet if we got this under control we would have a 25% bump in PFT's if we got rid of the pseudomonas we would get another 25% bump.4. Congestion caused by defect in respiratory transport channels - Ah yes the underlying disease mechanism that causes this all. Isnt it interesting that we are here at all. So something must be working to get this far. Isnt it true that babies with Cf lungs are clear and not affected for a few years. Is there something we are missing what really makes us sick and how can we address this. If we are wrong from the beginning what hope so us 41 year olds have.We have to outline our objectives. Do we want to just gain weight or gain health.

rmotion · Oct 11, 2011

Please see these other posts<a href="http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=611811&enterthread=y">http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=611811&enterthread=y</a>G-tube advantageWhen is the last time you had a hard boiled egg, olive oil and squash smoothie?<a href="http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=610454&highlight_key=y&keyword1=g%2Dtube">http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=610454&highlight_key=y&keyword1=g%2Dtube</a>

rmotion · Oct 11, 2011

Please see these other posts<a href="http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=611811&enterthread=y">http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=611811&enterthread=y</a>G-tube advantageWhen is the last time you had a hard boiled egg, olive oil and squash smoothie?<a href="http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=610454&highlight_key=y&keyword1=g%2Dtube">http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=610454&highlight_key=y&keyword1=g%2Dtube</a>

rmotion · Oct 11, 2011

Please see these other posts<a href="http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=611811&enterthread=y">http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=611811&enterthread=y</a>G-tube advantageWhen is the last time you had a hard boiled egg, olive oil and squash smoothie?<a href="http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=610454&highlight_key=y&keyword1=g%2Dtube">http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=610454&highlight_key=y&keyword1=g%2Dtube</a>

We are suffering from a perfect storm of health problems

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