Danny had CF clinic today and he has not gained any weight since his last visit 3 months ago. I already knew that cause I weigh him at home all the time but still it was hard hearing it from the CF team. We went on vacation and he never eats well while we're gone and he was also sick twice between clinic visits so that probably has something to do with it. The clinic was not overly concerned about it but want to try and remedy it before it becomes a problem. Except for when he was a newborn Danny has never had any problems gaining weight, he's always in the 90-95% range. This is just bothering me so much, so I need some advice/words of encouragement from those who "get it." I'm afraid this is going to be a downward spiral and there won't be anything I can do. Danny has a severe wheat allergy as well so trying to find things he can/will eat is already a challenge. I absolutely dread meal times--wish I could skip all of them.
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Went to clinic today--no weight gain
- Thread starter Nicole
- Start date
Danny had CF clinic today and he has not gained any weight since his last visit 3 months ago. I already knew that cause I weigh him at home all the time but still it was hard hearing it from the CF team. We went on vacation and he never eats well while we're gone and he was also sick twice between clinic visits so that probably has something to do with it. The clinic was not overly concerned about it but want to try and remedy it before it becomes a problem. Except for when he was a newborn Danny has never had any problems gaining weight, he's always in the 90-95% range. This is just bothering me so much, so I need some advice/words of encouragement from those who "get it." I'm afraid this is going to be a downward spiral and there won't be anything I can do. Danny has a severe wheat allergy as well so trying to find things he can/will eat is already a challenge. I absolutely dread meal times--wish I could skip all of them.
Danny had CF clinic today and he has not gained any weight since his last visit 3 months ago. I already knew that cause I weigh him at home all the time but still it was hard hearing it from the CF team. We went on vacation and he never eats well while we're gone and he was also sick twice between clinic visits so that probably has something to do with it. The clinic was not overly concerned about it but want to try and remedy it before it becomes a problem. Except for when he was a newborn Danny has never had any problems gaining weight, he's always in the 90-95% range. This is just bothering me so much, so I need some advice/words of encouragement from those who "get it." I'm afraid this is going to be a downward spiral and there won't be anything I can do. Danny has a severe wheat allergy as well so trying to find things he can/will eat is already a challenge. I absolutely dread meal times--wish I could skip all of them.
Danny had CF clinic today and he has not gained any weight since his last visit 3 months ago. I already knew that cause I weigh him at home all the time but still it was hard hearing it from the CF team. We went on vacation and he never eats well while we're gone and he was also sick twice between clinic visits so that probably has something to do with it. The clinic was not overly concerned about it but want to try and remedy it before it becomes a problem. Except for when he was a newborn Danny has never had any problems gaining weight, he's always in the 90-95% range. This is just bothering me so much, so I need some advice/words of encouragement from those who "get it." I'm afraid this is going to be a downward spiral and there won't be anything I can do. Danny has a severe wheat allergy as well so trying to find things he can/will eat is already a challenge. I absolutely dread meal times--wish I could skip all of them.
Danny had CF clinic today and he has not gained any weight since his last visit 3 months ago. I already knew that cause I weigh him at home all the time but still it was hard hearing it from the CF team. We went on vacation and he never eats well while we're gone and he was also sick twice between clinic visits so that probably has something to do with it. The clinic was not overly concerned about it but want to try and remedy it before it becomes a problem. Except for when he was a newborn Danny has never had any problems gaining weight, he's always in the 90-95% range. This is just bothering me so much, so I need some advice/words of encouragement from those who "get it." I'm afraid this is going to be a downward spiral and there won't be anything I can do. Danny has a severe wheat allergy as well so trying to find things he can/will eat is already a challenge. I absolutely dread meal times--wish I could skip all of them.
It's normal for kids to have slow to no gain periods as they get older. I know it is hard not to worry because as parents we are told to be healthy our cf'rs need to be at a healthy weight and have nutritional diets but it sounds like he is in a healthy weight range.
good luck
good luck
It's normal for kids to have slow to no gain periods as they get older. I know it is hard not to worry because as parents we are told to be healthy our cf'rs need to be at a healthy weight and have nutritional diets but it sounds like he is in a healthy weight range.
good luck
good luck
It's normal for kids to have slow to no gain periods as they get older. I know it is hard not to worry because as parents we are told to be healthy our cf'rs need to be at a healthy weight and have nutritional diets but it sounds like he is in a healthy weight range.
good luck
good luck
It's normal for kids to have slow to no gain periods as they get older. I know it is hard not to worry because as parents we are told to be healthy our cf'rs need to be at a healthy weight and have nutritional diets but it sounds like he is in a healthy weight range.
good luck
good luck
It's normal for kids to have slow to no gain periods as they get older. I know it is hard not to worry because as parents we are told to be healthy our cf'rs need to be at a healthy weight and have nutritional diets but it sounds like he is in a healthy weight range.
<br />
<br />good luck
<br />
<br />good luck
I know that feeling. I have cried, right then and there in the Pulmo office, because Emily has gained little or no weight. It is so hard to feel like I am doing everything I can, and have it not work.
This may not be the righ thing to do, but I find myself thinking about how well Emily is doing in other areas, to compensate for the lack of weight gain. Her lungs sounded and looked great. She is doing great with potty training and her stools are not too hard and not too soft (Sounds like the 3 bears...). She is a wonderful, healthy kid. She just can' t gain.
I also ask the CF dietician for a new trick to try every time we have one of those visits where I feel an inch tall because I've failed my child. (I know I haven't, but that's how it feels!). For a few weeks after a clinic visit, we are really gung-ho, and each time I try to push that a little further.
It's hard. It bothers me too. Just do the best you can each day, then do it again the next day. Keep a list of his favorite foods and stock up. Try new things. Be open to any suggetions from the docs.
You're not alone.
This may not be the righ thing to do, but I find myself thinking about how well Emily is doing in other areas, to compensate for the lack of weight gain. Her lungs sounded and looked great. She is doing great with potty training and her stools are not too hard and not too soft (Sounds like the 3 bears...). She is a wonderful, healthy kid. She just can' t gain.
I also ask the CF dietician for a new trick to try every time we have one of those visits where I feel an inch tall because I've failed my child. (I know I haven't, but that's how it feels!). For a few weeks after a clinic visit, we are really gung-ho, and each time I try to push that a little further.
It's hard. It bothers me too. Just do the best you can each day, then do it again the next day. Keep a list of his favorite foods and stock up. Try new things. Be open to any suggetions from the docs.
You're not alone.
I know that feeling. I have cried, right then and there in the Pulmo office, because Emily has gained little or no weight. It is so hard to feel like I am doing everything I can, and have it not work.
This may not be the righ thing to do, but I find myself thinking about how well Emily is doing in other areas, to compensate for the lack of weight gain. Her lungs sounded and looked great. She is doing great with potty training and her stools are not too hard and not too soft (Sounds like the 3 bears...). She is a wonderful, healthy kid. She just can' t gain.
I also ask the CF dietician for a new trick to try every time we have one of those visits where I feel an inch tall because I've failed my child. (I know I haven't, but that's how it feels!). For a few weeks after a clinic visit, we are really gung-ho, and each time I try to push that a little further.
It's hard. It bothers me too. Just do the best you can each day, then do it again the next day. Keep a list of his favorite foods and stock up. Try new things. Be open to any suggetions from the docs.
You're not alone.
This may not be the righ thing to do, but I find myself thinking about how well Emily is doing in other areas, to compensate for the lack of weight gain. Her lungs sounded and looked great. She is doing great with potty training and her stools are not too hard and not too soft (Sounds like the 3 bears...). She is a wonderful, healthy kid. She just can' t gain.
I also ask the CF dietician for a new trick to try every time we have one of those visits where I feel an inch tall because I've failed my child. (I know I haven't, but that's how it feels!). For a few weeks after a clinic visit, we are really gung-ho, and each time I try to push that a little further.
It's hard. It bothers me too. Just do the best you can each day, then do it again the next day. Keep a list of his favorite foods and stock up. Try new things. Be open to any suggetions from the docs.
You're not alone.
I know that feeling. I have cried, right then and there in the Pulmo office, because Emily has gained little or no weight. It is so hard to feel like I am doing everything I can, and have it not work.
This may not be the righ thing to do, but I find myself thinking about how well Emily is doing in other areas, to compensate for the lack of weight gain. Her lungs sounded and looked great. She is doing great with potty training and her stools are not too hard and not too soft (Sounds like the 3 bears...). She is a wonderful, healthy kid. She just can' t gain.
I also ask the CF dietician for a new trick to try every time we have one of those visits where I feel an inch tall because I've failed my child. (I know I haven't, but that's how it feels!). For a few weeks after a clinic visit, we are really gung-ho, and each time I try to push that a little further.
It's hard. It bothers me too. Just do the best you can each day, then do it again the next day. Keep a list of his favorite foods and stock up. Try new things. Be open to any suggetions from the docs.
You're not alone.
This may not be the righ thing to do, but I find myself thinking about how well Emily is doing in other areas, to compensate for the lack of weight gain. Her lungs sounded and looked great. She is doing great with potty training and her stools are not too hard and not too soft (Sounds like the 3 bears...). She is a wonderful, healthy kid. She just can' t gain.
I also ask the CF dietician for a new trick to try every time we have one of those visits where I feel an inch tall because I've failed my child. (I know I haven't, but that's how it feels!). For a few weeks after a clinic visit, we are really gung-ho, and each time I try to push that a little further.
It's hard. It bothers me too. Just do the best you can each day, then do it again the next day. Keep a list of his favorite foods and stock up. Try new things. Be open to any suggetions from the docs.
You're not alone.
I know that feeling. I have cried, right then and there in the Pulmo office, because Emily has gained little or no weight. It is so hard to feel like I am doing everything I can, and have it not work.
This may not be the righ thing to do, but I find myself thinking about how well Emily is doing in other areas, to compensate for the lack of weight gain. Her lungs sounded and looked great. She is doing great with potty training and her stools are not too hard and not too soft (Sounds like the 3 bears...). She is a wonderful, healthy kid. She just can' t gain.
I also ask the CF dietician for a new trick to try every time we have one of those visits where I feel an inch tall because I've failed my child. (I know I haven't, but that's how it feels!). For a few weeks after a clinic visit, we are really gung-ho, and each time I try to push that a little further.
It's hard. It bothers me too. Just do the best you can each day, then do it again the next day. Keep a list of his favorite foods and stock up. Try new things. Be open to any suggetions from the docs.
You're not alone.
This may not be the righ thing to do, but I find myself thinking about how well Emily is doing in other areas, to compensate for the lack of weight gain. Her lungs sounded and looked great. She is doing great with potty training and her stools are not too hard and not too soft (Sounds like the 3 bears...). She is a wonderful, healthy kid. She just can' t gain.
I also ask the CF dietician for a new trick to try every time we have one of those visits where I feel an inch tall because I've failed my child. (I know I haven't, but that's how it feels!). For a few weeks after a clinic visit, we are really gung-ho, and each time I try to push that a little further.
It's hard. It bothers me too. Just do the best you can each day, then do it again the next day. Keep a list of his favorite foods and stock up. Try new things. Be open to any suggetions from the docs.
You're not alone.
I know that feeling. I have cried, right then and there in the Pulmo office, because Emily has gained little or no weight. It is so hard to feel like I am doing everything I can, and have it not work.
<br />
<br />This may not be the righ thing to do, but I find myself thinking about how well Emily is doing in other areas, to compensate for the lack of weight gain. Her lungs sounded and looked great. She is doing great with potty training and her stools are not too hard and not too soft (Sounds like the 3 bears...). She is a wonderful, healthy kid. She just can' t gain.
<br />
<br />I also ask the CF dietician for a new trick to try every time we have one of those visits where I feel an inch tall because I've failed my child. (I know I haven't, but that's how it feels!). For a few weeks after a clinic visit, we are really gung-ho, and each time I try to push that a little further.
<br />
<br />It's hard. It bothers me too. Just do the best you can each day, then do it again the next day. Keep a list of his favorite foods and stock up. Try new things. Be open to any suggetions from the docs.
<br />
<br />You're not alone.
<br />
<br />This may not be the righ thing to do, but I find myself thinking about how well Emily is doing in other areas, to compensate for the lack of weight gain. Her lungs sounded and looked great. She is doing great with potty training and her stools are not too hard and not too soft (Sounds like the 3 bears...). She is a wonderful, healthy kid. She just can' t gain.
<br />
<br />I also ask the CF dietician for a new trick to try every time we have one of those visits where I feel an inch tall because I've failed my child. (I know I haven't, but that's how it feels!). For a few weeks after a clinic visit, we are really gung-ho, and each time I try to push that a little further.
<br />
<br />It's hard. It bothers me too. Just do the best you can each day, then do it again the next day. Keep a list of his favorite foods and stock up. Try new things. Be open to any suggetions from the docs.
<br />
<br />You're not alone.
In December Max went to the local CF doctor for a scheduled appointment and the doctor's notes read like a thesarus for describing his lack of weight gain -- slim, trim, slight... He HAD gained in height 2-3 inches in fact, but all the doctor could focus on was the weight issue, wondered if we should schedule an appointment with the dietician.
It was so frustrating and I cried all the way home from the clinic. And I was making us all crazy about it. I'd ask him every day what he had for lunch, snack, etc. Around this age they're constantly on the go and they don't want to sit still for anything -- they might fall asleep for one thing <img src="i/expressions/face-icon-small-smile.gif" border="0"> And they don't want to slow down to eat.
I take him grocery shopping with me and let him pick things out. If he likes something, I stock up. And if he wants noodles with ketchup for every meal, it's fine with me. Easy to fix and he's not throwing a fit.
It was so frustrating and I cried all the way home from the clinic. And I was making us all crazy about it. I'd ask him every day what he had for lunch, snack, etc. Around this age they're constantly on the go and they don't want to sit still for anything -- they might fall asleep for one thing <img src="i/expressions/face-icon-small-smile.gif" border="0"> And they don't want to slow down to eat.
I take him grocery shopping with me and let him pick things out. If he likes something, I stock up. And if he wants noodles with ketchup for every meal, it's fine with me. Easy to fix and he's not throwing a fit.
In December Max went to the local CF doctor for a scheduled appointment and the doctor's notes read like a thesarus for describing his lack of weight gain -- slim, trim, slight... He HAD gained in height 2-3 inches in fact, but all the doctor could focus on was the weight issue, wondered if we should schedule an appointment with the dietician.
It was so frustrating and I cried all the way home from the clinic. And I was making us all crazy about it. I'd ask him every day what he had for lunch, snack, etc. Around this age they're constantly on the go and they don't want to sit still for anything -- they might fall asleep for one thing <img src="i/expressions/face-icon-small-smile.gif" border="0"> And they don't want to slow down to eat.
I take him grocery shopping with me and let him pick things out. If he likes something, I stock up. And if he wants noodles with ketchup for every meal, it's fine with me. Easy to fix and he's not throwing a fit.
It was so frustrating and I cried all the way home from the clinic. And I was making us all crazy about it. I'd ask him every day what he had for lunch, snack, etc. Around this age they're constantly on the go and they don't want to sit still for anything -- they might fall asleep for one thing <img src="i/expressions/face-icon-small-smile.gif" border="0"> And they don't want to slow down to eat.
I take him grocery shopping with me and let him pick things out. If he likes something, I stock up. And if he wants noodles with ketchup for every meal, it's fine with me. Easy to fix and he's not throwing a fit.
In December Max went to the local CF doctor for a scheduled appointment and the doctor's notes read like a thesarus for describing his lack of weight gain -- slim, trim, slight... He HAD gained in height 2-3 inches in fact, but all the doctor could focus on was the weight issue, wondered if we should schedule an appointment with the dietician.
It was so frustrating and I cried all the way home from the clinic. And I was making us all crazy about it. I'd ask him every day what he had for lunch, snack, etc. Around this age they're constantly on the go and they don't want to sit still for anything -- they might fall asleep for one thing <img src="i/expressions/face-icon-small-smile.gif" border="0"> And they don't want to slow down to eat.
I take him grocery shopping with me and let him pick things out. If he likes something, I stock up. And if he wants noodles with ketchup for every meal, it's fine with me. Easy to fix and he's not throwing a fit.
It was so frustrating and I cried all the way home from the clinic. And I was making us all crazy about it. I'd ask him every day what he had for lunch, snack, etc. Around this age they're constantly on the go and they don't want to sit still for anything -- they might fall asleep for one thing <img src="i/expressions/face-icon-small-smile.gif" border="0"> And they don't want to slow down to eat.
I take him grocery shopping with me and let him pick things out. If he likes something, I stock up. And if he wants noodles with ketchup for every meal, it's fine with me. Easy to fix and he's not throwing a fit.
In December Max went to the local CF doctor for a scheduled appointment and the doctor's notes read like a thesarus for describing his lack of weight gain -- slim, trim, slight... He HAD gained in height 2-3 inches in fact, but all the doctor could focus on was the weight issue, wondered if we should schedule an appointment with the dietician.
It was so frustrating and I cried all the way home from the clinic. And I was making us all crazy about it. I'd ask him every day what he had for lunch, snack, etc. Around this age they're constantly on the go and they don't want to sit still for anything -- they might fall asleep for one thing <img src="i/expressions/face-icon-small-smile.gif" border="0"> And they don't want to slow down to eat.
I take him grocery shopping with me and let him pick things out. If he likes something, I stock up. And if he wants noodles with ketchup for every meal, it's fine with me. Easy to fix and he's not throwing a fit.
It was so frustrating and I cried all the way home from the clinic. And I was making us all crazy about it. I'd ask him every day what he had for lunch, snack, etc. Around this age they're constantly on the go and they don't want to sit still for anything -- they might fall asleep for one thing <img src="i/expressions/face-icon-small-smile.gif" border="0"> And they don't want to slow down to eat.
I take him grocery shopping with me and let him pick things out. If he likes something, I stock up. And if he wants noodles with ketchup for every meal, it's fine with me. Easy to fix and he's not throwing a fit.
In December Max went to the local CF doctor for a scheduled appointment and the doctor's notes read like a thesarus for describing his lack of weight gain -- slim, trim, slight... He HAD gained in height 2-3 inches in fact, but all the doctor could focus on was the weight issue, wondered if we should schedule an appointment with the dietician.
<br />
<br />It was so frustrating and I cried all the way home from the clinic. And I was making us all crazy about it. I'd ask him every day what he had for lunch, snack, etc. Around this age they're constantly on the go and they don't want to sit still for anything -- they might fall asleep for one thing <img src="i/expressions/face-icon-small-smile.gif" border="0"> And they don't want to slow down to eat.
<br />
<br />I take him grocery shopping with me and let him pick things out. If he likes something, I stock up. And if he wants noodles with ketchup for every meal, it's fine with me. Easy to fix and he's not throwing a fit.
<br />
<br />It was so frustrating and I cried all the way home from the clinic. And I was making us all crazy about it. I'd ask him every day what he had for lunch, snack, etc. Around this age they're constantly on the go and they don't want to sit still for anything -- they might fall asleep for one thing <img src="i/expressions/face-icon-small-smile.gif" border="0"> And they don't want to slow down to eat.
<br />
<br />I take him grocery shopping with me and let him pick things out. If he likes something, I stock up. And if he wants noodles with ketchup for every meal, it's fine with me. Easy to fix and he's not throwing a fit.