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What would you do
- Thread starter anonymous
- Start date
hate to break it to you, but when you ask a question like that you will get all kinds of opinions and yes some will be negative. there is no use posting a question and saying 'dont type anything i dont want to hear' otherwise you will get biased answers.
anyway, if i was normal, if i did have a cf child and if i wanted another child i would adopt. there is ivf but it can be time consuming, expensive and sometimes has disappointing results, but id assume its great if you have the money and patience. maybe someone has, or knows someone whos done it the ivf way on here? as for leaving things up to chance, i would never do that.
kybert
anyway, if i was normal, if i did have a cf child and if i wanted another child i would adopt. there is ivf but it can be time consuming, expensive and sometimes has disappointing results, but id assume its great if you have the money and patience. maybe someone has, or knows someone whos done it the ivf way on here? as for leaving things up to chance, i would never do that.
kybert
Kybert
What has made you feel you are not normal? I think I read somewhere else that you mentioned disability when speaking about yourself. Are things that bad you feel THAT disabled? Aren't you a normal person who has the challenge of living with CF. It is a piss off having CF and things can get really tough I KNOW but our attitude can help and if you put yourself down and refer to yourself as not normal or disabled, then others may pick up on this and treat you accordingly. Big deal if people say, she has cf or she coughs all the time or whatever. If you are comfortable enough to know that this is your lot in life and don't allow them to treat you as disabled, most people won't. I know we are all different but I thank my lucky stars compared to some of the kids I used to see at the childrens hosp and I know that I am normal and always will be right to the end. It's your right of course but I don't think it helps parents of young children to read "if i were normal".
Take Care and keep your chin up.
Jenni
What has made you feel you are not normal? I think I read somewhere else that you mentioned disability when speaking about yourself. Are things that bad you feel THAT disabled? Aren't you a normal person who has the challenge of living with CF. It is a piss off having CF and things can get really tough I KNOW but our attitude can help and if you put yourself down and refer to yourself as not normal or disabled, then others may pick up on this and treat you accordingly. Big deal if people say, she has cf or she coughs all the time or whatever. If you are comfortable enough to know that this is your lot in life and don't allow them to treat you as disabled, most people won't. I know we are all different but I thank my lucky stars compared to some of the kids I used to see at the childrens hosp and I know that I am normal and always will be right to the end. It's your right of course but I don't think it helps parents of young children to read "if i were normal".
Take Care and keep your chin up.
Jenni
there is a very long thread on this board that you might want to read, b/c it discusses your exact question, but i'll let you know what i said to that post.
i was the first child, i have cf. my parents chose to have 2 more children, they are both without cf. but we would love them just as much if they had it!!!
it is a 25% chance. i think you just need to decide whether or not you would mind having another cf child, just in case. my parents were obviously ok with that chance, but luckily both of my sisters ended up being part of the 75%.
good luck with your decision. i would just say decide what YOU want, and if you decide you want more kids, don't let anyone talk you wout of it, and if you decide you don't, then don't let anyone talk you into it! <img src="i/expressions/face-icon-small-smile.gif" border="0">
i was the first child, i have cf. my parents chose to have 2 more children, they are both without cf. but we would love them just as much if they had it!!!
it is a 25% chance. i think you just need to decide whether or not you would mind having another cf child, just in case. my parents were obviously ok with that chance, but luckily both of my sisters ended up being part of the 75%.
good luck with your decision. i would just say decide what YOU want, and if you decide you want more kids, don't let anyone talk you wout of it, and if you decide you don't, then don't let anyone talk you into it! <img src="i/expressions/face-icon-small-smile.gif" border="0">
i was going to explain myself to you jenni but then i realised there is no point as you obviously think you know me better than i know myself. anyway, boy do you have it wrong! perhaps people shouldnt read into things so much and lighten up? didnt know a simple word could cause so much trouble.
kybert - proud to have cf, proud to use the word 'disabled', proud to be different.
kybert - proud to have cf, proud to use the word 'disabled', proud to be different.
No worries about my post being hijacked! Some of the new posts are interesting! I also took a look at the other post on this subject and I have to say that I am a little disappointed with the comments, but hey, that is what this is all about right!! Hope you all had a great Thanksgiving and had fun shopping today!!!
I think what Kylie meant by "normal" was CF free. I didn't take it as she thought less of herself or thought of herself as disabled. I'm sure we all have said/thought things such as..."If I didn't have CF I would work at a dirt race track, smoke, have 5 children, spend retirement in Arizona, play pro basketball, etc...." at one time or another. I think if we didn't, we would be somewhat in denial. I keep a positive attitude and if life hands me lemons, make lemonade!
I've never let CF hold me back, don't get me wrong. I've done everything I want to, but realize my limits at the same time. If anything, it's made me fight harder. Hope this makes sense<img src="i/expressions/face-icon-small-confused.gif" border="0">
I've never let CF hold me back, don't get me wrong. I've done everything I want to, but realize my limits at the same time. If anything, it's made me fight harder. Hope this makes sense<img src="i/expressions/face-icon-small-confused.gif" border="0">
hi jenni...new to this site, doing a paper on cystic fibrosis for a class. saw that you are a cf patient and thought you could possibly help me out on a few things. i can always look it up on the internet but its better and more personal to get from an actual person. I have a few questions to ask...if not interested, not a problem.
- how were you diagnoses, treatments that were taken and the expected lenght??
- with you having cf...how has this effected your parents an siblings? finacially and psychosocially?
- how has this disease affected you physically, emotionally, mentally, cognitively...is there is a difference?
- during your adolescent years, 12-21yrs, how has this effected you? how do you cope?
Any imput would be greatly appreciated. Not sure if you had any contact w/ child life specialists with any of your hospital visits you my have had, but that is my field of interest when I graduate. So this paper is for my Child Life class I am in.
Thank you so much...
<img src="i/expressions/face-icon-small-happy.gif" border="0">
- how were you diagnoses, treatments that were taken and the expected lenght??
- with you having cf...how has this effected your parents an siblings? finacially and psychosocially?
- how has this disease affected you physically, emotionally, mentally, cognitively...is there is a difference?
- during your adolescent years, 12-21yrs, how has this effected you? how do you cope?
Any imput would be greatly appreciated. Not sure if you had any contact w/ child life specialists with any of your hospital visits you my have had, but that is my field of interest when I graduate. So this paper is for my Child Life class I am in.
Thank you so much...
<img src="i/expressions/face-icon-small-happy.gif" border="0">