what's your meds schedule?

S

sasha

Guest
hi everyone, i'm new to cf and i was just wondering what you or your's daily medicaiton schedule is, if you don't mind sharing! i'm 15 btw, and my brother has the same schedule excpet he has a throat infection, so he inhales tobra morning and night as well. he's 12
mine is....

morning:
xoponex (inhaled)
hypertonic (neb)
symbicort (inhaled)
acapella

night:
xoponex inhaler
hypertonic saline neb while doing 10 mins of the dreaded vest
pulmozime neb
symbicort inhaler

as far as pills...i take azithromycin antibiotic monday, wednesday and friday every week. and 2 of these vitamin a, e, d and k supplement pills..(akuadets or something like that..) and of course, enzymes.


oh yeah, ive been doing this for three weeks now. has your doctor ever changed your med schedule, like added, changed, or taken away meds?
 
S

sasha

Guest
hi everyone, i'm new to cf and i was just wondering what you or your's daily medicaiton schedule is, if you don't mind sharing! i'm 15 btw, and my brother has the same schedule excpet he has a throat infection, so he inhales tobra morning and night as well. he's 12
mine is....

morning:
xoponex (inhaled)
hypertonic (neb)
symbicort (inhaled)
acapella

night:
xoponex inhaler
hypertonic saline neb while doing 10 mins of the dreaded vest
pulmozime neb
symbicort inhaler

as far as pills...i take azithromycin antibiotic monday, wednesday and friday every week. and 2 of these vitamin a, e, d and k supplement pills..(akuadets or something like that..) and of course, enzymes.


oh yeah, ive been doing this for three weeks now. has your doctor ever changed your med schedule, like added, changed, or taken away meds?
 
S

sasha

Guest
hi everyone, i'm new to cf and i was just wondering what you or your's daily medicaiton schedule is, if you don't mind sharing! i'm 15 btw, and my brother has the same schedule excpet he has a throat infection, so he inhales tobra morning and night as well. he's 12
mine is....

morning:
xoponex (inhaled)
hypertonic (neb)
symbicort (inhaled)
acapella

night:
xoponex inhaler
hypertonic saline neb while doing 10 mins of the dreaded vest
pulmozime neb
symbicort inhaler

as far as pills...i take azithromycin antibiotic monday, wednesday and friday every week. and 2 of these vitamin a, e, d and k supplement pills..(akuadets or something like that..) and of course, enzymes.


oh yeah, ive been doing this for three weeks now. has your doctor ever changed your med schedule, like added, changed, or taken away meds?
 
S

sasha

Guest
hi everyone, i'm new to cf and i was just wondering what you or your's daily medicaiton schedule is, if you don't mind sharing! i'm 15 btw, and my brother has the same schedule excpet he has a throat infection, so he inhales tobra morning and night as well. he's 12
mine is....

morning:
xoponex (inhaled)
hypertonic (neb)
symbicort (inhaled)
acapella

night:
xoponex inhaler
hypertonic saline neb while doing 10 mins of the dreaded vest
pulmozime neb
symbicort inhaler

as far as pills...i take azithromycin antibiotic monday, wednesday and friday every week. and 2 of these vitamin a, e, d and k supplement pills..(akuadets or something like that..) and of course, enzymes.


oh yeah, ive been doing this for three weeks now. has your doctor ever changed your med schedule, like added, changed, or taken away meds?
 
S

sasha

Guest
hi everyone, i'm new to cf and i was just wondering what you or your's daily medicaiton schedule is, if you don't mind sharing! i'm 15 btw, and my brother has the same schedule excpet he has a throat infection, so he inhales tobra morning and night as well. he's 12
<br />mine is....
<br />
<br />morning:
<br />xoponex (inhaled)
<br />hypertonic (neb)
<br />symbicort (inhaled)
<br />acapella
<br />
<br />night:
<br />xoponex inhaler
<br />hypertonic saline neb while doing 10 mins of the dreaded vest
<br />pulmozime neb
<br />symbicort inhaler
<br />
<br />as far as pills...i take azithromycin antibiotic monday, wednesday and friday every week. and 2 of these vitamin a, e, d and k supplement pills..(akuadets or something like that..) and of course, enzymes.
<br />
<br />
<br />oh yeah, ive been doing this for three weeks now. has your doctor ever changed your med schedule, like added, changed, or taken away meds?
 
J

jaimers

Super Moderator
hey casey, welcome to the site! yes my med schedule has changed over the years as medications were added or taken away, i was on antibiotics, IV antibiotics, etc. your schedule will probably change over time as well. I see in your signature that you were just diagnosed so this all might be kind of overwhelming but you get used to it! i was diagnosed at birth so i've had a while to get used to it all and while it may become routine i can't say it is ever fun but compliance is so important--i totally learned that the hard way.

my schedule now is the same morning and evening:
albuterol inhaler
hypertonic neb while i do my vest (30-40 mins)
inhaled tobramycin (every other month)
advair inhaler
pulmozyme (evening only)
mid-day/through the day: usually do another few puffs of albuterol during the day sometime, and sometimes fit in a vest/hypertonic treatment if there's time and i'm not lazy <img src="i/expressions/face-icon-small-wink.gif" border="0">

pills i take zithro mwf, ADEKs and other assorted vitamins, enzymes, anti-depressant
 
J

jaimers

Super Moderator
hey casey, welcome to the site! yes my med schedule has changed over the years as medications were added or taken away, i was on antibiotics, IV antibiotics, etc. your schedule will probably change over time as well. I see in your signature that you were just diagnosed so this all might be kind of overwhelming but you get used to it! i was diagnosed at birth so i've had a while to get used to it all and while it may become routine i can't say it is ever fun but compliance is so important--i totally learned that the hard way.

my schedule now is the same morning and evening:
albuterol inhaler
hypertonic neb while i do my vest (30-40 mins)
inhaled tobramycin (every other month)
advair inhaler
pulmozyme (evening only)
mid-day/through the day: usually do another few puffs of albuterol during the day sometime, and sometimes fit in a vest/hypertonic treatment if there's time and i'm not lazy <img src="i/expressions/face-icon-small-wink.gif" border="0">

pills i take zithro mwf, ADEKs and other assorted vitamins, enzymes, anti-depressant
 
J

jaimers

Super Moderator
hey casey, welcome to the site! yes my med schedule has changed over the years as medications were added or taken away, i was on antibiotics, IV antibiotics, etc. your schedule will probably change over time as well. I see in your signature that you were just diagnosed so this all might be kind of overwhelming but you get used to it! i was diagnosed at birth so i've had a while to get used to it all and while it may become routine i can't say it is ever fun but compliance is so important--i totally learned that the hard way.

my schedule now is the same morning and evening:
albuterol inhaler
hypertonic neb while i do my vest (30-40 mins)
inhaled tobramycin (every other month)
advair inhaler
pulmozyme (evening only)
mid-day/through the day: usually do another few puffs of albuterol during the day sometime, and sometimes fit in a vest/hypertonic treatment if there's time and i'm not lazy <img src="i/expressions/face-icon-small-wink.gif" border="0">

pills i take zithro mwf, ADEKs and other assorted vitamins, enzymes, anti-depressant
 
J

jaimers

Super Moderator
hey casey, welcome to the site! yes my med schedule has changed over the years as medications were added or taken away, i was on antibiotics, IV antibiotics, etc. your schedule will probably change over time as well. I see in your signature that you were just diagnosed so this all might be kind of overwhelming but you get used to it! i was diagnosed at birth so i've had a while to get used to it all and while it may become routine i can't say it is ever fun but compliance is so important--i totally learned that the hard way.

my schedule now is the same morning and evening:
albuterol inhaler
hypertonic neb while i do my vest (30-40 mins)
inhaled tobramycin (every other month)
advair inhaler
pulmozyme (evening only)
mid-day/through the day: usually do another few puffs of albuterol during the day sometime, and sometimes fit in a vest/hypertonic treatment if there's time and i'm not lazy <img src="i/expressions/face-icon-small-wink.gif" border="0">

pills i take zithro mwf, ADEKs and other assorted vitamins, enzymes, anti-depressant
 
J

jaimers

Super Moderator
hey casey, welcome to the site! yes my med schedule has changed over the years as medications were added or taken away, i was on antibiotics, IV antibiotics, etc. your schedule will probably change over time as well. I see in your signature that you were just diagnosed so this all might be kind of overwhelming but you get used to it! i was diagnosed at birth so i've had a while to get used to it all and while it may become routine i can't say it is ever fun but compliance is so important--i totally learned that the hard way.
<br />
<br />my schedule now is the same morning and evening:
<br />albuterol inhaler
<br />hypertonic neb while i do my vest (30-40 mins)
<br />inhaled tobramycin (every other month)
<br />advair inhaler
<br />pulmozyme (evening only)
<br />mid-day/through the day: usually do another few puffs of albuterol during the day sometime, and sometimes fit in a vest/hypertonic treatment if there's time and i'm not lazy <img src="i/expressions/face-icon-small-wink.gif" border="0">
<br />
<br />pills i take zithro mwf, ADEKs and other assorted vitamins, enzymes, anti-depressant
<br />
<br />
<br />
<br />
 
K

kfw1963

Guest
Your meds could change based on what you culture and any drug resistance these bugs may have. Also as Jaime said, if you go on IV therapy they may change these up during this time. I do the following both morning and evening(except the ibuprofen, zithro and mulit vit).

Singulair
HTS
Inhaled Tobi(every other month)
800mg Ibuprofen
40mg Protonix
2 Mulit Vits
Nasal Rinse
Flonase
Zithromax - MWF

Also Enzymes for meals/snacks and tylenol pm(generic version) for sleep aid and pain(costochondritis).

The schedule takes some getting used to and it can be a big time commitment. But in the long run it will help you stay healthier and be able to do more things with your friends.
 
K

kfw1963

Guest
Your meds could change based on what you culture and any drug resistance these bugs may have. Also as Jaime said, if you go on IV therapy they may change these up during this time. I do the following both morning and evening(except the ibuprofen, zithro and mulit vit).

Singulair
HTS
Inhaled Tobi(every other month)
800mg Ibuprofen
40mg Protonix
2 Mulit Vits
Nasal Rinse
Flonase
Zithromax - MWF

Also Enzymes for meals/snacks and tylenol pm(generic version) for sleep aid and pain(costochondritis).

The schedule takes some getting used to and it can be a big time commitment. But in the long run it will help you stay healthier and be able to do more things with your friends.
 
K

kfw1963

Guest
Your meds could change based on what you culture and any drug resistance these bugs may have. Also as Jaime said, if you go on IV therapy they may change these up during this time. I do the following both morning and evening(except the ibuprofen, zithro and mulit vit).

Singulair
HTS
Inhaled Tobi(every other month)
800mg Ibuprofen
40mg Protonix
2 Mulit Vits
Nasal Rinse
Flonase
Zithromax - MWF

Also Enzymes for meals/snacks and tylenol pm(generic version) for sleep aid and pain(costochondritis).

The schedule takes some getting used to and it can be a big time commitment. But in the long run it will help you stay healthier and be able to do more things with your friends.
 
K

kfw1963

Guest
Your meds could change based on what you culture and any drug resistance these bugs may have. Also as Jaime said, if you go on IV therapy they may change these up during this time. I do the following both morning and evening(except the ibuprofen, zithro and mulit vit).

Singulair
HTS
Inhaled Tobi(every other month)
800mg Ibuprofen
40mg Protonix
2 Mulit Vits
Nasal Rinse
Flonase
Zithromax - MWF

Also Enzymes for meals/snacks and tylenol pm(generic version) for sleep aid and pain(costochondritis).

The schedule takes some getting used to and it can be a big time commitment. But in the long run it will help you stay healthier and be able to do more things with your friends.
 
K

kfw1963

Guest
Your meds could change based on what you culture and any drug resistance these bugs may have. Also as Jaime said, if you go on IV therapy they may change these up during this time. I do the following both morning and evening(except the ibuprofen, zithro and mulit vit).
<br />
<br />Singulair
<br />HTS
<br />Inhaled Tobi(every other month)
<br />800mg Ibuprofen
<br />40mg Protonix
<br />2 Mulit Vits
<br />Nasal Rinse
<br />Flonase
<br />Zithromax - MWF
<br />
<br />Also Enzymes for meals/snacks and tylenol pm(generic version) for sleep aid and pain(costochondritis).
<br />
<br />The schedule takes some getting used to and it can be a big time commitment. But in the long run it will help you stay healthier and be able to do more things with your friends.
<br />
 
T

TonyaH

Guest
Hi Casey,

Welcome! It seems sometimes that CF meds and therapy run our day, doesn't it? But, we're not alone! Everyone here does it, and you can, too! This is Andrew's schedule..

* Albuterol before nebs and as needed
* Hypertonic Sailine, am and pm
* Pulmozyme, am & pm
* Tobi am & pm, every other month
* Pancrecarb MS-8 7 with meals, 5 with snacks
* Prevacid am & pm
* Rhinocort, am & pm
* Prednisone, am, every other day
* Vitamax, pm
* Zyrtec, pm
* Zithro, MWF

Hope this helps!
 
T

TonyaH

Guest
Hi Casey,

Welcome! It seems sometimes that CF meds and therapy run our day, doesn't it? But, we're not alone! Everyone here does it, and you can, too! This is Andrew's schedule..

* Albuterol before nebs and as needed
* Hypertonic Sailine, am and pm
* Pulmozyme, am & pm
* Tobi am & pm, every other month
* Pancrecarb MS-8 7 with meals, 5 with snacks
* Prevacid am & pm
* Rhinocort, am & pm
* Prednisone, am, every other day
* Vitamax, pm
* Zyrtec, pm
* Zithro, MWF

Hope this helps!
 
T

TonyaH

Guest
Hi Casey,

Welcome! It seems sometimes that CF meds and therapy run our day, doesn't it? But, we're not alone! Everyone here does it, and you can, too! This is Andrew's schedule..

* Albuterol before nebs and as needed
* Hypertonic Sailine, am and pm
* Pulmozyme, am & pm
* Tobi am & pm, every other month
* Pancrecarb MS-8 7 with meals, 5 with snacks
* Prevacid am & pm
* Rhinocort, am & pm
* Prednisone, am, every other day
* Vitamax, pm
* Zyrtec, pm
* Zithro, MWF

Hope this helps!
 
T

TonyaH

Guest
Hi Casey,

Welcome! It seems sometimes that CF meds and therapy run our day, doesn't it? But, we're not alone! Everyone here does it, and you can, too! This is Andrew's schedule..

* Albuterol before nebs and as needed
* Hypertonic Sailine, am and pm
* Pulmozyme, am & pm
* Tobi am & pm, every other month
* Pancrecarb MS-8 7 with meals, 5 with snacks
* Prevacid am & pm
* Rhinocort, am & pm
* Prednisone, am, every other day
* Vitamax, pm
* Zyrtec, pm
* Zithro, MWF

Hope this helps!
 
T

TonyaH

Guest
Hi Casey,
<br />
<br />Welcome! It seems sometimes that CF meds and therapy run our day, doesn't it? But, we're not alone! Everyone here does it, and you can, too! This is Andrew's schedule..
<br />
<br />* Albuterol before nebs and as needed
<br />* Hypertonic Sailine, am and pm
<br />* Pulmozyme, am & pm
<br />* Tobi am & pm, every other month
<br />* Pancrecarb MS-8 7 with meals, 5 with snacks
<br />* Prevacid am & pm
<br />* Rhinocort, am & pm
<br />* Prednisone, am, every other day
<br />* Vitamax, pm
<br />* Zyrtec, pm
<br />* Zithro, MWF
<br />
<br />Hope this helps!
<br />
 
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