wheezing

ashton2005

New member
I was wondering if intermittant wheezing is common in babies with CF. Ashton got out of the hospital monday he got RSV and starting yesterday whenever hes awake he wheezes.. He dosent do it when hes sleeping though.. Just wondering if i should look more into why hes wheezing.. I hve put a call into the pulmonologist to see what they say. Yesterday when they called me back he had stopped but now hes doing it again.. and like i said its only when hes awake and it comes from his nose when he breaths and hes not congested anymore either..

thanks christi
 

ashton2005

New member
I was wondering if intermittant wheezing is common in babies with CF. Ashton got out of the hospital monday he got RSV and starting yesterday whenever hes awake he wheezes.. He dosent do it when hes sleeping though.. Just wondering if i should look more into why hes wheezing.. I hve put a call into the pulmonologist to see what they say. Yesterday when they called me back he had stopped but now hes doing it again.. and like i said its only when hes awake and it comes from his nose when he breaths and hes not congested anymore either..

thanks christi
 

anonymous

New member
Could be his nose. have you tried saline drops?

When DS was about that age he developed a wheeze over the winter months and once in awhile coughed and sounded just like a kid at his daycare. So I panicked and took him in and a regular peds doctor at the clinic did the "he sounds clear...yadda yadda yadda" Must just be an upper respiratory bug/cold. I later mentioned it to our CF doctor and he said, just beat that cold/cough out of him. That's his usual stance. Also he mentioned that regular doctors don't always know what they're listening for.

A coworker's grandson got RSV (noncfer) and she says when he gets upset or starts to get a cold, she can still kinda hear a wheezy sound.
 

anonymous

New member
Could be his nose. have you tried saline drops?

When DS was about that age he developed a wheeze over the winter months and once in awhile coughed and sounded just like a kid at his daycare. So I panicked and took him in and a regular peds doctor at the clinic did the "he sounds clear...yadda yadda yadda" Must just be an upper respiratory bug/cold. I later mentioned it to our CF doctor and he said, just beat that cold/cough out of him. That's his usual stance. Also he mentioned that regular doctors don't always know what they're listening for.

A coworker's grandson got RSV (noncfer) and she says when he gets upset or starts to get a cold, she can still kinda hear a wheezy sound.
 

anonymous

New member
Hi christi,

My daughter has not had RSV(that I know of). But when she was an infant and had a bad cold she would make this wierd wheeze sound in her throat. I don't know if it's cause CF secretions/mucous are different, more strandy, hope this makes sense. I kept bringing her in to the doc when it would happen and rarely of course would it happen when the doc was there. Also, babies airways are so little. I would definately talk to your pulmonlogist since Ashton had RSV.

Rebecca(mom to Sammy 7 no CF and MAggie 3 with CF)
 

anonymous

New member
Hi christi,

My daughter has not had RSV(that I know of). But when she was an infant and had a bad cold she would make this wierd wheeze sound in her throat. I don't know if it's cause CF secretions/mucous are different, more strandy, hope this makes sense. I kept bringing her in to the doc when it would happen and rarely of course would it happen when the doc was there. Also, babies airways are so little. I would definately talk to your pulmonlogist since Ashton had RSV.

Rebecca(mom to Sammy 7 no CF and MAggie 3 with CF)
 

ashton2005

New member
so far they sid since it is coming more from his nose or at least it sounds that way to just watch him over the weekend. they said if it was a true wheeze that he would do it when he sleeps also so we will wait and see..

christi
 

ashton2005

New member
so far they sid since it is coming more from his nose or at least it sounds that way to just watch him over the weekend. they said if it was a true wheeze that he would do it when he sleeps also so we will wait and see..

christi
 

Tom

New member
When my son had RSV at 8 months, they said that he may cough or wheeze for up to 8 weeks (he only coughed for two weeks). What your son is experiencing is probably normal, but it is good to keep an eye on it.

Tom
 

Tom

New member
When my son had RSV at 8 months, they said that he may cough or wheeze for up to 8 weeks (he only coughed for two weeks). What your son is experiencing is probably normal, but it is good to keep an eye on it.

Tom
 

anonymous

New member
Hi Christi,

When our oldest daughter (no CF) had a full blown asthma attack at the age of four, the doctors at the hospital taught us how to identify true wheezing. A true wheeze can often be felt if you rest your hand on your child's back. You can feel the vibration upon their exhalation. If you feel that vibration pretty strongly, most likely the wheeze is pretty severe.

They also taught us how to listen for a wheeze. The best way is to use a stethoscope. A normal breath sounds like a smooth blowing of wind, both inhalation and exhalation. A wheeze is evident when you hear a whistling sound (often high pitched) at the end of an exhalation. If the wheezing is particularly bad you might hear the high pitch at the end of inhalation AND exhalation. You can also listen to a strong wheeze with your ear resting on your child's back. You will actually hear the high pitch (wheeze) at the end of his breath.

I'm not advocating for all parents to go out and get a stethoscope. (If you have a hospital stay, you can ask to take the stethoscope used in your child's room, they usually bill it anyway, and it is usually thrown out.) However, if your child has a lot of respiratory issues as ours do (asthma and CF). It's good to educate yourself on what to listen for.

My daughter who does have CF will sometimes sound terrible. Loud breathing, runny nose, etc. but when I listen to her lungs they are clear. Then I know that it's just an upper respiratory thing. (Unfortunately, that usually leads to a lower respiratory thing!!)

Good Luck!

Maria (mom to three daughters, the youngest, Samantha, w/cf)
 

anonymous

New member
Hi Christi,

When our oldest daughter (no CF) had a full blown asthma attack at the age of four, the doctors at the hospital taught us how to identify true wheezing. A true wheeze can often be felt if you rest your hand on your child's back. You can feel the vibration upon their exhalation. If you feel that vibration pretty strongly, most likely the wheeze is pretty severe.

They also taught us how to listen for a wheeze. The best way is to use a stethoscope. A normal breath sounds like a smooth blowing of wind, both inhalation and exhalation. A wheeze is evident when you hear a whistling sound (often high pitched) at the end of an exhalation. If the wheezing is particularly bad you might hear the high pitch at the end of inhalation AND exhalation. You can also listen to a strong wheeze with your ear resting on your child's back. You will actually hear the high pitch (wheeze) at the end of his breath.

I'm not advocating for all parents to go out and get a stethoscope. (If you have a hospital stay, you can ask to take the stethoscope used in your child's room, they usually bill it anyway, and it is usually thrown out.) However, if your child has a lot of respiratory issues as ours do (asthma and CF). It's good to educate yourself on what to listen for.

My daughter who does have CF will sometimes sound terrible. Loud breathing, runny nose, etc. but when I listen to her lungs they are clear. Then I know that it's just an upper respiratory thing. (Unfortunately, that usually leads to a lower respiratory thing!!)

Good Luck!

Maria (mom to three daughters, the youngest, Samantha, w/cf)
 

anonymous

New member
My son (w/cf) had RSV at 3 1/2 months (a very bad case) and I was told he could wheeze for up to two years. He had a pretty bad wheeze for about 8 months and it's gotten better and better (esp. since he started Pulmicort). He also has asthma (they suspect it is a result of the RSV). Only once in a great while will I hear any sort of wheeze and it's usually extremely faint, and usually on a bad allergy day.

Amanda
Mommy to Kenzie (5 1/2, cf carrier) and Ethan (2 1/2, wcf)
 
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