When next child

anonymous

New member
First of all, sorry for my English, it is not my native language as I come from central Europe. I have 6 months old boy with CF. I would like to have second baby, but I can not imagine how it would be, I mean we spend a lot of time with excercises, inhalations, .... so I dont know what is the most suitable age distance. If you have some experience, I would be thankful
 
2

2sickkids

Guest
Both of my kids have CF they are 27 months old and almost 7 months old. I don't find having two any harder then just one. Sometimes I think it is better for them to be so close in age. I can get all of the baby stuff out of the way at the same time. They always have someone to play with. My youngerst son had a best friend before he was born. As for the meds and stuff I just do them both at the same time. So I have one kid on each side of my lap while they get their meds
 

anonymous

New member
Do you have the option for PGD to try to prevent the second from having CF? I am not sure if your insurance covers it.
 

anonymous

New member
Unfortunately in our country the selection of embryos is forbidden (because of catholic politics), according to me it is stupid as I want only to have healthy child and not " girl with blue eyes and blond hair". We could go for it to another country, but it would be too too expansive (insurance is only for sterility) , so for me the only possibility is amnio... Is there any other in your country? And in which week of pregnancy is it possible to make amnio?

Thanks
Lucia, mom of Michal 6 months wcf
 
J

Jenica

Guest
Lucia, I think you can get an amnio at 15 - 18 weeks and it takes two to four weeks to get the results back. You can also have a CVS, which is performed earlier, usually 11 - 13 weeks or so, and with that, you get your results between 3 days and 2 weeks after. I had a CVS with both of my pregnancies (one daughter w/o CF, one daughter to be born w/CF) and both times I knew beforehand around the 14 week mark. If you do opt for the CVS, make sure it is with a doctor that has a lot of experience performing them. The miscarriage rate for CVS procedures is about 1% overall, but it is very dependant on the dr's skill and proficiency. A good doctor can perform a CVS with the same miscarriage rate as an amnio (.5%).

As far as preventing an unborn baby from having CVS, I wasn't aware it was possible. We were told that this still is not possible, but I haven't heard of PGD. What is that?
 

anonymous

New member
PGD is a form of in-vitro fertilization where embryos can be identified if they have cf, carry the gene or without the cf gene. Then only the embryos free of cf are implanted in the womb.

My two children are 25 months apart. They both have cf. It really just depends on what you can handle. Some parents (regardless of cf) want kids close in age and others want to wait a number of years. Since both of my kids now use the vest, it really doesn't take anymore time for me to do their treatments. It just fits in your schedule like the first one did.
Sharon, mom of Sophia, 3 and Jack, 18 months both with cf
 
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