My 2 week old Granddaughter was just diagnosed with CF. I've been reading as much as I can about the condition and feel completely devastated for my daughter and grandbaby. I just found out yesterday so I still need some time to digest it all.
Medical conditions are, unfortunately, nothing new to my lil family. I have 3 daughters. My oldest and her 1 year old son, my grandbaby, have Cavernous Angioma's. Many bleeds, a brain surgery and another surgery when she had a bleed in the base of her brain stem while she was pregnant with my Grandson. Unfortunately, my girls Daddy passed last October and apparently he had it also. Genetics can be cruel.
I am Grateful for the early diagnosis ready to learn how I can assure that my grandbaby gets the best care and how to best support my daughter through it all.
My Daughter lives near Sacramento CA and a couple of hours from Stanford in Palo Alto. I live within a couple of miles from Mayo Clinic in Rochester MN. I am hoping to get some feedback on where we can get her excellent care - especially if you've received care at either on of these locations.
To everyone reading this - My heart goes out to you and your family as you wouldn't be here if, like me, a loved one wasn't also being challenged with such a diagnosis. God is good and he loves our babies more than we can as humans.... God bless and hope to hear from you soon.
